Ok so up to now I have had several blood tests, MRI of lower back, Xray of left hip, and bone scan of whole body and it has all come back perfectly clear, so they are saying that I am perfectly healthy and there is not a thing wrong with me. Well thats funny because I spend everyday struggling with what I can and can't do, and sometimes just sit and cry as I feel there is nothing else I can do.
So I get a phone call off my doctors saying they want me to come in for an appointment and they say it is regarding my sick notes (I am in the process of claiming ESA had my medical and waiting on the results, but if my own doctor says I am perfectly healthy then I am nearly 100% sure I am not going to get it) anyway my doc has refused to give my any more notes as my results are all clear it means I am healthy.
So now I feel at a total loss I think I am going to just wash my hands of the current doctors surgery I don't think I can face going in to sit there and for her to tell me there is nothing wrong with me and that I just need to deal with the pain and get a job. The last time I went in to see her it was more like a job interview her asking what qualifications I had and telling me what kind of jobs I can apply for, I was so upset after the last visit that I have not been to see her again and so when I got the phone call saying I need to go and see her about my sick notes I decided that I can't take sitting there and her talking to me like I am a liar and patronising me as she did last time.
So now I am going to just draw a line under that and change doctors, I don't feel like I need to hear what she has to say any more as I already know she thinks I am making it up. So I am going to start researching doctors in my area and try and find one who may be understanding of what I am going through as I don't want to pick just anyone and then be spoken to as I was with my last doctor. Today I am also going to sit and start writing all my symptoms and when they are worse how they are affected by activity etc, and then compare this to the list of fibromyalgia symptoms, then when I find a good doctor I want to have a proper consultation and go through everything from day one, as I have been like this for 12months now.
Can doctors diagnose Fibro or does it have to be a rheumatologist? as I was told I would go back and see the rheumatologist after I had my last bone scan, but I just had a letter through saying all my results were clear. Yet when I last saw her face to face she said if nothing shows on the bone scan that the most likely diagnosis would be fibromyalgia. So I am a bit confused as to why I haven't been called in to see her again. I feel overwhelmed by it to be honest as I don't feel there is a way to get across how much pain I am in on a daily basis.
Sorry for rambling on, I just feel like I am at a total loss as to what to do next, although I have my plan of action in changing doctors, I am scared about having to start to whole process again with someone who might just tell me it is all in my head again. Any advice would be greatly appreciated!