Suffering in the sun?!?

[fairycazzie]

I am truuue sun queen but nowt but sufferd xx everyday different and had lots red blotches too felt so out of sorts amd just unwell xxxx

[Hidden]

Me too.

Yesterday i went town, early and enjoyed it as wasnt busy aand not too hot, then i had to go again as I made a mistake on something and when i got home i was violently ill. Too Much Sun?????

Today i had to go town again but had a lift so was quicker bt sweating and lightheaded.

Its affecting my sleep again as even with the fan I am too hot.

Seems no weather helps me with Mr Fibro in my life

hope things get better for you. xx

[fairycazzie in reply to Hidden]

Hi sorry late reply! I cannot use laptop for email, so phone and been soo busy! Sorry weather not good for you either its awful wen suffer via nervous system as mines central. Will have tp reply later as having probs, hence lack of me been on at moment its annoying am missing all you guys xxxxxxxxxx

[bruiser]

im not sure what it is but i love the sun and when i was abroad the other week sat in it for hours (not in one long stint) and loved it went in swimming loved it but this weather is making me sweat buckets and i dont usually sweat, and a bit light headed, but its a lot better than if it was cold,

Look even the weather has it in for us fibromites lol

take care x

[thenewmrsmills]

I slept on and off because of the heat last night. I don't mind a warm day but don't like it when it's too warm to sleep.

I'm not a fan of the sun, I burn, blister and then go white and that's using factor 50 sun cream! I'm not a fan! So I tend to hide, although the warm weather helps loads with my arthritis.

Hope you are all feeling better soon

xxx

[Hidden]

me too ... i not really great and the heat but also i cant have a bath to ease my pain ...gentle dyslexic hugs

[Hidden]

The last few days of sunshine have really affected me and I have been sweating, feeling dizzy, but worse of all my energy levels have dropped considerably and I feel like I have sleeping sickness. (I wonder if it is the Fibro or CFS

[sloth]

I have seen sweating lots and feeling dizzy so I've upped my water intake and drink lots of fluids, which helped the dizziness.

I also suffer from S.A.D and this weather is the only time my body feels, well, 'normal'. The heat and and sun rays on my body are so soothing. I'm in hardly any pain at all, its so lovely! I plan on bathing in the garden and making the most of it before I go back to being in complete agony.

[irishlady76]

I was just reading tis and i was just thinking how badly the sun and hot weather is affecting me I have been sweating and feeling faint and I have been drinking plenty of water my ankles are swollen I feel like a wreck and probably look like one this is the 1st time I have felt this way but have been suffereing terrible pain and headaches have severe pain from arthiritis in my neck and arms and a trapped nerve in my neck/spine area can hardly lift anything and my legs are painful I just hope and pray someone finds a remedy for this awful illness it becomes very tiring I have had it for 20 years at least its recognised now soft hugs to you all

[fairycazzie]

Hi irish lady, sorry you having a rough time truly!, it is not nice especialy when not so lOng back i had so much fun in the sun

I suffer with neck too compressed nerves central system, things pass arpund from one area to another and omg the head in the sun with facial discomfort and shooting pains etc. on steroids as started with sinus in feb, but last year had bad compression heads. Wearing glasses is so much pressure and i have long hair too so cannot tie up in a pony either. Its like having a flu that aches all iver and rough in the head, ohhh to feel somewhat normal wpuld be nice. I do hope you can find something that suits. They wont updose my lyrica until result of brain scan. I persited with meds for wks and admit a life saver for me as tried many other things. But they wear off within hours and short at that.

What a life we live like this and i get certain ppl i know saying ohh i cope without meds etc. i have had trapped nerves and been hospital with it on entinox so annoys me as its debilitating. Only i have even been told by hospital too i have a high tolerence but i smile and do not carry on abput anything, i just plod on welllll what am we supposed to do xxxxx lumps on my knuckles are appearing too and getting bigger and my neck crunches with movement like salt and pepper grinders eeek sounds crap ... Bless you try keep occupied and excercise . I have trouble also moving and lifting things, taking washing out of machine aches on arms so much xxx

[LindseyMid]

If you're getting a rash that isn't sunburn, especially if it is primarily on your face, see your GP. Photosensitivity (when you're practically allergic to UV light) can be a sign of autoimmune conditions like Lupus.

[Metalmamma in reply to LindseyMid]

I often feel that I was misdiagnosed and do in fact have lupus. It was flagged years ago but then the rash was put down to rosacea. (Had 11 symptoms a rash and positive ANA test).

But when out in the sun I swell up all my joints stiffen and I just feel like I've been beaten up. Could be the fibro but could be something else. Will be seeing a new gp after the lockdown.

[Jane64]

I love the sun, and try to get out in it as much as possible, BUT...I do feel a lot more pain in hot weather.

I get pain from cold weather, different pain from wet weather, but in hot weather I get all sorts of pain everywhere!!

[fairycazzie in reply to Jane64]

Yeah it is different pains in different weather. Wet more arthritis xx hope you have some relief soon xx