So fed up and down what else !!!! - Fibromyalgia Acti...

Fibromyalgia Action UK
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So fed up and down what else !!!!


Hi all hope everyone has had a good night, I wish I could say I had well for the past 4/5wks it's being cap for me so much pain & discomfort all over not knowing what to do with myself that's why I've not being on for a bit, all I have done is cry with pain not eaten or hardly drank so depressed all I keep thinking is why me what did I ever do to diserve this thing and to top it off being back to hospital and they have told me nw I also have Osteoarthritis in my knees and hips as if they didn't hurt enough not forgetting my wrist as well. I have had to see a Gastro doctor as really bad stomach pain and cramps nw am having to have 2 cameras all because I have IBS and I have had H pylori which can cause stomach cancer and other problems not looking forward to all that. I would love to be able to have more than 3 hrs sleep on a night but nothing working for me, my husband has looked into pip for me as I have little or no concentration at all these days my head just feels like it's not mine anymore but they say you have to diagnosed for 3 months with Fibro but I think now after all the times I've being to my Doctors and have looked at me stupid I think I've had it for years but no one has picked up on it or they just didn't know I don't know what to do. I struggle to walk so much pain I shuffle along I now walk with limp because the pain in my knees and hip constant I can not bend over to pick anything up because of my back constant headache and trying to get into bed well that's a laugh in its self as my husband has to help me even more as it's so pain full. There is one good news the council gave me Priority on housing list but nw have to wait for a suitable property to come along now.

Had anyone got ideas and do you think I could get pip always run down so depressed cheers guy's x

10 Replies


Well worth applying for PIP, if you don't ask you won't get as my Gran would say.

Going through depression myself at the moment, so not great on the advice, but have asked for help, and am beginning to be hopeful so lets keep,going together. X

smurf45 in reply to Betty67

Cheers hun I just feel so useless can't do anything that don't cause me more pain & discomfort and the one thing depression us so hard to get out of but have to just keep going I have an appointment today to see Mental health team because I get that low I want to harm myself so they are trying to help me now. And I will get my husband to ask for the paper work or pip true don't ask don't get.

Thanks sending Hugs hope you get better soon we do it together xx

Betty67 in reply to smurf45

I had an assessment last week, also seeing GP. GP has ordered blood tests, I had an operation a few months ago and she thinks I probably have not recovered from that . Be kind to yourself and your husband.

Hi I really feel for you and your husband must be so worried too - please hunt out as much help as possible - if your doctor isn't listening try and change - talk to a close friend or family member - don't just be alone - and over think - its always worse sitting alone - please find something to do today - something you can manage that takes your mind off - this awful illness x

I'm so very sorry you are going through this, please try to stay strong.

I can't really advise you on depression, I'm going through something bad myself.

Best wishes to you though.

Hi smurf45

You may find that you will get more replies to your post if you lock it.

At preset anyone world wide could stumble across your post.

Lu x

smurf45 in reply to BlueMermaid3

How do I lock it please

Thank you

BlueMermaid3 in reply to smurf45

There are simple steps on how to lock posts on the right of your screen under Pinned Posts in blue.

If you need any help give me a shout x

Just to say that with your osteo being so bad and affecting your life as I badly that might be enough to help you get PIP do get yourself a form so you can see the descriptorswhich. These will tell you where you can score points on alot of benefit sites which hopefully will help you decide whether to apply now or wait a it for the 3 months. Good luck.x

Hi smurf45

I am so genuinely sorry to read of how you are struggling and suffering and I sincerely hope that you can find some resolution to these issues. I would definitely apply for PIP as you so not know until you try?

I think that is wonderful news however about the council, and I genuinely hope that you do not have to wait too long for a new home my friend. I want to sincerely wish you all the best of luck and please take care of yourself.

All my hopes and dreams for you

Ken x

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