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Hailey-Hailey Disease Worldwide Support Community

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Gut Health and Hailey-Hailey, LDN and SCD diet

A very good radio program about LDN and diet for Hailey-Hailey: https://www.youtube.com/watch?v=kJUUkf7FpOA. You can google info about LDN or search for info...

A very good radio program about LDN and diet for Hailey-Hailey: https://www.you...

FrenchCanadian

•3 years ago

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HHD that is miserable

I have been diagnosed with HHD about 3 years ago and all of a sudden i am broke out under the arms and breasts and pantyline area. The dermatologist gave me...

I have been diagnosed with HHD about 3 years ago and all of a sudden i am broke ...

Tracy5

•5 years ago

11 Replies

Hi, from Cyprus

Hi, I am Gulseven from Cyprus. I have been diagnosed with Hailey Hailey disease since November 2018

Hi, I am Gulseven from Cyprus. I have been diagnosed with Hailey Hailey disease ...

gulseven

•5 years ago

3 Replies

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Just found my diagnosis today.

I am a highly active runner and health conscious 44 yr old women. I self diagnosed as I haven't had any luck in the medical community with a diagnosis. Been...

I am a highly active runner and health conscious 44 yr old women. I self diagnos...

Jacampbe

•5 years ago

7 Replies

i have a hailey hailey disease . please help me

Hello I have hhd disease and I have this complication in the groin and testicles area and I really suffer from severe pain and pain, and I have tried...

Hello I have hhd disease and I have this complication in the groin and testicles...

azimideveloper

•5 years ago

8 Replies

Neletraxson?

Has anyone tried it? Low dose? I hv been heard of it...

limoribat

•5 years ago

15 Replies

Great success with oral tacrolimus in 3 Hailey Hailey patients!

Recalcitrant Hailey-Hailey Disease Responds to Oral Tacrolimus and Botulinum Toxin Type A Cutis. 2015 December;96(6):E14-E16 Author(s): Monica Bedi, MD Andrea...

Recalcitrant Hailey-Hailey Disease Responds to Oral Tacrolimus and Botulinum Tox...

Dermatologist

•5 years ago

10 Replies

How long should your skin be infected

For the last 3 months my Hailey Hailey has been flaring up and getting worse haven't seen improvements snd the smell coming from under my breast id horrendous...

For the last 3 months my Hailey Hailey has been flaring up and getting worse hav...

suzannelyon

•6 years ago

2 Replies

Asthma, Allergies and Hailey Hailey?

I've had asthma and allergies all 24 years of my life. Within the last year I was diagnosed with Hailey Hailey after having a biopsy. I was wondering if...

I've had asthma and allergies all 24 years of my life. Within the last year I wa...

Maggieeemichelle

•6 years ago

1 Reply

Botoks

Hi. I m limor, 28 years with hailey hailey. I was treated with a lot of things, but since the birth of my little son, more than a year, suffer without any...

Hi. I m limor, 28 years with hailey hailey. I was treated with a lot of things, ...

limoribat

•6 years ago

2 Replies

Recommendations on what to wear with raw flareups under breasts?

Hi. I just joined today. Had HHD since 1995. Experiencing continuous painful flareups & infections in breasts & groin areas in 2018. Unable to wear any type...

Hi. I just joined today. Had HHD since 1995. Experiencing continuous painful fl...

MusicPuggle

•6 years ago

3 Replies

Recommendations to wear when having severe infections under breasts?

Hi, I just joined today. I’ve had HHD since 1995 and was doing ok until 2018 experiencing continuous cycle of raw flare ups and infections under both breast &...

Hi, I just joined today. I’ve had HHD since 1995 and was doing ok until 2018 ex...

MusicPuggle

•6 years ago

2 Replies

Hello

Hello everybody. New here. I’m from Portugal. Been diagnosed HHD last year but I’m with this condition since an early age. About from the age of 15. I’m 45...

Hello everybody. New here. I’m from Portugal. Been diagnosed HHD last year but ...

JorgeMCG

•6 years ago

1 Reply

I found the cure

Hello everyone i am going to do short cut i suffered 20 plus years real bad.I did not want to use steroid , drugs etc. and i found natural way to free of pain...

Hello everyone i am going to do short cut i suffered 20 plus years real bad.I di...

ridgewood

•6 years ago

12 Replies

LDN

Just started using LDN. I’m extremely optimistic. I will keep you all posted if it works for me. My brother also recently started using it, and has seen some...

Just started using LDN. I’m extremely optimistic. I will keep you all posted if ...

Kdodson

•6 years ago

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Learning a different way.

Hello to all who suffer..I've been wanting to try groups with the same disease but I get emotional that its kept me away from sharing my story. But its time...

Hello to all who suffer..I've been wanting to try groups with the same disease b...

Nikaandmom

•6 years ago

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HHD, 30 years+

Hello everyone, I suffer from HHD for more than 30 years. I applied for the disability almost 2 years ago and I do not know at this time if it will be...

Hello everyone, I suffer from HHD for more than 30 years. I applied for the disa...

