I have Fibromyalgia, diagnosed around 8 years ago, but have had symptoms since in my 20's.
Long term mental health - Depression, Anxiety, Panic attacks, Health Anxiety.
Then Bpd diagnosed around 10 years ago.
Currently have 2 more diagnosis result I am waiting on.
I joined about 4 years ago I think, but have only been lurking.
There has been so many posts I have wanted to comment on but I have been too anxious to post anything after my bad experience in fibro Facebook groups.
I was scared I would annoy people and they didn't like me, which happened on Facebook.
So sorry if I do.
Facebook groups have not been good for my mental health.
But I am severely lonely so thought I would take a chance and see how I get on here.
Written by
saxcat
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Good morning, saxcat (love the name) welcome to the group. I think you'll find us a friendly lot, and many will be able to answer any questions you have about Fibro. Sorry to hear about all your ailments. I'll send you a gentle hug to be going on with this Saturday morning. x🙂
Please don't feel anxious about posting, replying or asking any questions. We are a very supportive group and as you will know, discuss everything from fibro to knitting to gardening and all sorts.
We are overseen by a tremendously great team of mods should anything get heated or off topic which it seldom does and is usually due to a misunderstanding it is dealt with calmly and efficiently by the team. You won't find the problems here that you experienced on Facebook, at least I never have and I am an "oldie" on the site.
Feeling lonely is horrid and isolating and hopefully you will soon settle in with us here.
Hi Dinkie Thank you 😊. The amount of posts I've read over the 4 years of lurking I was dying to comment on, hopefully now I have made the move it will get easier. Still feeling shy atm. x
Thank you Smilesalot 😊. They got sick of me moaning even though it was supposodly a safe place we could moan lol, I don't join in on that groups now. x
Good morning Saxcat, I am a relative newcomer as only diagnosed about 6 month ago but this group has been nothing but supportive and friendly. Please keep in touch with the group and let us all know how you are x
Thank you Crazyangel40 😊. Hopefully it wont take me long to get over my shyness and I will post more. Was in bed all day yesterday crying in pain with my spine but I'm feeling better today. x
hi Saxcat and welcome, I recently joined the forum and people are really nice. We all have illnesses in varying degrees. We are empathetic and understanding in our views and comments. At least to say that has been my experience. No need to lurk my lovely. People are kind and always ready to help and advise. Hugs xxxxx
awww that’s so sad you feel like that , no one has the right to make you feel sad when you just want to share your world with others 😢 you won’t get any of that on here !! Everyone is so supportive and can offer advice to help you along the way , take care & keep smiling 😊
Thank you Applespearspeaches 😊. Yeah, For a fibro group that was supposodly a safe place for us to moan, I was quite taken aback by what a few people said about moaning about it, and just to get on with it. and was saying positive vibes only, which I do try to do,x
I do try and distract myself, I read a lot of books, watch netflix etc, play games on my mobile, probably do more stuff but can't remember atm lol, fibro fog.
Unfortunately my mobility is quite bad with fibro so don't get out much at all, even with my Motability car, I have nowhere to go even if I could get out more. nobody to visit, or anyone to visit me. Although I'm quite lonely I find socialising hard too. But I am trying to push myself to see if there is anything to go to in my tiny village. x
Hi saxcat, I do understand how difficult it must be for you. I too am always busy at home with sewing, reading, games, crosswords books etc: but my brain demons never leave. I find the only thing that calms it down is conversation with other people because it takes my mind off myself. Phone calls also help.I do wish you well with it x
Saxcat what a lovely name just like say welcome to this page it's amazing everyone on here is brilliant I was like you just sat watching till recently I put my first post they were so helpful n friendly don't be afraid to comment on here facebook is full of keyboard warriors ignore them you enjoy your weekend n welcome this page is amazing big hugs hun x
Think you will find this group kind, caring and helpful if they can be. Sorry to hear about your multi ailments, I like alot of others here have similar problems. Try not to get too depressed, I find crafting helps me also read alot and like to swim when possible. Big hugs try not to let the weather get you down, its horrible in Lincs but at least the flowers are out and the bird although wet are feeding and nest making. Summer will I hope come soon.
Thank you dinkic 😊 I did notice that while lurking I just don't know why it has took me all these years to start commenting/posting.
I read books, mindful colouring in when my hands let me. I do some other things when hands let me too. I can't swim, lol, I did go for lessons about 8-9 years ago but had trouble with legs going cramp in the water.
