On Friday John took a call for me (I can't speak on the phone??) DWP and UC
apparently all disabled people are being called to see if they can help us to get back into work?
Paid or volunteer, Hahahahahahahaahaaaa That would be good to see 🤨🤨🤨🙄🙄🙄🙄
Today John got called to ask the exactly the same,
Anyone else got the call?
I would love to be able to go back to work, I made a lot of friends when on the buses,Had some fab times, I hope they would let me???? (cant see that happen, The very 1st thing your employer does is send you off for a medical),
Maybe a sit down at a till? Sometimes I can't sit up in bed! Who would pick me up when I fall or nearly pass out because the lighting is too harsh? Or can I wear my prescription sun glasses indoors?
Who will help me when my social anxiety takes over? when there's more than 2 people around and 1 being my hubby,
What if I have only 2 hrs sleep so make mistakes??
What happens if I'm having a nasty muscle spasm??
What happens when I forget what I should be doing?? (brain fog)
When I wake up in the morning finding I cant actually move straight away?
When my headache feels like my head feels ready to explode?
When I can only work a couple of hours a day, Then need time to recover?
What if the job means I would be on my own??
What if I'm in so much pain that all I can do is cry in a dark corner?
What if,
Fibro doesn't do 9 til 5!
Written by
Debsdelight72
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I’m sure we can all relate to this. In fact what you have written would be an excellent answer to their question and cc it to your local MP and Minister for Health.
Let’s see how they answer and what they suggest? I’m sure we’d all be interested to see that.
In the last two years before my mortgage ended my incapacity benefit was stopped and they stopped paying my stamps. I was too unwell and depressed to attend the impossible to get to town, by public transport, for an assessment. Consequently when I finally retired I was short on my state pension.
It is disingenuous of this government to pretend that they will help people with disabilities into work that will provide a living income. It’s a cruel joke in fact, because with the chronic and variable nature of Fibromyalgia and similar conditions, it’s not conducive to regular employment or voluntary work.
Active government spending on research would be more valuable in the medium and long term.
Keep us posted please? Laughter is the best medicine it’s said and probably the best response in this case.
I too would like the same answers as you I would slap like to know how they would deal with my swelling up from. unknown allergies for which I carry an ePipen. I can be sensitive to perfume, aftershave, deodorants, body spray, washing powder, soap, hairspray, air fresheners, and my favourite cannabis. So that rules out working in any public sector. Do you think they have a little box somewhere on an in-habited island they could send me to?💜
An excellent response and I agree you need a wider audience...
Maybe journalists would be interested?
Copy to yr MP+alternative candidates is a must; only if u have the energy though?
They probably have no time 2respond when fighting 4 their seat but it really does read so well as an insight into folk with multiple issues of mental+physical health.
You'd b such a great ambassador if you could widen your audience...
Congratulations on speaking out+sharing.
You are a real star!
[I'm hoping to listen to an Age UK campaign later to find out what I can pay for regarding help with such total weakness...
Trying to be independent is so hard for so many of us...]
It just ticks me off, They can do what the heck they like and we have to bend down(I will need help getting up)and cower whilst we have to keep fighting for what we need (are entitled to)
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40+ years of Exhausting Fibro!!
Body cuts & fibromyalgia 
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