Hia, I am still running my work due to my problems and did not shut down because i still do not know whats happening (hate this taking so long) it is eating me up badly!! I cannot do the physical side of my job and because being self-employed i have had to pay others to help here and there and had to pay out more for insurance too cos i never know what my days are going to be like! i chauffer round my girls and check work and organise and deal with customers every day but i am doing about average 120 miles a day and my left side is worst and of course those really bad days where it is very difficult an automatic would help and i cannot walk far more than 15 mins as the tight band feeling i have i cant stand long and i just get so fed up and have to come home!! i have a stick for the longer walks but not sure i too embarrased to use it cos i dont exactly have a true diagnosis as yet even tho docs are along same lines as me with fm but i have to wait on seeing Neurologist on 12th of this Month April.. I also have and had all symptoms of MS too but they wont confirm until seen Neurologist its been a nightmare for 2yrs and fianancial struggle too, but not claimed any benefits just kept the work going best i can incase there is a cure but i STRONGLY doubt this daily weakness, strenght, tiredness, band feeling and well neck aswell as one side spasticity sometimes worse than others.. HELLLLP sorry i just think of too many htings at once at go on and on!! some days i cant even rite and on top i think i have arthritis too as my bones are starting to mishape slightly xxxx
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