Intense itching

[Helyely]

Does anyone suffer intense itching and skint prickling? I feel like I get goosebumps and electric shock type pains then uncontrollable itching all over my body. I have tried sudocream, calamine lotion, witch Hazel, tea tree, eurax and finally doctors gave me some mentosoothe. My skin is crawling, I'm struggling with sleep, I constantly burn up anyway so of course the hot flushes are making the pain and itching worse. I even started taking turmeric and black pepper supplements. Been over a month now and it's unbearable.

[Painny]

Oh gosh….tell me about it, I was going to ask the same question but had no energy.

Mine is more like a sudden bite with immediate redness and tiny lump. I itch it so much that I even scar my skin. I was given medication but that has not helped at all 🤷‍♀️🤦‍♀️

[Helyely in reply to Painny]

I know it's horrendous, so much worse when I'm tired of have just woken uo but I can scratch for hours. Just feel like once you have fibro everything problem gets put down to that, you never really get any answers. Take care hope u feel better soon

[Painny in reply to Helyely]

Thank you, you too

[Bertiemum]

I occasionally get sharp stabbing pains, but I also get an intense itch on one of my arms, always in the same place. Its a deep, burning itch that makes me want to claw at my arm. I put a cloth on it soaked in ice cold water, and then apply Eurax. This sometimes helps but not always. Its presumably irritation of the nerve endings. The worse thing you can do is scratch although that is your natural reaction.

I am on both Amitriptyline and Duloxetine. I have only been on Duloxetine for about a month, and initially I had terrible headaches which is a side effect, but these seem to be easing and the combination of this medication does seem to help my fibromyalgia.

Good luck!❤️

[Helyely in reply to Bertiemum]

I get that exact pain in the top of one of my arms too. It's awful, had it for about 7 years. This started getting worse last month now I have that feeling all over my body. I'm on fire with the pain. I take amitriptlyne, gabapentin and serialise. But been on these for years ao don't think they cud b the cause. I'm definitely gonna try an ice pack but gonna struggle as the itch is pinging all over my body. Thanks for your advice, take care 🙂

[Katiepc24]

All the time, I normally keep a tub of Aquarias cream in the fridge. When itching gets bad cover the itch area with it (normally feet/ankles) then cover it with a cold wet flannel. This works great for me

[MinnieFibro in reply to Katiepc24]

Great idea. I use queous cream as my shower gel & soap but having it cold for the itch is an excellent idea. Thank you.

[Dash01]

Literally the same thing every day 🥲

[Vontrap]

hi I get intense itching all over my body. So much so my arms have scratched purple bruising marks on them looks horrible. I’ve tried E45 itch cream and doublebase on my body even my private parts but it still doesn’t work. Stopping antihistamines tabs hasn’t helped either as recently found out the side effects are itching. 🔥😡

[MinnieFibro]

Yes. All of this. Its worse at night. I find that using a weighted blanket helps to calm my body down. Including the itch.

[Vontrap in reply to MinnieFibro]

Thanks. I had thought about a weighted blanket but my body is so sore I thought it would make it worse.

[SassiLouie]

YES... The best thing that helped me was antihistamine tablets and hot bath. not every day..but the itchfests..are connected to food senstitivies. NOT ALLERGY..although it might evolve into that.

I also noticed that some points near the itching areas.....if you press on them...are sore spots. I call them "vortices of pain"..its a form of pain in the muscle that is being translated into itch. I lightly massage the area that hurts..until its worked out. I also use a device called a SCENAR on the area. It sends frequency to the area that tells the brain to focus and work on healing in this area. It was developed for Russian astronauts in the 70s to deal with muscle building in space. its come a long way and more sophisticated and now for home use. Russians dont play the pharma game. if it worked..they use it.

There is a cream called Ivarest that works on troubled spots...but also see if the itch fests connected to about 4--6 hours after eating gluten (breads, pasta..etc.) My senstivities tend to be gluten, oatmeal..and some other things show up in my report if Im eating too much of it and my body is about to reject it.

I started making my own home bread (See youtube Pan Bread) for an easy stovetop bread.

You can get tested for food senstivities by any RARE doctor or person using these devices.

WebWellness

Eductor

and other biofrequency devices.

