I didn't make myself clear.The comparison between the car and wheelchair,
I should have put an able-bodied person/family having a car and disabled needing a wheelchair. My daughter has a 7 seater car on Motability and she pay only a few pounds a month more than I do for my wheelchair.
I've had my flat adapted for a wheelchair (this was 10 years ago) and now as then, if anything is produced for anyone Elderly or Disabled it costs a lot more, even with vat relief.
I try to adapt something than buy purpose built to keep costs down.
There are many Aids available some at a reasonable price, but there is a lot more that are very expensive.
I recently had to buy a new cosytoes for my wheelchair a small item.To buy a decent thick warm waterproof one was gonna cost around £80. instead I brought 2 cheaper ones and wear the together. One advantage I've already found is if I get a bit to warm I can take one of.
Looking for things for my Granddaughter has really opened my eyes to the cost of things. If my daughter needs anything she lets me know and I surf the net and send her the results. The cost of some of the equipment that would make my Granddaughters life much easier and more comfortable would bankrupt my daughter. So she has to go without.
It's hard to make myself clear when it makes me so angry and upset,
i don't know much about these things, but have you contacted Social Services to see what they're willing to provide? You should get something towards your needs and adaptations.
I know what you mean about specialty goods costing more - it's the same with all medical stuff, the price is unbelievable. I can remember looking at a catalogue of surgical instruments and being amazed at how much a pair of tweezers cost!
Sorry you're having a hard time, I should definitely contact Social Services and see what they will do for you.
The thing with social services is they are strapped for cash, Just like the rest of us.
Catharine was going to have to wait 6-8 months for a social worker, but the woman who works with her school intervened and got her classed as at risk. Was the only way.
Shes been ill for a number of years, had different diagnosis's, but recently they finally agreed she has Retts, so her life expectancy is short, and her health will get worse. She is a beautiful little girl who doesn't deserve the life she has. She always brings smile to all those she meets
She is on the waiting list for so much it's stupid.
There favorite expression is 'we can supply items that are adequate for her needs', in other words the cheapest.
Only through charities have they been able to get some of the equipment needed.
And your right anything SPECIALIZED come with a high cost.
I know what you mean. Simple things like wrist splints can cost £20+ each wrist. I was in boots looking at knee supports. They had one that you could wear in bed and it was almost £30. Walking sticks, well think of number and double it! Ergonomic cutlery? Dont ask. Now in themselves, it doesnt sound much, but if you want lots of them it gets pricey. I agree, disability aids are a big market and unfortunately, a captive one xx
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