Hailey-Hailey Disease Worldwide Support Community | HealthUnlocked

A very good radio program about LDN and diet for Hailey-Hailey: https://www.youtube.com/watch?v=kJUUkf7FpOA. You can google info about LDN or search for info...

I have been diagnosed with HHD about 3 years ago and all of a sudden i am broke out under the arms and breasts and pantyline area. The dermatologist gave me...

Hi, I am Gulseven from Cyprus. I have been diagnosed with Hailey Hailey disease since November 2018

I am a highly active runner and health conscious 44 yr old women. I self diagnosed as I haven't had any luck in the medical community with a diagnosis. Been...

Hello I have hhd disease and I have this complication in the groin and testicles area and I really suffer from severe pain and pain, and I have tried...

Has anyone tried it? Low dose? I hv been heard of it...

Recalcitrant Hailey-Hailey Disease Responds to Oral Tacrolimus and Botulinum Toxin Type A Cutis. 2015 December;96(6):E14-E16 Author(s): Monica Bedi, MD Andrea...

For the last 3 months my Hailey Hailey has been flaring up and getting worse haven't seen improvements snd the smell coming from under my breast id horrendous...

I've had asthma and allergies all 24 years of my life. Within the last year I was diagnosed with Hailey Hailey after having a biopsy. I was wondering if...

Hi. I m limor, 28 years with hailey hailey. I was treated with a lot of things, but since the birth of my little son, more than a year, suffer without any...

Hi. I just joined today. Had HHD since 1995. Experiencing continuous painful flareups & infections in breasts & groin areas in 2018. Unable to wear any type...

Hi, I just joined today. I’ve had HHD since 1995 and was doing ok until 2018 experiencing continuous cycle of raw flare ups and infections under both breast &...

Hello everybody. New here. I’m from Portugal. Been diagnosed HHD last year but I’m with this condition since an early age. About from the age of 15. I’m 45...

Hello everyone i am going to do short cut i suffered 20 plus years real bad.I did not want to use steroid , drugs etc. and i found natural way to free of pain...

Just started using LDN. I’m extremely optimistic. I will keep you all posted if it works for me. My brother also recently started using it, and has seen some...

Hello to all who suffer..I've been wanting to try groups with the same disease but I get emotional that its kept me away from sharing my story. But its time...

Hello everyone, I suffer from HHD for more than 30 years. I applied for the disability almost 2 years ago and I do not know at this time if it will be...

Hello I have hailey hailey & have for 13 yes & still no thing helps I have it in 4 places at moment & thus flare up lasted a whole year still have pain every...

Come on HHD community! - I want to hear about your experiences with Topical Steroids, getting off them and anyone (especially with HHD) who has tried Low...

I am a 55 year old female and I am waiting for my biopsy results. Nobody in my family has this disease. This is my first outbreak. Did anyone else get it so...

I am 30 year old male leaving in India. My dad has HHD and he is aged 65 now. We have long history of having HHD. His HHD almost under control. My HHD is not...

Just finding out just how bad pimfigus vulgaris and how it attacKS the internal mucus membranes of your body. Don't be fooled into Cancer drugs can exacerbate...

Any have had diverticulosis.and do y think its related to hhd

Hi All I've been a fully-paid-up member of the HHD club for about 20 years already. I'm 47. I've been managing flare-ups with topical steroids. That was until...

Hi all. Newby here. Name is Stefan, am 60 years old and have had HHD since 35 years of age. Originally GPs always treated me for fungal infections but work...

Hi. I realised that I had inherited HHD from my dad 20 years ago, in my 20s. It has been getting progressively worse... In the last year, I gave been...

Hello everyone. My name is Zhanna. Dear HHD sufferers, I am new here and would like to share my experience. My HHD started about in my mid 20ties and now I am...

Hello. I'm new to the group. I have had this disease since 19. (Over 40 years). I have had 2 surgeries at Mayo Clinic because of this disease. I am in a lot of...

Hi Everyone, My name is Brian and I'm new to this group. I've recently been diagnosed with HHD. I am 34 years old, living in Canada with my wife and two...

Hi there, I have just been diagnosed with HHD after years of conversations with doctors that it is not infected (Atopic) Eczema so it has now been confirmed. I...