Finally diagnosed over a year ago after 4yrs of hell. Meds don't seem to work so any help on how to cope would be appreciated.

[mummybirdy]

Its my legs and feet that are really bad at the moment. I can't walk without being in severe pain and my legs/feet swelling up even around the home. Recent blood tests were ok so no answers there. Any suggestions. I'm already taking pregabalin, pramipexole for irritable legs and painkillers. Help seems harsh but I don't know what to do with myself!!

[rosehip]

You need to go back to your gp and tell him how you feel and dont hold back . My meds dont work for me so i am off to docs in morning xx

[1963baby]

you want to try getting referred to a fibro group if they do them in your area they give you loads of information for you to manage your condition and you also meet others with the same condition and find your not alone

[soulsusie]

Depending on what drugs you are on and how long you have been on them seems to be the first question I would ask, when are you due back to see your GP. the best thing to do is keep a list of things that are bothering you and don't forget to take it when you next go to your GP's.

Soft Hugs

Sue x x x

[AzSun]

Hello,

I can relate to what you're going through. I've been searching for answers and a sane physician for the last 6 years. It's been a nightmare!! However, I was referred to a wonderful physician by a coworker. The physician is a pain specialist and treats many types of pain. If you could find a decent and reputable pain clinic, they may be able to offer some alternatives . Don't give up. Hang in there.

Patrick

[mummybirdy]

Many thanks for you replies its reassuring to know I'm not alone with what I think is a soul destroying disease. I'm back to see my GP in 2 wks. I always plan to make a list but never do its the way forward I think, I always forget to mention things. I've never been one to go to the Doctors so I need to overcome the guilt trip when I go too.

Many thanks again

Kim