I'm sorry for your situation , although my combination of health conditions is different , my history mirrors yours in many ways.I have Chronic Dysautonomia, AFib and POTs with Vasospasms, my daughter was recently diagnosed with Vasospastic Angina and POTs after an INOCA.
One thing I wanted to check with you is , have you looked at , or had , vitamin and mineral tests since the new symptoms began. either from the Endocrinologist or your GP.
The tests include Vitamin B12 , Folate , Ferritin/ Iron , Liver Function, Kidney Function ( Electrolytes) , Full Blood Count, Vitamin D.
If you have had these tested in the last three months ask for a copy from the doctor whom did them. If they've taken them more often ( Endo should usually test some of them with your thyroid panel) ask for the last three sets of these test results. Your Endos Secretary is the one to contact as they can email test results to you, if you don't have the NHS App at your GP surgery you can request test results with a form at reception, they should be able to print them off within a day. If you are being checked for Adrenal Insufficiency the Department whom is assessing you should have done these tests already so results should be somewhere on the hospital records.
If these tests haven't been done you can call the GP and politely but firmly request them . If they refuse you can remind them that NICE recommends 12 monthly blood tests on the NHS for the above for patients with long term health conditions that require certain medication, or if you are on thyroid therapies , and have symptoms of adrenal Insufficiency or cardiac issues, this usually helps them to do them.
When you are tested get copies of the results.
Check if you are , or have had abnormal results (Deficiency) or borderline / very Low results (Insufficiency) particularly in your VitB12 , Folate , Iron , Vitamin D.
Doctors have a habit of just saying normal when you are in low range , which is a sign of Insufficiency, and Insufficiency can cause symptoms or be treated before symptoms occur.
Thyroid conditions have Vitamin B12 or Folate Deficiency and their Anaemias as "companion" conditions , and vice versa. Long term use of many different essential medication can also affect your stomach acid which reduces how well you absorb B12 and Folate, gradually over time this can cause Insufficiency or Deficiency and affect your Iron and Vitamin D absorption as well.
Tinkering along at Insufficiency levels or having recurring B12 Deficiency and it's Anaemias does eventually cause an increase in the symptoms of the thyroid , it increases the pain and hypersensitivity of conditions like Fibromyalgia. It causes Chronic Fatigue. It can affect autonomic dysfunction and cause cardiac problems to get worse. It also causes an increase in the symptoms or triggers conditions like Peripheral Neuropathy and Restless Legs, and causes muscle loss and weakness in the arms and legs , including numbness ( paresthesia ) on activity especially in the thighs and upper arms . It can cause adrenal symptoms and pins and needles and flushing in the scalp , face and ears. As well as causing mood swings and loss of thinking skills and coordination.
I say this from experience.
I'd had all of my conditions, all were getting worse , finally I'd got to the point that my legs were numb as I walked , I was losing balance more than usual. My cardiac symptoms were getting worse. Despite exercise my arms and legs started to get visibly thinner but I began to put on weight in my face and middle. My thyroid was checked but results were in range , my adrenal glands scanned. IBS , Migraine and Fibro symptoms were through the roof. I'd had Vitamin D deficiency but it did not respond to supplements and recurring Anaemia.
In the end I looked at an old set of tests and realised that I'd been B12 and Folate Insufficient or Deficient in testing for over a decade , it was dismissed as " malnutrition or dehydration " because I was very thin. They basically hadn't diagnosed my POTs and digestive issues and thought I was lying about my diet and had an eating disorder, or thought the results weren't that important.,.those errors have caused me no end of added problems.
At the time of my worst symptoms and several times before I had abnormal red blood cells results as well but it wasn't treated or was just treated as Anaemia with iron.
Despite Vitamin D treatment for 18 months it got worse because B12 Deficiency reduces the absorption of other nutrients and medications.
I went to the GP and pointed out I had B12 Deficiency and Folate Anaemia and I should be treated immediately with the loading injections , especially as I had neurological symptoms.
By now , I recheck everything myself and know I must do my own research to get the right help as a person with various multi system health conditions.
They did this and sent me for Folate and Iron infusions.
They realised after further tests and my symptoms that I have Functional B12 and Folate Deficiencies and so require injections and infusion for life, not every three months , but as my neurological need dictates.
Obviously I still have my long term health conditions but since getting my B12 / Folate treatment the numb muscles and new neuropathies have reduced, thyroid dysfunction symptoms have gone , my autonomic symptoms are back under managed control, my exercise tolerance and insulin sensitivity are back to good levels considering my health.
