Fibromyalgia Action UK
40,303 members52,405 posts


OK, I first applied for DLA in 2010 when I became disabled. I suffer from - Fibromyalgia, Chronic Fatigue, Fibrous Dysplasia, Arthritis, Polymyalgia, Polyarthralgia, Achilles tendonitis and uncontrollable jerks and two severe tremors. I lost my first application, I put in an appeal. In 2012 I attended the appeal, they told me due to my disability change to put in a new claim. In February 2012 I put in a change of circumstances. Yesterday I was turned down again, I am not disabled enough, the ATOS doctor spent about fifteen minutes with me and wrote a ridiculous report.

So I am left with the stress of having to appeal again.

Happy days.

12 Replies

The ATOS doctor who gave me a medical at home said that in her opinion I was not fit for work, and that if I did get refused I should appeal and I would win. I appealed over 5 weeks ago and have heard nothing. Looks to me like they don't even listen to the doctors they send to label us.


The ATOS doctors are just there to fill a purpose they have little clout. I don't know anymore what I have to write in my defence.


You must appeal please don't give in if you haven't already you can email us at and put the subject benefits and Mdaisy can send you out the help sheets for filling in claims and appeals.

VG x


Thank you for the email address. I will email you.


Very Grumpy is that an offer to anyone struggling with getting DLA x


Yes of course email us at and we can email you all the work and benefit guides to help,you fill in forms etc



keep going hun

i had to go to a tribunel and wone

so keep going yes it is hard

but you will get there

soft hugs and fingers crossed


Hi please don't give up I am going through the same as yourself I am waiting for a tribunal date I was granted LRC I appealed that I was then given MRC . I asked for another appeal as they didn't take into account my walking (which is nearly non existent) I have crutches and now a wheelchair. They said they could not make a decision so it has gone to appeal. I am now on the waiting game for a date and it is so stressful my life in totally nil. I am unable to travel on public transport and it takes all my energy to get ready to go out. I wish you luck and please stick with it. These people have got to be made aware that this condition is here and it is here to stay. I have been like this for over 10 years now so there is no chance of me getting better as I get older the condition gets worse.

Like I say stick with it don't give up it will be worth it in the end.

Gentle hugs xxx



I walk with crutches.

In my second appeal I went through the DLA guides and picked the following out and answered it

2. you are virtually unable to walk - I am unable to walk without crutches


3. the ‘exertion required to walk would constitute a danger to your life or would be likely to lead to a serious deterioration in your health’- Having to use crutches to walk, my upper body, my neck, my spine, my shoulders, my elbows, my wrists, my hips, my knees and my ankles are deteriorating.

I still have to go through the whole thing again.


After reading all the posts about claims and people who are much worse than I am getting turned down, I have decided not to bother, I don't need the care component but wouldn't mind the mobility component as the little car is my life line, but seeing as the two benefit as more or less classed as one I know I won't get it and don't think I could put up with the stress of it all.


Gailmarie57 don't think like that if we all decided to give up or not try then they have won. Don't let them we suffer from a very painful condition and these people need to know that we will not give up without a fight. It made me mad the other day I was watching Jeremy Kyle ( who is a personal friend ) and there was a 17 yr old lad on who gets DLA both higher components. What does he suffer from ? you may well ask. He is a drug user and a alcoholic. Where in this life is that right. We suffer a condition that we have no control over and it isn't self inflicted. Yet he does these things by choice and gets the money from the DLA to supply his self with these things. I don't know about the rest of you but where on earth is that right. I spoke to Jezza that night and told him I thought it was disgusting what that lad gets and he agrees.

Do not give up Gail apply and let them know that we will not be beaten you never know you may get one that understands this horrible condition and get every thing you deserve.



Its is best to lodge an appeal. Visiting doctors are notorious for writing bad reports. By appealing you will get to see the submission that the DWP are reliant upon prior to attending an appeal and it will give the opportunity to argue against this.


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