Luiede

•6 years ago

2 Replies

Hailey hailey

Hello I have hailey hailey & have for 13 yes & still no thing helps I have it in 4 places at moment & thus flare up lasted a whole year still have pain every...

Hello I have hailey hailey & have for 13 yes & still no thing helps I have it in...

Karenhjm

•6 years ago

9 Replies

Hailey-Hailey Disease without Cortisone

Come on HHD community! - I want to hear about your experiences with Topical Steroids, getting off them and anyone (especially with HHD) who has tried Low...

Come on HHD community! - I want to hear about your experiences with Topical S...

RobinPaulWilliams

•6 years ago

3 Replies

Nobody in my family had HHD

I am a 55 year old female and I am waiting for my biopsy results. Nobody in my family has this disease. This is my first outbreak. Did anyone else get it so...

I am a 55 year old female and I am waiting for my biopsy results. Nobody in my f...

Loribm

•6 years ago

2 Replies

Suffering from HHD past 4 years

I am 30 year old male leaving in India. My dad has HHD and he is aged 65 now. We have long history of having HHD. His HHD almost under control. My HHD is not...

I am 30 year old male leaving in India. My dad has HHD and he is aged 65 now. We...

Subura

•6 years ago

1 Reply

Hhd and cancer

Just finding out just how bad pimfigus vulgaris and how it attacKS the internal mucus membranes of your body. Don't be fooled into Cancer drugs can exacerbate...

Just finding out just how bad pimfigus vulgaris and how it attacKS the internal ...

jskotz201

•6 years ago

2 Replies

I think my colon has hhd

Any have had diverticulosis.and do y think its related to hhd

jskotz201

•6 years ago

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Low Dose Naltrexone anyone?

Hi All I've been a fully-paid-up member of the HHD club for about 20 years already. I'm 47. I've been managing flare-ups with topical steroids. That was until...

Hi All I've been a fully-paid-up member of the HHD club for about 20 years alre...

RobinPaulWilliams

•6 years ago

4 Replies

Newby Post

Hi all. Newby here. Name is Stefan, am 60 years old and have had HHD since 35 years of age. Originally GPs always treated me for fungal infections but work...

Hi all. Newby here. Name is Stefan, am 60 years old and have had HHD since 35 ye...

smpuki

•6 years ago

4 Replies

HHD and the Candida connection

Hi. I realised that I had inherited HHD from my dad 20 years ago, in my 20s. It has been getting progressively worse... In the last year, I gave been...

Hi. I realised that I had inherited HHD from my dad 20 years ago, in my 20s. It ...

RobinPaulWilliams

•6 years ago

1 Reply

Hello Everyone.....

Hello everyone. My name is Zhanna. Dear HHD sufferers, I am new here and would like to share my experience. My HHD started about in my mid 20ties and now I am...

Hello everyone. My name is Zhanna. Dear HHD sufferers, I am new here and would ...

Zha17

•7 years ago

3 Replies

Fever causes flare up?

Hello. I'm new to the group. I have had this disease since 19. (Over 40 years). I have had 2 surgeries at Mayo Clinic because of this disease. I am in a lot of...

Hello. I'm new to the group. I have had this disease since 19. (Over 40 years). ...

Joanne63

•7 years ago

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Recently diagnosed with HHD

Hi Everyone, My name is Brian and I'm new to this group. I've recently been diagnosed with HHD. I am 34 years old, living in Canada with my wife and two...

Hi Everyone, My name is Brian and I'm new to this group. I've recently been di...

Briancanada

•7 years ago

6 Replies

Newly Diagnosed with HHD

Hi there, I have just been diagnosed with HHD after years of conversations with doctors that it is not infected (Atopic) Eczema so it has now been confirmed. I...

Hi there, I have just been diagnosed with HHD after years of conversations with ...

Joloro02

•7 years ago

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Posts - Hailey-Hailey Disease Worldwide Support Community | HealthUnlocked

Hailey-Hailey Disease Worldwide Support Community

Gut Health and Hailey-Hailey, LDN and SCD diet

HHD that is miserable

Hi, from Cyprus

Just found my diagnosis today.

i have a hailey hailey disease . please help me

Neletraxson?

Great success with oral tacrolimus in 3 Hailey Hailey patients!

How long should your skin be infected

Asthma, Allergies and Hailey Hailey?

Botoks

Recommendations on what to wear with raw flareups under breasts?

Recommendations to wear when having severe infections under breasts?

Hello

I found the cure

LDN

Learning a different way.

HHD, 30 years+

Hailey hailey

Hailey-Hailey Disease without Cortisone

Nobody in my family had HHD

Suffering from HHD past 4 years

Hhd and cancer

I think my colon has hhd

Low Dose Naltrexone anyone?

Newby Post

HHD and the Candida connection

Hello Everyone.....

Fever causes flare up?

Recently diagnosed with HHD

Newly Diagnosed with HHD

Search posts

Latest poll

How difficult was it to get your HHD diagnosis?

Topics

Archive