Basically, I can walk with my sticks again and my EDS injuries have returned to expected levels.
Obviously, you may not have this issue adding to your symptoms but I'd say it's definitely worth checking out and ruling it out.
It could simply be an increase in Fibromyalgia symptoms because of your suffering from new conditions , but, it could equally be your Fibromyalgia and other conditions flaring more and new neuropathy caused by nutrient Insufficiencies or Deficiency that if treated can make you feel yourself again.
Please update us if you decide to check this or when you get more news , and do post if you need to talk anytime , we are here to support you , take care , Bee
Hi Blearyeyed, Thank you for reply. A very eye opening one at that! You have been through the mill! Belated Happy New Year. Hope it's a good one for you!!! Hope you're having a good day.🦋🦋 Where do you live in this world? What's the weather like?
I live in Freezing cold North Yorkshire, with thick snow and unable to get out as we're snowed in. 🥶🥶
We have decided to move back South to the Chiltern Hill's, much more civilised climate and a beautiful County. We're moving to Bedfordshire in a small rural Village.
I am a born and bred Londoner, but too chaotic now and not very safe.
Hope you are happy and at peace where you live? Apart from all the health issues you have.
Thank you so much for chatting , its got me thinking about needing to be more persistant and put my foot down [ or in the GP'S MOUTH!
Take care and look after ya self.
God bless
PEACE!
🪷🪷
Been to GP, not a good outcome. Will not give me B12 injection's as she is saying in range, regardless of symptoms. [ Those Bloody Range's ] They are all obsessed with em!!!!!! I lost the plot with her, saying this is my body and my symptoms are not being adequartly medicated. She said I would have to buy the B12 elsewhere. 🤬🤬🤬🤬 WTF ! Cretin!!!!! Has given me Iron meds as I'm very deficient, plus Antibiotic's for Sinus infection. So, why the Hell can't she give me B12!!!!
Have they considered giving you an Active B12 blood test.That's what I had in the end proving I was still deficient despite my Serum B12 just tinkering on the borderline of normal.
I found I did not improve on Ferrous Iron , and it had side effects on my stomach and IBS.
I bought myself and Active form , called Iron Bisglycinate, which is actually used by health services in other Countries because it's more easily absorbed and stores longer without the same side effects.
Unfortunately, you can't get except for in hospital with certain health problems on the NHS ( my GP checked neither is us know why)
I use this between my infusions.
I buy Solgar , Gentle Iron , you can get it at health shops but it's usually cheaper on Amazon.
It can be trial and error to get the equivalent dose of Bisglycinate to that of ferrous products you get prescribed.
The ideal for Vitamin D is 85 - 115 nmol/l with the new guidelines.
Under 85nmol/l you can still suffer symptoms of Insufficiency.
Are you taking a Vitamin D supplement from your GP or one you have bought.
I use BetterYou Vitamin D3 with K2.
It's absorbed through the mouth rather than the stomach.
After my B12/ Folate Deficiency issues were treated I was able to get my results up with this.
It took about eight months.
The supplement I got from the GP was too small to treat the deficiency.
I daily dose of 4000iu was what I needed.
Now I take the spray daily in Winter and every 2/3 days in Summer and my recent results have both remained between 100-115 nmol/l
My nutrient issues began because I have functional issues and pancreatic enzyme Insufficiency so I have malabsorption.
I have to have prescribed PET.
Even so I still eat a nutrient rich diet and 5 small portions a day instead of three big ones to improve my food absorption.
And I take certain supplements daily that dissolve in the mouth.
I get B12 injections every 6 weeks and Folate infusions.
It's the combination of diet , supplements and treatments that have helped.
You've got the added issue of getting thyroid hormones in the right balance to help your digestion and symptoms as well.
Your adrenal Insufficiency will also be a factor no matter the reason you have it. Hope the scan rules out cytoma or cancer , I know mine did. My adrenal glands ended up being " grossly normal" despite the symptoms.
My combination of digestive and Dysautonomia conditions ended up contributing to my poor adrenal function. Messaging and hormone release seems to go too far one way or the other!
We both seem to have bodies that like to keep us on our toes , take care , Bee
I’m so sorry to hear your going through a lot I get sensations to all over my body and itching and my head it’s awful condition fybro and anxiety you can talk to me anytime if I’m free as illl be at work I try help anyway I can I’ve been told I’m funny 😹 that’s a bonus
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I HAVE FIBRO BUT THINK I HAVE HAVE MS HAS ANYONE ELSE HAD THE SAME PROBLEMS I HAVE
Unusual additional symptoms 
fibromyalgia 
