I left the site for a short while as it was all getting on top of me and I really could not keep up.
I have my daughter ill and the fact her bladder stopped working due to seizures and all her goings on has me in a constant fibro flare. All this led to me starting to smoke again(quit again 4 weeks ago and still not smoking so far). Anyway with all that going on I have not been told something can be heard going on in my right lung that was not going on before, in others words I made things a whole heap worse.
Last night she collpased on us and it took us an hour to bring her too AGAIN. By 4.30am we had her comfortably back in bed and I was up all night. I have now been awake since 9am Wednesday morning and I am in so much pain with my breathing and everything else, not helped by the fact my ribs have gone into spasm.
So now I am on Steroids and antibiotics and off to hospital Tuesday for more x-rays and more tests. So you can see why the fibro has booked in for a long stay. Lets hope the 8 Tramadol plus paracetamol help with all that.
I am still being advised I need my foot operated on urgently before I rupture anymore tendons than the two already ruptured and the achilles is at risk now too.
I am thinking of opening up a new hotel chain, Illness2go, any investors?
Not looking for sympathy, just venting.
I hope everyone is as well as can be expected and I did miss you all while I was away xxxxx
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Ozzygirl64
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Well VG I think we all need to say 'okay, take the finger tips OFF the lappy and step away'. I just needed a break so badly and I even tried to keep up with the lung side of the site, to no avail. I tried to keep upwith that because I was having some serious breathing troubles and was coughing up a lot of blood since friday morning. They will not sendme to hospital as an inpatient as they know how things are here with my daughter so I just opt for all the help they can give me by way of tests and treatment but above all good advice.
Nice to be back though, but if I disappear again it will either be me or my daughter causing trouble lol xxxxx
Vent away Ozzy, sometimes just writing it all down can make a small differences and on that you can build. Do what you have to, whatever it is, to get through all the problems you are faced with ! It sounds like you've just had too much more thatch you can cope with, I am sending gentle healing hugs your way. Foggy x
Oh lol, all these warm hugs and I am trying to deal with the menopause without any help because apparently there are too many risks for ME to actually have HRT. Back of folks or I may just melt with all the hugs....feeling the heat xxxxx
This site has been a god send to me since I joined a while back and there are some great folks here as I found out.
Like you I have adhesions all over the place and they also tell me I am not up to surgery unless urgent, like my feet, as I have seizures with....god I can never spell that word....the stuff that knocks you out. Cheers for the replu and here is it, my bed time xxxxx
You're having a bit of a rough ride at the moment, but if anyone can see it through that girl will be you!
I very much hope things will get easier for you before too long, and in the mean time, please accept a dozen or so really freezing, shivery hugs to help you cool down!
If I want freezing hugs lol I will just go and stand out in our blizaards lol. It has not stopped since before midnight last night. Everything white and cannot see the difference between rooves and skies right now. Cannot open the door as I end up looking like a snow woman so I cannot cool down either. heating on full for daughter, daughter back on biotics and is now on her 14th UTI since 21st September 2012. Yes I typed fourteenth.
time is dragging and I want my bed. the cluster headaches are raging on and when I get them outside of sleeping hours I know I am in for a rough ride. I have 1 sumatriptan left and it looking like this emergency one is going to be used.
But I will be fine, always am, always here the next day to fight on. If I vanish check out the BLF commmunity on here as I never leave both communities at the same time. xxxxx
Glad to see you back. My best wishes go to you and your family. I have been in a fibro flare for the last few weeks and have a daughter. I dread to think what its been like for you coping with your own condition as well as an ill daughter but I definitely get why you won't go into hospital and leave her.
Hope you manage to get some much needed sleep.
Vent away whenever you need to, that's why we are here.
I spent Gestation tryingngvto find u to message you was worried and ended up worried and about my own brain when i could not find u tried all kinds of variations of yr name lol its god to see you back within the love and protection of our fibro family so sorry u not well and the worry or your daughter must be horrible hope you back both felt better soon slugs from me.............a snug is a smiley hug Petal
If I vanish off here it means things have gotten too much for me. But if you search the communities you will find me on Healthunlockers BLF pages. You may have to add the community to this one, but I never leave both communtites at the same time, I swpa and change as I need a break. But if I need a break I will un add this one rather than the lung one as fibro won't kill me lol. xxxxx
Morning Ozzy pleased you have returned to the fold- so sorry time has been so grim for you and your daughter. I hope you manage to keep away from smoking you really dont need the side affects as well as everything else. SO WELL DONE GIVING UP AGAIN stick with it hun it is not the answer - though I dont know what is Good to have you back xgins
well fags felt like the answer when our daughters brain went AWOL on us again, but I never gave in so I am proud of myself for that.
