when seeing the Neurologist i was kind of upset but yet i should feel relieved...not!! i know my body better than anyone and teh ONLY reason i have not been diagnosed with MS is because i do not have a 'pattern'!! hang on from 2yrs ago going back and forth to doctors and things moving round my body and things lasting months, wks or days and now to a stage each day is different and things i had last year are repeating themselves this year and the flare ups are to a state i cannot do anything so disabling!! Friday i ran around in car wiht work but i dont even know how i got out of bed and started the day! i am so weak on my left side especially when doing chores it makes it worse? anyone else have these problems? and it will have its days where i wobble so much i cannot walk without using something. So now waiting a Brain scan...NOBODY wants a disease or bad diagnosis i want to recover!! but i do not think after 2yrs of hell on and off i will .there is past history too from over 20yrs which after browsing sites this year all end up with MS but yet fibromyalgia is also on the cards since they are similar. I have some hyperflexia or something like that i am getting days i am not very mobile. but days when i can perfectly get about just doing the shops etc is so hard!! i constantly need to hold myself up does this all make sense. I kinda want the brain scan to show something to show that its there.. he could see that after asking me to stroke one leg on the other was nearly nil! and when got up my left leg was wobbling badly my brain is sending all the wrong signals and i cannot be operated on as my discs are too close to the vertabrae hence why i have disc pressing on spinal cord and compression to nerves in both sides..he said it would be 90% risk of paralys...why can they not just move it so all this vanishes?? would i be mad to demand surgery to do something and thake that 10% risk? i know ppl have surgery why fobbing me off .. thats why i love this site because i suffer so much and so tender to touch every single part of me! i get a horrid band around my neck and have swallowing problmes too ..sorry everyone i just so eaten up by it all day in day out it takes over your life all this nerve stuff and mobility xxxx
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