Hi. I'm a 52yo post menopausal female ex senior nurse (maybe now you see why GPs are fobbing me off).
Over the last year, or maybe longer, I've had increasing joint pains, tiredness, brain fog, memory problems ,difficuly concentrating, ataxia ( bit like balance probems), hair loss and ?scalp psoriasis and vision problems. Also intolerant of heat and have lots of hot sweats (even when I don't feel hot) which make me dizzy (BP is usually about 120/70) and tachycardia/palpitations. I have vertical ridges in my nails and look pale, particularly under my eyes.
I don't work through choice since we came back from living abroad for 5 years and TBH at the moment I couldn't work, certainly not as a nurse. If I do 4 hours of house work or painting/decorating, for example (have recently been getting my elderly parents house ready to sell) I'm absolutely drained. Having said all that, I don't sleep very well,especially at night, but often grab a 2 hr sleep in the afternoon.
I started taking Vit D about a year ago as thought I might be Vit D deficient and also B12 about 3 months ago, but not made any difference.
I had bloods done privately in June as GP wasn't doing anything. Just kept saying i was depressed , bloods were OK 8 months ago, gave me antidepressants (which made me like a crazy woman) ,coal tar shampoo and sent me for an ECG.
In June my Hb was 12.5 (which is low for me as I always used to run at 14.5 and I'm a smoker) and Red blood cells 3.8 (range 3.8-4.8) HCT was 0.36 (range 0.36-0.46).
Iron,Ferritin etc etc all well within range.
B12 373 (191 -663)
Vit D was "borderline insufficient" at 75.
Inflammatory/Infection markers normal
Thyroid normal, Calcium and Albumin normal . Total protein not done
Sodium 140 mmol/L
Potassium 4.2 mmol/L
Urea 4.6 mmol/L
Creatinine 63 umol/L
estimated GFR (eGFR) 86 ml/min
Blood glucose all good. Triglycerides and LDL cholesterol below normal range??
So nothing abnormal really going by the numbers, but not exactly overun with red blood cells or haemaglobin.
Unfortunately don't have blood results from last October to compare.
2 weeks ago I had an episode of sparkly lights in the upper outer part of my right eye. Moving in a wave from the top when it started. It lasted about 10 minutes. It came on suddenly, I couldn't see well enough to use the computer and it went away in the same manner, ie from bottom to top. There was no headache.I haven't had a migraine for maybe 10 years, and didn't ever get visual symptoms when I did get them. I've had my eyes tested since then and everything was good.
At the weeked I went to A/E as I was concerned about a slightly swollen, red and painful calf. Knee had been sore for about 2 weeks after kneeling a lot, but this was ache in the calf and swelling with some heat and redness, so thouyght should get it checked. I have quite bad varicose veins and really bad broken/ thread veins on that leg. Anyway, after waiting for 4 hours for blood results to come back, D dimer was negative and mostly bloods were the same, apart from
Creatinine was 76 up from 63 and the eGFR had dropped to 71 from 86 and thenlab report said "Stage 2 chronic kidney disease indicated if other evidence".
Total protein was 63 (60-80).
It was only when I got home that I looked at the clotting results and saw that my APTT was 40 (normal 25-35) and haematology had said "is patient on anticoagulant therapy? If not recheck".
So being an ex nurse I know a bit about some things, a lot about a few things, and nothing about others so I head to the internet with a hunch that maybe the kidney, clotting thingy and the borderline anaemia (which isn't iron deficiency) might be connected, or that I'm just a post menopausal depressed ex nurse.
My understanding is that Lupus anticoagulant can cause prolonged APTT. I know that not everyone with Lupus anticagulant has SLE (which coincidentally is my initials) and vice versa, so maybe I should've posted on a different forum.
Any thoughts or ideas appreciated. I'm exhausted from the concentration of writing this.