These results wont show in bloodwork...but only frequency medicine..which is more used in other places all over the world (Japan, Russia, Germany..etc) to get a better idea of what is happening in the body. The only places I know who has this is NYC and Naples, FL,

vitalgate.com (They do not take insurance unless you are getting acupuncture (which has helped me) to which you would receive a receipt for services that you would submit to your insurance company. Insurance does not recognize the biofrequency tests and treatments..although they should because once you find that stupid bug or issue..you are less likely to need medicines or surgeries! Its just stupid of them not to support these machines...because you dont even need to tell them what you have..they look and test on multiple machines and if they say the same thing..its likely that THAT is part of the root problem.

Unfortunately not enough doctors are taking advantage over these devices which are HUGELY expensive..and can range at $5000-$40,000 per machine. If they did't work they wouldn't cost that much.....but they DO work in finding really tiny things that could be the root of your problem. BIG PHARMA hates these devices because you don't need medications to deal with root issue.

Also. if you are autoimmune or have hashimotos...and tend to eat the same foods..your body will start to reject common foods..this is why you need to change up your foods every two weeks. Don't eat the same thing every day!

[Helyely in reply to SassiLouie]

Thank you so much for your help and info. I will definitely look into this. I'm at the doctors again tomorrow so see how I get on. Thanks to u all for your replies

[Vontrap in reply to SassiLouie]

Hi that’s a lot of reading and things to look into. I’m in the UK so some of what you’ve written I haven’t heard of. Thank you for you reply. And everyone else.

[SassiLouie]

Also..I also make a power smoothie. twice a week. I don't want to over due it and start to have a sensitivity..so I limit them.. 2-3 per week is enough.

1 Banana

Some ice

about a cup or so of coconut milk or almond milk.

Handful of blueberries

Handful of raw pecans

Handfull of raw pumpkin seeds

1 large scoop peanut butter or sunflower seed butter

1 scoop Carnation Choclate breakfast essentials mix

Add anything else you like like chia seeds ..but I think the magic is in the raw pumpkin seeds and pecans. Research.

MIX and blend very well.

The idea is to get these nutrients into your body without your body having to work to digest it. As we get older we do not digest foods as easily and are missing the point of getting good foods and their nutrients into our systems.

[Helyely in reply to SassiLouie]

Thanks Sassilouie that sounds absolutely delicious 😋 will definitely try that.

[KimiJay]

Commiserations! I don't know if it is the same thing but last year at about this time and now this year, I've been getting bites which itch like crazy for ages, like weeks. Just can't see them but there must be minute insects as my husband got some bites too but now like me and he doesn't have fibro or normally feel any pain in his body. For us, I think it must be fleas or something in the carpets so have used a permethrin spray .... sparingly ... and aired the room really well after as they say. I make a careful check for spiders who I save first and put outside.

If I've been doing bits in the garden, I have been very aware of more itching at night and getting blood from scratching what have to be bites, so washed bedding and clothes. Have also felt the strange pricking sensation. It's been minute like a tiny pin and mostly in one place on the inside of my arm. - The only other thing I can think of is heat rash from more youthful memories. I don't know anything about it but I suppose internet sites might. Hope it all goes away soon for you. No need to reply. Recover soon.

[Elaine200756]

Hi Helyely, I am exactly the same, torture! I'm sorry you have this and hope you can find something that works for you 🤗

[Mull1972]

Hi everyone.. I have had this exact problem since May when I was changed to duloxitine. I live in Scotland so it’s when the midges come out in force and I just thought it was bites but soon realised there were too many of them and in areas that weren’t exposed. After numerous remedies from the chemist didn’t work, I went to the GP who was stumped. Steroids and antibiotics didn’t help so he took bloods, this has now turned into a huge investigation into my liver function! I’ve had to stop duloxitine suddenly as he was so concerned it was this that has caused the damage and subsequent skin reaction.

I’m feeling dreadful today and can barely stand but thought it was worth you all knowing, this can be a side effect and may be worth you talking to the GP in case there is a secondary issue going on. We all put everything down to fibromyalgia and sometimes don’t look deeper. I’m very fortunate to have a group of amazing GP’s.

[rocklady73]

It started 20 years ago on my arm. it comes back every few months. Now it is on my head whenever I urinate my head itches so bad i scratch and scratch till I make my skin bleed. have been dizzy for two years and neurologit says I have PSP. I can hardly walk but still itch. Any help???

[rocklady73]

I have asked that qus tion before but no answer.