I've been a fully-paid-up member of the HHD club for about 20 years already. I'm 47. I've been managing flare-ups with topical steroids. That was until last year, when the steroids have become less effective. They sometimes make my skin red.
I've been feeling generally unwell for the last year and a half and have been racking my brain to work out what the heck is going on. My current theory is that I have become Topical Steroid dependent and the creams are now part of the problem for me, instead of the solution. I have stopped using them, gone cold-turkey and been avidly reading about Topical Steroid Withdrawal and Red Skin Syndrome (both side-effects of long-term topical steroid use).
I joined a facebook forum (ITSAN) and one of the coordinators asked me whether I had tried LDN. I had no idea what LDN was; I had never heard of it before, but there is a journal entry saying that LDN has been used successfully to treat HHD. Does anyone have any experience of this drug? If so, please get in touch... B-)