Omg the weather has been crazy here in Scotland, Mental rain & hail steens 😂 x
Thank you Ellenindigo 😊. Never been on Twitter, only Facebook groups, The one I had most issues with was in my own hometown but I'm over them now. Here does seem friendlier. x
Aww, you are very welcome saxcat. You can express yourself safely on here. No one judges or criticises you and I'm pretty sure you will be supported and respected. Let us know how you are xx
Thank you Elaine200756 😊. That is good to hear. Hoping I can be supportive too, there's been so many posts I wanted comment on with answers & support too.
I'm doing ok today was in bed all day with my spine.
Got a MRI in 2 weeks for spine & head so looking forward to that in a way, if you know what I mean. Had been on waiting list for neurology for year n a half . x
You're very welcome saxcat 😊 I'm sure you have a lot to give. So sorry to hear that you are suffering so much with your spine and glad that you are having an MRI of your spine and head.I completely understand why you're looking forward to having your MRI after being on the neurology waiting list for such a long time. That's a long time to have to suffer.
I recently had the same MRI. It turns out I have a slipped disc and arthritis of the spine. I hope you will get some answers re your back pain. Please let us know how you get on. I hope you feel able to comment on the posts here and share your experience of what helps you.
They'll be none of that trashy trash talk on here, Well done from coming off those 💩💩 sites,
You won't get that on here, I think it's a lovely group where we all know which bit of every thing hurts, There are people on here who will jut pop in and out and don't hear from for ages, But have some handy info or something that you can relate to or find useful,
It's here for everybody and anybody' If you need a rant, Respectfully of course, If your suffering from your mental health because of this selfish 💩💩💩💩💩💩💩💩💩 illness that some have conquered, others find it hard to get through the day,
We are warriors and fight on for what is truly our given right, To be here🙂
Watch out though,,
There are people on here that come on every day and write long posts when they could of said the same chuffing thing in a couple of lines, They will be on here because this is their only way they can communicate because mental health has rendered them to a naughty step because they can't go outside without anyone with them and only do so to attend appointments,🥱🥱 Sorry to burden you with all of this babble.🙄
Welcome to the group.🫂
Oh 1 more thing, that person who comes on with all the babble is ..........................ME 😆😆😆😆
I know your post was a couple of months back but I have only just seen it,
I was also a lurker in the side lines, I think this group has been a life saver for me, I just didn't want to admit to having Fibro I surpose???
Once I was reading a post and thought, Sod it I'm going in!!! 🥸
Everyone on here is Fibro family and our forum is most certainly not 💩💩book, I had a proper sort out with people that claimed to be so-called friends were so easy to unfriend and then just got so fed up and got rid of the whole thing,
I'll let you know that I only write quick short posts 🤣🤣🤣🤣🤣🤣,
If I can't remember how to spell the sim/pi/lest (soz) word I write how I say it,
I'm 1 of those people that will make light or extracting the urine by stating the obvious, Hubby says it's irony?? I say it's mostly bull💩,
If you need any advice (you prob/ally(soz) don't,) there is always someone who has been there done that and brought the t-shirt,My 💩💩est symptoms are the insomnia after the pain ,drives me potty, I woke up at 7 yesterday am,after 2 hrs sleep, Last night or this morning I went to sleep at 8am and woken at 10am jut finished lunch and Hubby is off for a power nap and tells me to get some sleep!!!???????? I tell myself to get some shuteye but when does it become a night shift? I'm trapped in a bit of a strange one that's for sure,
When I sleep for anything up to 10 hours I wake up feeling like I've been run over by a bus, I think all the lack of rest puts me into a position that I just have had enough, It just won't give me a break...Grrrrr
1 day I hope there is a cure for this awful💩disease even if I'm not here to benefit the magical cure, I'll be rooting for the next generation,
Never feel you are alone or think you have no-one to ask or just a quick hello,
I'm same with sleep, either insomnia can't sleep stuck in pain or can't stop sleeping but yeah never feel refreshed even sleeping for long periods.
But still prefer when I sleep lots.My spelling has got so bad since fibro too 🤣used to be top of my spelling class lol.
Think it will get easier and feel normal the more I post, its even feeling better already since my first post.
Aleways nerve racking something/where new
You take care too
Kaz
Hello,
I am new but i just jumped straight in with a post or two, it seems to make me feel a bit better if i do it this way.
I get what you mean about facebook, I dont think its good for people, it leads to depression amongst other things, I have it but havent used it in ages.
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hi all x
Frustrated with pain
Fibromyalgia 10 times worse
Lurker comes out!
