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New to HHD
susannh8 hours ago
I am new here and new to this disease, HHD. I can say that it is very bothersome. If I may ask, how do others cope?
I live in New Hampshire...
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Help with Hailey Hailey
Hidden8 months ago
My boyfriend has hailey hailey disease and it's flared up pretty bad right now. He has a new cream to use the doctor gave him. Can he use ba...
Want to be a Volunteer Community Moderator for Hailey-Hailey Disease Worldwide Support?
Hiddena year ago
What we are looking for
We accept all applications, but ideal candidates are members that have been active in the community for at least 6 mo...
Phimphugus vulgaris Que debonair y que no debonair comer
mikimikia year ago
No se que comer con esta enfermedad no puedo comer la gran MayorIA de fruta que existence en el Mercado por su acides incluyen do los vegeta...
Clinical Trial for LDN
Hidden2 years ago
******* ATTENTION PLEASE: IF WE WERE TO HAVE A CLINICAL TRIAL FOR LOW DOSE NALTREXONE (LDN) AND HHD, WHO MIGHT BE INTERESTED IN PARTICIPATIN...
New to group
Hi Everybody, I'm a long-term sufferer of HHD, having first been diagnosed when I was 18 and I'm now 52. Luckily, my mother had been diagnos...
How do I attach a picture to my post?
4 top ways to boost the visibility of your posts
HugoHU2 years ago
When you’re starting an online movement there’s nothing more important than to be able to connect with the right audience as quickly as poss...
What's is like living with HHD? Quite frankly it's horrible!!!
Madaboutdogs72 years ago
I was diagnosed around 8 years ago following a biopsy recommended by my inquisitive doctor after years of creams that didn't work. I get it...
Please introduce yourself!!
Hello! Welcome new members! Please don't be shy. Introduce yourself and tell us about your HHD experiences or that of your loved one(s). ...
Is your HHD getting worse with age?
I used to have bouts of HHD which would clear up and I could be free for many weeks but for the past 3 years I have had a constant outbreak....
Low Dose Naltrexone (LDN)
CindySiegelShepler2 years ago
Who is using LDN for HHD treatment and prevention? Are you having success with it? I have been using LDN and I feel it helps reduce the nu...
Welcome new members!!
It is great to have all of you as part of our community! Please give a little introduction about yourself and your life with HHD - or the l...
Life is not about the length of the journey, but treasuring the moments along the way.
Do you tell other people about your HHD?
AnnieNewZealand2 years ago
I used to tell people that I had HHD because during an outbreak there are some things that I simply can not do, like raise my arms, wear cer...
Privacy of posts
Some of you have asked about the privacy of posts. This is what HU says in their admin info:
"Defining who can view your posts or questions:
Hi Cindy! Thanks for creating this community! Hopefully we can support each other to live a happy, healthy life with HHD here!
Thank you for the warm welcome and for creating this group! I look forward to watching it grow.
Living with Hailey-Hailey Disease
Hello to you all!
I have been living with HHD for over twenty years, but I only began to suffer regularly in 2009, the year I was diagnosed. ...
Please share your HHD experiences. What is it like living with this rare and isolating disease?
How difficult was it to get your HHD diagnosis?
Start a Community