Hi, my name is Jane, I was diagnosed with fibromyalga 15yr ago , I have no life through I am in constant pain and I have to use a walking stick, I can't straighten up or anything , its took over my life and I feel an embarresment to my family this is why I won't go out, I also have osteo artheritus in my spine and knock. and I've just come out of hospital other 90℅ sure I have COPD I have to go for the tests in June, its so hard for people with fibromyalga because it still hasn't been noticed and I don't know why there are so many people and family's suffer from it because it does affect your family swell I've cried so many times with the pain and often thought why me , but you can get held and you can claim PIP so try for it every body who is suffering from this horrible problem it will make life a bit more
bearable sport it won't take away the pain, my heart goes out to all who are suffering with fibromyalga , good luck everybody
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Breathlessjane
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It certainly does affect the brain. It can take ages to write a couple of sentences.
Like you I have OA in my spine, top to bottom in my case. Every joint is affected to some degree. There are times I have problems standing upright, but I can still do it 50% of the time. I have 3 pairs of badly squashed nerve roots that cause horrendous nerve pain. Plus the delights that fibro causes.
This is a great forum. We all suffer from Fibro and I have found the support from fellow members to be so uplifting. There is always someone who can answer a question usually because they have been there. Don't be a stranger 🐸
So sorry to read about your pain - but please don't put yourself down - try and be kind to yourself - try and go out and do things you love - even if its just sitting in your garden , a park or a pretty café - with a pot of tea and some cake😊. -simple things sometimes help I listen to happy music or read or draw/paint when on a pain day - and try and pull my mood up - you are a good person -its the fibromyalgia- that's the bad one - and we all know the good guys always win! (well in films anyway) have a good day we are in this together you do have support ☺☺☺☺☺
Hello Jane and welcome, you have found the most caring and supportive group of people, keep looking in on us it helps to not feel so isolated. Never worry about spelling, my spellchecker works overtime. Lou xxx
you have had it a long time and it is such a debiltating illness, the invisibility of it is the curse if feel, i too cannot straighten up and have a large curvature on my neck so i am looking at the floor most of the time which is dangerous and i fall over a lot probably due to balance issues. try and keep your spirits up thats all we can really do, they probably won't find a cure in my lifetime but i suppose there is hope for the next generation. keep as well as you can my friend, i find writing it down therapautic no-one else need read it, its there for you. we are all here for you, gentle hugs xx
Hi
I'm very sorry to hear of your health problems.
It is hard to do things, but I am Very Sure that You Do Not embarrass your family when you go out! Please don't think this and try to enjoy the odd outing while you can. I am sure that nobody worth a pinch of salt would think any the worse of you for being ill and needing a stick! I think these feelings are really in our heads because we don't want to use them and feel self conscious.
Thank you everyone for all the nice comments and support, because I've had it so long if anyone needs to talk to me feel fee to email me and if I can even give you the smallest of advice it may help you x x
I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site FMA UK which hosts loads of useful Fibro information:
I am so sincerely sorry to read of how you have suffered and struggled with your Fibro and other illnesses, and I want to genuinely wish you all the best of luck, and please take care of yourself.
Thank you so much, it just takes your life away from you, I have had it since I was 40, but thank you your thoughts and kindness mean a lot to me , it's nice to talk to people who understand what people with fibromyalga are goin through just because others can't see it doesn't mean it's not there kind regards jane
I can relate.. Im 59 and my body has fallen apart... I went from independent to I cant do that anymore... It's very depressing.. I too have no life... I have gotten out 2x last month.. Friends were in shock to see me... And still walking with a cane.. Over a yr now.. So many things i have wrong with me.. I still cant believe... And i am having the worse time getting meds filled... I refuse pain killers.. The insurance and the pharmacy are nuts... My new doc is great... The old doc of 22 yrs was no help... Fibro is a very tuff thang to deal with... The new doc put me on Amitripiline .. And its cover more aliments than cymbalta... Hope your having a good day.. I sure understand.. I had a bad problem wed.. I walked outside and my legs went r numb.. Couldn't move.. They were like rubber or jelly... Lasted afew an i made it to car bumper... Stood awhile .. Was weak alday... I know i have other issues besides fibromynalgia.. But its scarey... Good luck
I am so genuinely sorry to read that you are also suffering and struggling and I want to sincerely wish you all the best of luck, and please take care of yourself.
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Really suffering at the mo
nightmare in A&E
People with opinions about how I should live my life
First esa assessment next week doo anxioue
Fed up with ignorance & lack of fibro knowledge! Ggrrrrr
