Itching: I have FM/CFS and have an... - Fibromyalgia Acti...

Fibromyalgia Action UK

56,280 members64,731 posts

Itching

Deerfoot profile image
24 Replies

I have FM/CFS and have an issue with itching on my back, especially one spot that's extremely bothersome. There are no spots, no redness, and you can't see anything. No matter what I do, nothing helps. I'd like to know if others with FM suffer from itching and what they do to relieve it.

24 Replies
amozan profile image
amozan

As far as as I know there's nothing much we can do but use a back scratcher as we get older our skin gets very dry and it is difficult to moisturise our back unless you are lucky enough to have someone do that for you everyday which would be very helpfull I also suffer from this issue so just i have use the infamous back scratcher or the edge of a door frame rather like a bear using a tree trunk to scratch his back🐻😁👍

Deerfoot profile image
Deerfoot in reply to amozan

Thank you for your reply. I use a back scratcher as well (and once in awhile the door frame too, lol), but always find that it feels even worse afterwards, but sometimes I just want a bit of relief. I'll have to see if I can get some of the cream that people mentioned before - E45 or Eurax cream.

Alltheflowers profile image
Alltheflowers

I use a soft exfoliating loofah which has handles at each end to use easily on your back. I put some E45 cream on it and massage it in with the loofa (pulling left to right across my back) which seems to help. You can buy the loofa online or in chemists. Hope that helps x

Deerfoot profile image
Deerfoot in reply to Alltheflowers

Thank you for your reply. I'll also have to see if I can get some of the cream to try.

katiekat666 profile image
katiekat666

Hi I have the same problem at the top of my back it started off a small patch but unfortunately over many years has got bigger. I use e45 wash cream I also have e45 cream and eurax cream. I try not to scratch which is desperately hard not to do because once I start with a back scratcher I feel like I just want to literally rip my skin off. I try not to get over heated because that makes it worse I'm walking a fine line between keeping my back cool and my arthritis warm.

Deerfoot profile image
Deerfoot in reply to katiekat666

Thank you for your reply. I use a back scratcher as well, but always find that it feels even worse afterwards, but sometimes I just want a bit of relief. I'll have to see if I can get some of the cream that you mentioned.

SusieSquirrel profile image
SusieSquirrel

I have the same problem on different areas of my body. I sometimes look to see if something is on my skin as it often feels like a critter walking about as well as the itchy patches. Drives me crackers.

Deerfoot profile image
Deerfoot in reply to SusieSquirrel

Sometimes other areas of my bodies are itchy, but my back is the worst. And sometimes I get a feeling like there's a critter on my feet, but there isn't. I believe that's our nerves firing.

SusieSquirrel profile image
SusieSquirrel in reply to Deerfoot

I'm pleased (maybe not the right word to use) that I'm not the only one

glochessum profile image
glochessum

I also suffer with itching, wakes me up at night. I find germolene helps. You can get a thing called back bliss on Amazon that’s specifically made for creaming your back.

Deerfoot profile image
Deerfoot in reply to glochessum

Thank you for info, I'll certainly look into it.

Tillytrots profile image
Tillytrots

Hi I have had a terrible time with this itching and bruising I have tried every cream and lotions got in touch with my GP and getting a lot of blood test done as he thinks my iron levels could be low he has put me on iron medicine but not to take it until I have had the blood test, I have the itching all over and as you said on my back it's driving me mad so I am hoping it's my iron levels and I can get some relief with the iron medication ,I will keep you in touch with the results this Fibromyalgia is a terrible thing I know how you feel try and keep well regards.

Deerfoot profile image
Deerfoot in reply to Tillytrots

Thank you for your reply. Anytime I've had blood work done, it always come back okay. With FM, I find it hard to have anything show up on any of the tests I get - they're always clear, leading to no diagnosis, or reason why I'm feeling a certain way. It's SO frustrating!! I hope you have better luck with your results!

Uellow22 profile image
Uellow22

Hi All,I don't suffer with this but my husband does and he uses antihistamines which really help.

Yes I know it's another drug that can have its side effects but wanted to mention it just in case it helps you.

Healing hugs to all 💛

Deerfoot profile image
Deerfoot in reply to Uellow22

Thank you for your suggestion. It might be something I have to resort to, although I hate to if I don't have to. But, hey, whatever works.

Luv2quilt profile image
Luv2quilt

I thought I was the only one who experiences this! I can totally relate to your post. I find lotion tends to calm it, though it hasn’t prevented it from flaring. Hope you can find just the right one to relieve you of that intense need to scratch.

Deerfoot profile image
Deerfoot in reply to Luv2quilt

Thank you. I guess that's once reason I posted this question because I wanted to know if others suffered with the same problem too. So, isn't it good to know we're not alone, even if that doesn't take the itch away. I'll see if I can try some of the creams that were suggested.

KimiJay profile image
KimiJay

Just a suggestion. The type of material you wear next to the skin, or even one layer outside a vest may be irritating. Having said that, I got flea bites from going in the loft in late summer. They lasted for weeks and even one on my shoulder blade that healed has gone on itching and I have gone on scratching and making it bleed! If you haven't tried antihistamine cream, that may help. Calamine? I react to wool and some people react to washing powder. It is perhaps trial and error and like you are doing now, asking around may eventually resolve this. Good luck!

Deerfoot profile image
Deerfoot in reply to KimiJay

Thank you for your good information.

Adohr profile image
Adohr

yes I have had itching for 5 years on my scalp and back

I thought it was Notalgia Parasthetica which is it rated nerves on the back from neck nerve irritation

I added in Claritin and ice packs and applied lanacaibe to certain sits on my back

My GP prescribed a cortisone lotion for my scalp twice a week

I find over exertion and stress causes worsening

I try not to over exercise my neck muscles

It gets better and comes back

I also bought gold bond for an ant itch cream which works

Lyrica and gababentin also works for neuropathy

Good luck !!!

Deerfoot profile image
Deerfoot in reply to Adohr

Thank you for your reply. I do use Gold Bond, but it does nothing for that particular spot. Even cortisone cream from my doctor doesn't help.

Welshcatlady profile image
Welshcatlady

Hi I suffer with itchy skin all over my body at different times, one day it's my arms another my legs, then my back and so on. My GP prescribed Dermol Cream to use as a soap substitute, which works well, I still get itching at times but no where near as much as before. I know it can be so annoying when it happens.

Deerfoot profile image
Deerfoot in reply to Welshcatlady

Thank you for your reply. I haven't heard of Dermol Cream before, but will look into it. Yes. it's very annoying!

Welshcatlady profile image
Welshcatlady in reply to Deerfoot

You can buy it, online at Amazon, or in your local pharmacy, but I'm lucky my GP prescribes it for me, so don't have to pay for it, (I live in Wales).

You may also like...