FED UP

IVE ALWAYS BEEN A VERY STRONG PERSON, DID EVERYTHING FOR EVERYONE NOT NOW.iM A MUM OF 5 RANGING FROM 27 13, AND MY LIFES A MESS WITH THIS ILLNESS, IVE BEEN SUFFERING FOR 3 YEARS WITH CHRONIC PAIN EXHAUSTION PHOTOPHOBIA INTENCE ITCHING ALL THE FUN OF THE FAIR IVE HAD 3 MRI ALL CLEAR, I NOW HAVE TO START ALL OVER AGAIN AS MY GP DIDNT SUPPORT ME AT ALL. IVE SEEN A NEW PRACTISE AND THEY ARE AMAZING HOW MUCH IVE BEEN NEGLECTED. AT THE END OF LAST YEAR OT ASIGNED ME A SOCIAL WORKER AS MY MOBILITY HAS GONE AND I NEED HELP WITH CARE. I DID APPLY FOR DLA 13MONTHS AGO WENT TO TRIBUNAL LAST WEEK AND GOT SHOT DOWN THEY SAID I DIDNT SEEM ILL AT ALL, MY HUBBYS HAD A BREAK DOWN ,AND MY YOUNGEST DAUGHTERS HEADING FOR ONE ALSO ALL DUE TO THIS ILLNESS, I WAS A COMMUNITY SUPPORT WORKER USED TO WORKING LONG HRS NOW I SIT HERE DAY BORED OUT OF MY SKULL CRYING WITH PAIN

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  • Hello Lally,

    Its me lol, Glad you joined this site.

    hope it helps hun.

    kel xxx

  • thanks Kel, feeling pretty rotten today

  • hi there peeps, i am new on here i have M.E /fibro, plus many other health things going on....

    i am now getting dla after my third attempt, i have an o/t that helps me with all my needs....

    had to hace blood test done to see if i have lupus as got a red rash across my nose and cheeks...

    am feeling quite ill to day , but hey ho i will try to keep smiling soft hugs with wool xx

  • I think the trial,[sorry dla tribunal] as completly wiped me out, it was horrendous they just didnt listen to a thing I said didnt look at ot report or social services assessment. just said I couldnt be that bad as my gp hadnt prescribed the wrong meds, , Pammy I know how you feel its hrd to keep smiling,Im turning into a right moody cow

  • lally, can I ask if you had any legal support at your tribunal ?

    I had to attend a tribunal a few years ago and sought help from a local law centre . I have to say they were fantastic and my SDA was reinstated immediately.

    If I ever have to attend another, which is probable the way the government are changing things and moving the goal posts so much , I'd immediately try and seek some support rather than try to do it alone. It really helps to have someone who knows the law there with you.

    I'd also say you should re-apply when you can , I was turned down for DLA the first time, so waited and then reapplied and was given it . never give up !

    I know exactly how you feel, I was always the strong one in my family , everybody leaned on me and I find it very difficult now to ask people to help me . I tend to try and struggle on alone and I hate being a burden to anyone . This illness is impossible to cope with alone though so take whatever help is available and if none is , then ask.

    Hugs

    Helen

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