NUMBNESS IN LIMBS

NUMBNESS IN LIMBS

HI SOMETIME MY HANDS GO NUMB AND GET JERKY WHEN I HOLD THINGS AND SOMETIME IT ALSO AFFECTS MY HEELS DOES ANYONE ELSE HAVE THIS PROBLEM,I GET TIRED THROUGH LACK OF SLEEP AND PAIN BUT I AM LUCKY TO HAVE HAD A GREAT DOCTOR AND NEUROLOGIST WHO TOLD ME I HAVE FIBRO AND HAVE GIVEN ME GREAT SUPPORT AND GOOD FRIENDS HELP AS IT CAN BE A LONLEY THING WHEN NOEONE BELEIVES YOU AS FIRST HAPPENED TO ME SO TO ALL THOSE PEOPLE WHO THINK YOUR EITHER PUTTING IT ON OR ATTENTION SEEKING THEY WANT TO HAVE FIBRO TO KNOW WHAT ITS LIKE A FEW MONTHS OF IT AND THEY WOULD REGRET THE THINGS THEY SAID OR THOUGHT AND I KNOW BECAUSE AT FIRST NO-ONE BELIEVED ME AND THAT INCLUDED SOME OF MY OWN FAMILY AND YOU WILL FIND OUT WHO YOUR REAL FRIENDS ARE,IT WASNT TILL I WAS IN HOSPITAL THAT THEY SAID SORRY AND YES I HAVE FORGIVEN THEM ,BUT I WONT FORGET IT,HEY HARK AT ME WINGING ,BUT IF YOU ARE LIKE ME DONT LET IT GET YOU DOWN YOU NOT ALONE .HUGS AND KISSES AND HOPE YOU GET A GOOD NIGHTS SLEEP

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  • Morning Poshlady, numbness I find is reoccurrent particularly in my hands and legs/feet. Some times I cannot feel them and cannot feel hot/cold what ever. It usually goes away after a bit and the comes bCL AGAIN PRETTY INTERMITENT. You sound as if you have a good team of helpful Docs which is marvelous:) any time you need a winge and it is true we do some times need to let off steam come on line and have a chat it really helps to know there are others who do understand what you are going through! Chin up :) xgins

  • Hi I to have pins an needles an numbness in hands feet legs like lead shaking mussel spasms,chronic pain fatigue ,I also get ibs with mine no sleep had a hour an seven mins sleep now in 4 days an yer right people dont believe you I have no so called m8s visit all to busy an they seam to get pissed off I don't visit them!!!I'm very ill no money an a family to support so I no now apart from my wife an kids no body else is coming to see us,my wife is the best person in the world sticks by me throughout all this diamond she is but friends I haven't seen any now for 3 years,

  • Hi Mick. Sorry to hear about your friends. It can be very lonely at times. I have a new GP who is trying to do something about my pain relief. My wife has many illness issues herself so I try not to bother her with mine. I am a long way from the rest of my family so rarely get any visitors myself. I know how you feel. This horrible illness affects mainly women. I only know of one other man with this complaint so it is a relief to find there are other men out there. Sounds from your name that you are a fellow biker. I have had to resort to a trike as I can no longer hold a biker up. My local trike club is a great outlet for me. many of them have a variety of health issue so I dont feel out of place. I try to get out and do something whenever my body lets me. I hate being trapped in the house. Its so easy to do nothing and I am also guilty of that. Your symptoms sound very familiar. I hope you find some worthwhile new friends and support soon. Take care Mick and ride safe.

  • reading this ...is just.how i.am...fingers..heels..knees..toes ...cheeks and facial numbness ..the dripping tap at back.of my head.

    at least on here we can put our symptoms and other people can relate to our suffering...hope everyone has a better week . x

  • i also have numbness in face , head ,neck and my ears are being effected right ear has lost 25% of hearing .. docs have been sending me for more tests mri and yet more x rays ....but feel a bit more sane that some one else suffers these ...they dont seem to understand some of the symptoms ...x

  • Hia Posh lady you have my attitude & i think of others as having to go through hell and having questions or vanishing acts ppl should use their iniative and visit friends without having to ask!!

    Yes i suffer a lot both hands and feet and poir circulation.

    Legs ohh it is on/off .

    Soory you suffering i dare not put any more as i write such long ones xx

    Hugs

    Can inbox anytime xx

  • totally agree poshlady .... even some doctors generally older ones think its a myth ..have a good day x

  • Hi,

    i cant recommend anything for the numbness in your hands, but the heels i may be able to help. a couple of years ago i developed plantar fasciitis (less scary than in sounds). basically it is when the muscles from the top of your heel to your toes under the foot gets over stretched. i had both really bad pain and numbness, obviously at different times, over a few months and finally went to see my podiatrist at work. she suggested getting some inserts for my shoes and they have really worked! the type i got were the orthaheel regular inserts from scholl. they are quite pricey at a little over £20 in boots, but if you do have plantar fasciitis they are totally worth it! i would however recommend that for the first few days/weeks you ease yourself onto them slowly building up from an hour to a whole day. they are really painful at first as they try to change your foot position when you walk, so trust me dont wear them for a whole day until you have built up to it. good luck. if you decide to try them, i hope they work as well for you as they did for me.

