Has anyone else had high dose of vitamin d and after three weeks had bloods and still low and after they took blood my arm hand shoulder went numb and could hardly move it nurse said it’s part of FM should resolve.
It eased off and this morning it intermittently going across to other arm how is this possible it makes me drop things which would be ok if I were Greek. It then goes to lower back stabbing then it goes away then hitting me by surprise again arghh! Then it’s like someone has a remote control making my legs slow and stiff pains like nail through foot into floor. All this flare is from three months off work due to dam covid.
Does anyone else get their breast bone burning and deep pains then tighten so much like being cut in half?
thank you 🙏
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Geeforce99
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Generally blood tests are done 3 months after Vit D daily supplement according to my GP. I am on constant Vit D supplements. Low Vit D does give rise to muscle pain, however regular blood tests are needed to ensure there is no overdosing. Many UK citizens will have low Vit D levels. We definitely need more sun!
Regarding the rib pain it could be costocrondritis which, I am afraid, is quite common with fibro.
hi having no vitamin d causes FM pains according to my gp as it’s a hormone not a vitamin
hi my journey with fibro began with blood tests showing very high calcium levels and low vit d . Eventually had operation to remove parathyroid glands which they thought were the problem but after op I am still left with the chronic pain so have been diagnosed with fibro . I am on vit d supplement long term .
It is fairly common and usual for people in the UK to have some degree of deficiency due to the low amount of sunlight. I haven’t been so low that I needed it intravenously but do regularly take vitamin D3 + vitamin K2; this is an important combination because without K2 it’s possible to get low Calcium levels and the problems that go with it. K2 helps regulate your Calcium absorption so helps avoiding deficiency.
Yes D deficiency can give rise to extra pain, so keeping it at a reasonable level helps. I have to take it daily in the winter months and only really ramp down to every other day in the late spring, early autumn and summer. So far I’ve not had any symptoms of overdose in 3+ years with the same supplement, touch wood 🤭
The other thing is to make sure that you eat healthily avoiding highly processed foods, they often contain nasties that interfere with vitamin absorption and can cause inflammatory reactions.
I hope things improve, but with Fibromyalgia I have learned that basically anything can happen, it’s such an unpredictable illness. For example I have recently developed Synaesthesia - this is where you can see sound, as a very simple way of describing it sometimes when listening to music for the sake of keeping it simple it’s like seeing the Northern lights! Not quite the same but you get the idea! When it first started to happen I thought that I was having hallucinations and it worried me, I spoke to my GP and he said he thought that’s what it was and that possibly the hypersensitivity associated with Fibromyalgia may have exaggerated my already very emotional connection with music. It’s most likely a temporary thing (I sort of like it now that I know what it is) so hope it hangs around for a while!
My feelings are expect the unexpected with Fibromyalgia, it’s a very complex disorder, and don’t take offence to uneducated people who say “it’s just in your head “ they know nothing, but it’s actually quite likely that it is, most research points to it being a brain dysfunction that triggers the pain response, I can accept that, I also believe that when it can’t find a danger it triggers the pain response everywhere. Who knows 🤷♂️
I no longer eat gluten, wheat, sweeteners, processed foods, no alcohol, avoid smoke and have never smoked as could not tolerate it as a teenager.
My vitamin d was so low my doctor said and he suspects something is causing it. it has increased slightly after three weeks treatment as blood test result show but needs to be higher. they need to be careful due to my conditions he said and uncertain what role Covid is playing still, next three week treatment then another blood test then they will check other levels. My blood pressure is fluctuating allot which is not helping me get back to work.
Frustrating is the way this makes you feel and I can’t understand why they can’t do blood test give me what I need then get back to work even for just few hours makes you think they don’t know what’s going on. 🙏
Sadly Long Covid has made my existing conditions like fibro. worse…high BP/ HR one of symptoms that remained. What dose of vit D did the GP give you? In pill form, by itself, with instructions to take hours away from other drugs/ supplements? I take liquid vit D in drops with vit K2 too to adjust dose easily and get vit D to bones/ teeth where needed.
Sorry taken time to come back not been too good and to hear you’re conditions are worse as result of long covid. my dose is only available on prescription vit D3 50,000 iu capsule once a week for 6 weeks blood test every three weeks. I asked why it has no K2 doctor said you do not need it. I have it at lunch with main meal of the day and full glass of water. This means there is plenty of gap between other meds. It’s been absorbed but levels still lower than needed their monitoring it.
Wow, I’ve never heard of this before. Like you say, it actually sounds beautiful and thankfully it isn’t something that causes any harm. I went to Iceland to see the Northern Lights but sadly two nights of waiting and didn’t get to see them 😔😁xx
It’s not a common reaction, in fact it was the first time that the whole practice had ever heard of, which explains their inability to actually diagnose. Fortunately for me I have a friend who has had Synaesthesia since childhood and gave her a ring and had a chat; she said “who’s a lucky fella then?” 😆
I have Fibromyalgia and I am sore and tender all the time! I also suffer with a burning stinging sensation which affects my arms and legs especially during a flair up but have not had experience of the type of pain you are dealing with to be honest if it continues you should go back to your GP, take carex
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Fibromyalgia 
Vitamin D deficiency 
Vitamin D?
Have I got fibromyalgia? 
