So fed up

Morning all. Ive had fibro ME osteoarthritis etc for 7ys now and iam really on rock bottom at the moment. I am tired all the time and sleep alot. Pain every day and i just feel so low. Sick of going to doctors. My daughter just lives 2 mins away from me so ud think id never be stuck ha, i help her all the time but wen i need her she never answers the fone. As for friend well i never see them now. Ive had a good cry this morning. Just fed up of this and iam sure iam getting worse. Sorry for the rant. Gentle hugs all xxx

13 Replies

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  • Morning paula1967 please don't appologies angel. There isn't a person here that hasn't felt the same as you at some stage.

    Fibro is such a lonely illness it strips us of everything including friends and family.

    I have lost both.

    Is your doc trying to sort the right pain meds for you?

    Do you have anyone else in your life that can support you?

    You have a new family now Paula and we are here 24/7. So come and chat or rant and rave if you need to, as many times as you need to we are here to support you.

    My family here were there for me earlier this year when my own were nowhere to be seen.

    Good luck and take care.

    Angie xx

  • Ty Angie. It really winds me up as i was always doing things for other people. No matter wot it was id help. Not one of them in 7 ys have said do u need anything doing or need owt at the shop. Really gets to me xx

  • Many of us would identify with your sentiments here, it's a story often told. Mostly it's the same for me though a long time friend who has visited sporadically recently had an operation on her hand :-( She could do very little and when we spoke on the phone she apologised for not having visited but couldn't drive, in the home and personally her husband had to do most things for her. She offered, for the first time, that if I needed anything to let her know :-) Shame she didn't realise years ago, it was obvious then that she didn't understand :-(

  • Know what you mean I haven't heard from a supposedly good friend for about 4 weeks and have bad illness in my family and my stuff. Pm me anytime.

  • I really do understand. I was the same. I've just found out who my friends are and it does not include blood relatives. Hurtful but true. You have to pick yourself up and carry on. You will find that your better off without them.

    You are the priority now.

    Take care angel

    Angie xx

  • That's so nice.

  • Hi paula1967

    I am so sorry to hear you are feeling so low and alone.

    I know you are fed up with going to the doctors but I really suggest you go and they may start you on something else or tweak what you are already taking.

    Don't worry about letting off steam here, this is a safe place to do it and many of us have felt the same as you at some time or other.

    Sadly, family and friends do let us down and sometimes a relationship can feel very one sided. We feel they are being thoughtless and unkind, but it could be that they have different priorities and visiting or helping you comes down further on the list. I don't think they are being deliberately so, just it probably doesn't occur to them.

    This is a bad time of year for sufferers of chronic conditions, cold, miserable weather, no-one wants to chat, Spring seems a long way away, all the bills coming in and much more.

    Many of us suffer SAD syndrome, do you think this could apply to you?

    You are welcome to come and join the chat of our fibro family any time.

    Hope you feel better soon.

    Kay

  • Yes i think i suffer from SAD xxx

  • Sorry. I have all round depression. What about getting a light lamp for SAD?!

  • Hello my friend

    I think January is the worst time for Fibro sufferers especially when you suffer with SAD.

    It is definitely getting lighter in the evenings but the mornings are still very dark.

    I have Fibro, ME, osteoarthritis SAD depression etc etc.

    I had a pretty bad time of it in December and got very low.

    Friends do become very scarce when you need help don't they? Like you I've always tried my best to help others but no one is around when I need some help.

    At least we have Spring to look forward to and you can always come here to your online family for help and support.

    Are you able to get out for a very short walk every day? Even if it's just round the block.

    It's surprising how much this can help even though it can take a lot of motivation to get out.

    I hope you are feeling slightly better now.

    Lu xx

  • Hi paula1967

    I really am so genuinely sorry to read this my friend and I was wondering if you have ever considered approaching your local authority for an assessment to ascertain a small care package to help with daily chores? it may be worth doing this if you need some regular help?

    I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you

    Ken

  • Hi Paula1967

    I am also feeling very low at the moment and I am sure this time of year doesn't help at all. I don't think we should be too hard on family and friends though. I bet that if we were in plaster casts or had some sort of visible disability things would be different. Being invisible is just another nasty weapon that Fibro has to use against us, no-one can see our pain and therefore do not probably think we need any help.

    I think it is good advice to see your doctor again. My doctor has recently put me on Gabapentin which is a drug used for epilepsy but as it works on the nerves it is also used to treat Fibro. If this isn't something you have already tried then perhaps this is something you could discuss with your doctor.

    I do hope that things get better for you soon.

    Warm wishes

    Angie P

  • Hi Pinnella I am so genuinely sorry to read that you are feeling down at the moment and I wanted to sincerely wish you all the best of luck my friend.

    All my hopes and dreams for you

    Ken

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