I haven't written anything for a while so thought I would share an update. my daughter received her DLA. An application was submitted in December, we were turned down in February on appeal she was awarded high level care and mobility end of April.
This is a major relief for me and I believe a welcome need for her. In the midst of all this we were being evicted/notice of seeking possession...due to rent arrears caused by me not working and a shortfall in the now HB payments. My fuel bill will now be paid off in 2016, no court action. My daughter is currently under the CAMHs team, and being offered Art therapy ( I am reluctant to start her on medication at 12 ). During all this time I have sourced Homeopathy, Aromatherapy and Healing and looking at a Raw Food diet... Incidentally I have been on the raw food diet and ended up 3 days admitted to hospital with a severe allergic reaction to either nuts or seeds I used! bit of a nightmare. (After i finish the course of steroid I will be tested for allergies)..We are doing a green smoothing challenge which is fun but it also is enabling us to change our diet..we are removing eee's and glutton & fastfood.
My daughter how is she...her legs gave in last week so up and down.. she hasn't spoken to friends about her condition, maybe too soon as she herself is just getting her head around what is going on. 2hrs of school is about as much as she can manage, I think at the moment she goes to school for the company of friends..so learning not a real priority.. I've sorted a disabled library card for her which means she can now access talking books, reading is difficult. Just at the moment trying to sort out something that will make accessing the computer easier ( a talking program)
Oh her feet are always cold and don't seem to warm up at present she has chilblains..any suggestions. i used to get chilblains as a child but for a different reason...how are you keeping feet warm?