Anybody help please : I am new to this... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Anybody help please

Dawn31019 profile image
12 Replies

I am new to this particular group please can anyone help . I am 51 years old and work full time in a mentally and physically hard job. I was a diagnosed with coeliac a year ago . I have been on a gluten free diet for over a year now , my stomach symptoms have gotten better but my general physical health I am struggling I feel weak chronically fatigued I have aching back shoulder knees well weak, sore , stiff muscles and joints brain fog . I am back and forward to the doctors like a yo yo. I am managing to go to work but just that completely shattered all the time I sleep well love my sleep but never feel refreshed. I have just started Physio for my back and I had some acupuncture I felt great just after treatment but by the same evening back to my normal self . I feel like my whole body is swollen tender like a big bruise. Aches and pains in my whole body feel like I'm 90 years old some days . Please help what's wrong with me? I googled and found fibromyalgia?? What do u think advice desperately needed.

Thanks Dawn

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Dawn31019
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Creativeness1 profile image
Creativeness1

Hi Dawn31019 welcome to our friendly forum I hope you find lots of support and useful information.

Please do take a look at our mother site

fmauk.org.UK

If you look on our homepage you will find a great deal of information from the pinned posts on navigation, locking posts and benefits.

We are here to support you so please do ask if you need help with anything.

Good luck on your journey my friend

Creativeness1 profile image
Creativeness1

Hi Dawn31019 the pinned posts has information on symptoms and treatments.

Please look at the mother site for more positive information.

fmauk.org

Good luck my friend

tulips123 profile image
tulips123

From one Dawn to another: Hi and welcome. I take it you're not getting much advice from your GP and Googled your symptoms which has brought you here? It's often a long journey to get the final confirmation diagnosing FibroMyalgia and usually involves testing for many other conditions with similar symptoms. In the meantime you are battling to carry on living a normal working life with chronic fatigue and pain and possibly a whole host of other symptoms it's tough to identify. You need a GP you can talk to. If this is not the GP you have now I think you should consider finding the right GP you can talk to? Take it from there.

I'm stuck in brain fog, this is as far as i can go this evening, although i'm sure other members will come along to help more. Tulip aka Dawn :) xx

Dawn31019 profile image
Dawn31019 in reply to tulips123

Thanks for your comments I too have brain fog take care

Ramjets profile image
Ramjets

Hello Dawn love and welcome to the forum, ok well I can say you do seem to have a lot of symptoms typical of fibro however that doesn't mean you do have it. There is no definitive test for fibro and the diagnosis is usually arrived at once a lot of other conditions with similar symptoms are eliminated. You haven’t said in your post if you have been tested for other illnesses but I would suggest you keep a diary for a few weeks, ie what you’re doing, what you’re eating, what pain you’re feeling and how you’re feeling. I would then mention it to your GP so they can consider it as a possibility. My experience was that I was going back and forth to my GP for over 4 years and fibro was never mentioned until I brought it up myself. It can be a long arduous process to diagnosis so I wish you the best of luck and lots of patience. Don’t hesitate to come back here for advice if you’re having any problems. Good luck lovely x

Dawn31019 profile image
Dawn31019 in reply to Ramjets

Thanks for your comments I am on a GF diet have been for over a year I have also been diary free for a trial period that made no difference . Thanks for your reply I will battle on

I just wanted to add to all the other really valuable advice..you could try asking your GP to refer you to a rheumatologist who can, if correct, come to a diagnosis of Fibro after testing for other conditions. Good luck.x

Dawn31019 profile image
Dawn31019 in reply to

Thanks I am back at the GP next week for some results I will mention that my body just feels like I've been hit by an express train and it's been going on for years.

TheAuthor profile image
TheAuthor

Hi Dawn31019

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

I am so genuinely sorry to read of your suffering and struggling and whilst what you have described could be Fibro symptoms they could also be caused by many other medical conditions including Coeliac Disease. I have pasted the list of symptoms for Coeliac form the *Coeliac UK website:

*Possible symptoms may include:

severe or occasional diarrhoea, excessive wind and/or constipation

persistent or unexplained gastrointestinal symptoms, such as nausea and vomiting

recurrent stomach pain, cramping or bloating

any combination of iron, vitamin B12 or folic acid deficiency

anaemia

tiredness

sudden or unexpected weight loss (but not in all cases)

mouth ulcers

hair loss (alopecia)

skin rash (dermatitis herpetiformis)

tooth enamel problems

depression

liver abnormalities

repeated miscarriages

neurological (nerve) problems such as ataxia (loss of coordination, poor balance) and peripheral neuropathy (numbness and tingling in the hands and feet)

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

Dawn31019 profile image
Dawn31019 in reply to TheAuthor

Thanks ken yes I have coeliac disease and that is under control with GF diet . Thanks for your comments

TheAuthor profile image
TheAuthor in reply to Dawn31019

Good luck my friend

cathy1110 profile image
cathy1110

Sounds same as fibromayagia. Buf does afect our sleep

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