    x

  • My heels are numb, and I get bouts of pins & needles in my finger tips, which is really unpleasant. I also have really violent jolts through my arms (more likely to happen when I'm tired. If I was holding a drink, I would throw it up in the air (luckily that hasn't happened so far !!) I get restless legs / limbs at night, which drives me mad....all this and the typical Fibro pain, tiredness + Bladder problems and Vulvodynia (nightmare) etc etc etc...the list goes on. Living with a chronic pain condition is not easy. Thank God, we have support groups. Love to all x

  • hi posh,you are not alone i get the same problems,my hands now are very painful i'm struggling.I also get very painful thighs ,in my muscles all over including joints,oh hang on my arm has just decided to give me a load of pain,great isn't it.Everyone talks about the same pain.It's nice to have such painful friends,loads of aches and pains,jacksiex

  • Hi Posh Lady, I am new to this site, this is my first interaction on here. I sympathise with you so much, I too get numbness in my arms and hands, and very jerky, sometimes when drinking a cuppa I jerk and off goes my cuppa in another direction :) I also get bad vision and eye twitches. There are so many symptoms we have, and it is a lonely illness, I am learning to hard to ignore people that dont understand this illness, it only drains us of what little energy we have. During the last 4 years that I have been poorly, I have really found out who my real friends are. I do hope you are having a pain free day today. Take Care. x

  • Oh all the time. I have now got to the point where if I sit down within two minutes my legs and feet have gone to sleep, after five minutes the arms and hands have joined the slumber party. It does happen when I am standing but more when I sit and no one seems to know why. I am in a viscious circle of standing up every five minutes, waiting for evrything to return to noormal, about 7 minutes and then sitting down again for five minutes. So so annoying. And I always say only a fellow sufferer would understand what we go through xxxxx

  • Yeh I know what you mean

    I get pins& needles first, till it's so bad I cry and then it's like my nerve endings shout ENOUGH, because the numbness hits. When the numbness eases of the pins&needles return with a vengeance.

    Vicious circle, was taking Gabapentin but reacted badly, so according to my GP I just have to live with it. Unless anyone has any other ideas

    <<<soft hug>>>

  • Numbness, violent jerks, pins and needles, electric thrumming, throbbing,weakness in arms & legs extremely painful heels, knees which make loud embarrassing creaks, pain on walking, ibs, gerds, anxiety, sleep problems, noise, smell and food sensitivities..... The list is endless. Think I need rubbed out and drawn again lol. Hope everyone is keeping as well as possible and trying hard to maintain a sense of humour :-)) remember its not all bad - were lucky were human cuz if we'd been born horses, with our long list of ailments we'd all be heading for the knackers yard!! Lol

    Dixie x

  • Hi Dixie,

    I've giving up with my list, never ending and just makes me more depressed. But if i did write them all down would be your list and a lot more. Have had Fibro for 26+ years so have experienced just about everything on the symptom list.

    At least those diagnosed within the last few years will have had more access to treatments than I did (thank god). They know so much more now.

    Glad I'm not a horse of i would have been sent to the knackers yard a lond time ago :-)

    Yvonne xxxx

  • Hi Hun, yep me too has numbness in hands and pins and needles in legs, I get this when either lying down or on toilet hence need electric toilet riser to get off lol.

    Cold hands which I have been told is Reynolds syndrome which can be part of fibro condition and also every morning I feel bloated with wind .

  • hi all - yep, am one of the numbness/pins&needles/jerking/thrumming/coldness brigade in my arms. my left one is worse than my right one which has led to my GP thinking it's issues in my neck/spine area which hurts alot too and from which I get a lot of headaches. she's asking my rheumatologist to send me for an MRI to check things out. otherwise, it's a case of live with it, cope with it as best I can. I often get knife nicks on my left hand which surprise me cos I can't feel them until a certain point in the heat/cold cycle or the blood becomes obvious!

    I empathise with you all. I've heard that horse chestnut gel could help with lower leg pain issues, but haven't tried it myself yet. as with anything new, proceed with caution.

    Loads of symptoms described in this thread - are they all attributable to fibro? or just sheer bad luck lol? knacker's yard here I come!

  • hi all im also part of the numbness party especially in the legs and the pain in the thighs and arms hands and feet along with being cold also so feel for u all

    gentle hugs

  • Any numbness, tingling or jerky movements of limbs should be explained to your GP's to rule out other conditions, so please have a word with your doctors about this. Whilst these symptoms can relate to Fibro, it's always best to check.

  • Hello Poshlady6, I also suffer with numbness i've only had that for a year though. I've had Fibro though for 17yrs. I also go numb in my back, that feels really odd. I have pins & needles in my hands/fingers all the time. I oftern drop thing, & my fingers tend to move without me expending them to, it's annoying but hay were talking about Fibro here it likes to keep you on your toes! I hope you feel better, remember were all in the same boat. Night Flickles

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