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Vitamin D updates and hair problem

About a month ago I went to doctor and talked about my symptomps (hairloss, dry skin, headache sometimes). He suggested me to test my vit D levels and it was 17, so it means I'm deficiency. He told me to take vit D 5000 IU daily and test again 3 months later. I have been taking vit D for 2 weeks.

I'm still not sure about the result, but here is the effects I got:

- I feel I got deep sleep and it's so nice to have that. I don't know if this is the effect of I'm reducing my steroids (I was taking steroids before), or this is because of vitamin D. But I think this is because of the vit D

- I don't really experience headache anymore, and this is a good thing.

- I still have hairloss which I feel bad about it.

I searched on the internet that some people could fix their hairloss with vit D. But I don't know how long it takes. Also, I make conclusion about my hairloss condition.

It was triggered by stress 2 years ago. Maybe for normal people they will experience it for 3-4 months but since I have SLE so it is harder for me to fix it. I'm also low in Hb so I guess my hairloss condition is because of low HB and vitamin D.

10 Replies

Hello. Glad to hear you are getting better sleep but the hair loss thing is distressing. My lupus nurse said it could be due to iron and zinc deficiency (and lo, I was deficient in both). Might be worth checking out too (wish the docs would just do a vitamin and mineral health check!).

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I never tested my zinc level. Thanks for the suggestion.


I've tested my allergic at its all negative which means my hairloss isnt because of allergic. Because Ive read about gluten free diet and turns out im not allergic to gluten. So maybe im low at zinc too because seems that my iron level is low



Hair loss seems to be quite a common problem with Lupus. I too have suffered with it. Around the front hairline and generally overall thickness has reduced.

I don’t have Iron deficiency, I have the opposite too much Iron.

I am researching a bit about health atm and read an article that lack of Biotin can cause hair loss. This maybe worth adding as supplement to your diet. I would tend to go for a decent brand, do a bit of research as to what is a better supplement and has the least fillers etc.

Good luck

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Hi! Yes ive heard about biotin but im afraid to take too much supplements. Ive already taken fish oil too. And then the meds it self is already a lot. Did u still experience it? It bothers me a lot because it affects my self esteem.


Hello Babymilo. I had hair loss about 25 years ago. It was more in the middle of my scalp and wispy. At the time it was a lotion that was prescribed and religiously rubbed into the scalp every day. I do not think it did any good and it was time and recovery. It was the run up to my wedding at the time but luckily it was growing a bit better by then. I can't say for sure what caused it i.e a deficiency but I have lovely shoulder length hair now. However I have been on a steroids (v low dose) for many years and I used to take Calcichew (to prevent associated bone loss). For some years now I have been on Adcal D3 twice a day which is calcium and Vit D3 (the D3 is the kind you need). I would def recommend Vit D but you will need to keep taking it and if you are on steroids or have been then Calcium and vit D. Also ask GP about a bone density scan to monitor your bone density. You only need one every 3 years. Good luck x


Hi! Do you know what really stop ur hairloss? Because ive experienced before. I had hairloss then i recovered. But this time I got hairloss again because of stress. But I cant really tell what stopped my hairloss at that time.


Hi, my hair got really thin as I am on Methotrexate injections, so my consultant put me on folic acid . 1 x 6 days a week, not on metho days and it seems to have stabilised it! x


a hair dresser just recommended taking hydrolyzed collagen peptide powder at least 13g a day that is organic from marine or bovine with type 1 and 3 collagen or more in it. She is older and says she recommends it to all her clients bec it works...


Hi Babymilo,

Hair loss “alopecia” is commonly experienced by people with lupus. We published an article on our blog about coping with hair loss. The article contains helpful tips and information which you can read here: lupusuk.org.uk/coping-with-...

We published a guide on ‘LUPUS and Healthy Eating’ which provides information on food groups that can naturally boost your vitamin D level: lupusuk.org.uk/wp-content/u... . Always consult your doctor when making significant changes to your diet as this can sometimes cause disruption to certain medication.

Please keep us updated, wishing you all the best.


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