I am driving hubby mad. I won't allow him to leave smoking items in the room if he is not in there too. so if he leaves the kitchen so does his smoking gear lol. And as soon as I can smell stale tobacco I have to rush into the lounge, put a clean ashtray down and run out here with the dirty one, tip it into a bowl of water to the roll up stubs break down and then wash it all away lol. The smell treally does knoc me sick right now.
And today, someone blew smoke in my face and I felt nauseous xxxxx
It is nice to know people on here care enough to wonder where members might be and if they are okay.
Some of it was down to my daughters health but mainly due to my own health. While I was struggling I could not care for her so I cut back the pc hours and concentrated on health issues. I am now dealing with my health and my daughter is back on biotics so she will be okay for a few days.
If every you are wondering where I am, message me, and if I have vanished off here you will find me in the BLF community on here. I never leave both at the same time XXXXX
gosh so meany people in the same boat as me ,only just joined all of you at the begining of the week .I have learned so much about my Fibro ,and the way it makes me feel .
I've had this disorder for 19 years and counting ,but I didn't know about this site .
I've just moved in with my partner and he is trying to sell his bungalow ,so it will mean moving again ,hopefully soon ,I feel really lucky to have this chance again ,as I lost my hubby just over 4 years ago ,I felt very allown and wounderd whether it was worth going on , so I hit rock bottom ,the only thing that was keeping me going was my 2 grown up daughters and my 6 grandchildren , but they live so far away I only get to see them 2-3 times a year .
I am one of 7 children ,but I'm the only one in my family that has fibro ,you can imagine just how hard it is to make them understand me, even my mum can't understand I've just given up trying to explain .
I really feel for you all, your pain is my pain ,I try to keep smiling ,it will help me alot knowing I have people like you to talk to ,Thank you Tina xxx
Welcome hunni to the site, and yes you can learn so much about a condition no matter how long you have had it,
As for explaining to people I use one sentence, if they do not get it, then fair enough. I feel the once sentence is enough for people to grasp it. So I say 'I have a chemical imbalance in the brain, it causes any pain I feel to be increased 10, 100, 1000s time more than a person without it this illness'. This is the reply I got for rheumy 22 years ago when diagnosed and I asked 'how do I explain it to people?'.
We have common gorund on here, we can all say 'I know how you feel' and mean it. A lot of us also have other illness, Fibro NEVER comes to the party without a plus one and fibro is ALWAYS the gate crasher too. The uninvited guest that ypically out stays his welcome at every opportunity, puts you to shame when you can't do things and has the cheek to come back again and again showing no shame for his behaviour, the fibro that is. xxxxx
thats a good way to explain fibro , I have told my new partner to read all that I find about it and it is getting through slowly.This morning he made me stay in bed to get a little mor sleep .I can say it was well needed ,thats got to be a good start .only a few 100 more people to go ,lots of gentle hugs xxxx Tina
Welcome back Ozzy I had wondered where you had gone..........I have not been on here as much and also got a lot going on with me; Including my fibro!
I hope your daughter is soon feeling a bit better, and ask your Dr if you can take Menopace it is a herbal tablet found in Boots or Holland and Barrett, I used it and it helped me.
Had hysto at 29 and they left both ovaries behind. I had begged them to remove them as I have PCOS too so had they took them away I could have gone through all this rubbish sooner lol and not had PCOS anymore.
I am being tried on Fluoxitine and he has taken the Amitrips off me. No help as you will see when I get my next topic on lol.
lets just say the hot flushes left me with the blues xxxxx
Oh it's good to hear from. Uyou aggain ozzygirl so sorry to hear you an your daughter have been so poorly I hope things dstaert getting better soon for you, you vent all ypou want to. I really do hope you and your daughter are feeling better soon sorry about the spellings.
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Good to have you back xgins
Tina xxx
The hunt for a diagnosis
what to do !!!!
Not what I was expecting
