Hi.
I m limor, 28 years with hailey hailey.
I was treated with a lot of things, but since the birth of my little son, more than a year, suffer without any remision.
I hv been offered to try botox.
Has anyone tried botox to treat hailey hailey and can tell me about it?
Thank u,
Limor from israel.
Limor, first off, sorry about the H&H. I have it, it is awful.
For me, my flare-ups were almost always present, and it started to affect my day to day activities, to the point I couldn't walk normal and called into work. After steroid ointments, that didn't do much at all when flared up; my dermatologist offered acid dermal abrasion or laser dermal abrasion. The laser is a step above the acid, in intensity and cost;
For me, the botox treatment would have been more effective at control sweat production which helps cause a flare-up; than it would to actually stop the skin from breaking down.
So I went the acid route, with the laser waiting if needed. The acid abrasive technique (which chemically burns a very thin layer of skin so it grows back more callous, thus resulting in tougher; more flare-up resistant skin over time. ) I did around 14 rounds every 3 weeks. It wasn't quick or 100% effective, or very comfortable but it did bring down the problematic area to a much smaller size, with less frequent and less severe flare-ups and a quality of life I hadn't experienced in years.
Overall all, I would do it again, because the acid treatment although a bit painful but more uncomfortable was nothing compared to the constant flare-ups I was getting in a very delicate spot on the male body.
Hi handhintexas!
So sorry to read what u wrote. Unloucky me, i know yr condintsion from myself.
I was treated by Photo dinamic therspy, 33 treatments, almost 3 hours of burning my skin without any a local sleeping to the areas. Helped for about a year. I m in condition that i cant work becoz of my opened wounds, cant almost function.
The only thing that helps a bit is a soloution, "carbon fuxin" , "sol castellani". Its an old version of iron. Keeps me not being hospitalize coz of infaction.
I hv to wait till december till the botox.
Altough no person's body like the other, i m a bit optimistic to read its better then the flare ups.
Hope u wont hv to chose anymore, whats better and just feel good!
P.s
Sorry for my spelling...
