My GP is referring me to a rhuematologist mid may appointment. 5 years ago I had pluerisy, went back to doctor 6 month later to be told it would take at least 18 months to recover. So suffered the aching legs, pains in my chest, feeling exhausted and went back after 18 months. Tests done showed I had chronic kidney disease, poor liver function which they tried to get under control. Lots more tests done for CKD but no reason found! Since then I feel I have been on a downward spiral, even though my previous doctor said the test came back negative fir lupus over 3 years ago, I've never thought about lupus until I had to give up work ( due to previous doctors advice) . We moved area and I now have a new doctor, he found that I was deficient in vitamin d, he put me on medication but my joint pain hasn't improved. Also, need to say I've been on antidepressants for the last year, my memory is terrible, feel as if I'm going crazy. It wasn't until I met the nurse at the new doctors that she mentioned lupus again. All the pieces of the jigsaw seem to fall into place. I'd like to know is this usual for it to take so long to get diagnosed, cos if I haven't got lupus what else could it be? One more thing, I don't like bothering the GP but last year I had a short episode of nausea and sickness and I was put on tablets. Last night I was in so much pain in my stomach which went through to my back, I did have a little wind but was then very sick and I felt as if I'd been punched in the stomach. I'd not eaten anything different to my husband, is it important to tell my GP about this or not. I feel so alone with this. Sorry it's so long.
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