Reccomendations for cream.

[Karenwelshx]

Does anyone use any type of cream? I been using arnica gel but not sure it still working as good as it used to. The worst of my pain is elbows, knees, ankles and feet. I did find one called fibro cream which I was hoping to try but out of stock everywhere. Any recommendations or own experience very welcome.

[LisaSnow FMA UK Volunteer]

Yes I have a prescription pain cream made with gabapentin and ketamine. I don't find it very effective often. The best pain medicine remains regular exercise.

[CM1EDSUK in reply to LisaSnow]

Can only endorse what LisaSnow has said; remaining as active as possible really, really helps. Have to say this as a physio, but it's also helped me retain my now limited mobility for many years (I have practised what I previously taught). Was told I'd be in a wheelchair by the time I was 40; hmmm some years older now, but no wheelchair.....

[Hazel_Angelstar Administrator FMA UK Staff]

I have used capsaicin cream in the past which definitely helped. Only stopped using it due to starting to react to it when menopausal - but going to give it another try xxx

[Karenwelshx in reply to Hazel_Angelstar]

How did u react to it? I'm 4 yr post menopause and on hrt

[Karenwelshx in reply to Karenwelshx]

While I was looking for cream I think I seen that in a patch

[Hazel_Angelstar Administrator FMA UK Staff in reply to Karenwelshx]

I became ultra sensitive to the heat due to hot flushes

[Karenwelshx in reply to Hazel_Angelstar]

Thanks

[baygirl51]

I use a aromatherapy cream and and oil but as we cannot recommend the company which make it ican't say what it's called .They do have a Facebook presence though .

[Dizzytwo in reply to baygirl51]

Hi there, you can always ask members to PM you for the information or links 😊

[Fra22-57]

The one I use is ibroprofen gel 10%

[Elaine200756 in reply to Fra22-57]

Mine's the same

[Yassytina FMA UK Volunteer]

I use bio freeze and now I am using Boots own make, I’ve also used ibuprofen as well. Anything that can take the edge off, normally when I’ve walked too much , I agree with the others try keep moving , I always rely on a soak later in the day in the bath It really does help me personally relax the body and always keep a supply of my Epsom salts to put in. Always check with your pharmacist if on any meds x

[Jaykaydylanmack]

Hi ya Karen,

Yes I've been using a cream called capsaicin for nearly 2 years now and you will get that on prescription from your GP, what it does is, and I don't want this to put you off, it creates a burning sensation on your skin when you use it, but in having the burning sensation it then takes away or dulls the fybromyagia / nerve pain that I have, so although your still in pain, it's a very much welcome relief from fybromyagia / nerve pain so it gives you a wee break.

The other things I would recommend to you to use right away is lidoquaine gel pain relief patches, they are large gel patches and have 5% lidoquaine in them so it's like the stuff you would get in an injection from the dentist to numb up an area! Well these are my saviour when I'm really bad, when I feel as if every single bone in my hands and feet are all shattered and broken and I mean every single bone, the pain is absolutely horrendous and I get myself one of my pain patches and I cut it in half as you are only allowed 1 patch and only allowed to have it on your body for 12 hours max, I put half on each hand and within half an hour my hands are numb ish and the pain is lessoned considerably, these too can be prescribed by your GP on prescription, neither of what I have mentioned is available over the counter so make an appointment with your GP ASAP to discuss suitability for both of them, I'm sure they will both be a great relief to you and you will love them as much as I do.

If I can help with anything else then pop me a wee PM back, happy to help anyone not suffer as I have.

Take care and stay safe now.

All my love LC.

[KimiJay in reply to Jaykaydylanmack]

OMG! This sounds awful! You need hands to do everything. Glad you have found something that helps a little. I hope more things can be found ... a complete cure for instance!!!

[Jaykaydylanmack in reply to KimiJay]

Hi ya kimijay,

Yeh me too, a Complete sure would be heaven!! Excuse the pun there. Lol.

But my side of things I seem to have been incredibly unlucky as I have 3 diagnosis.

1st is fybromyagia

2nd is idiopathic peripheral neuropathy

3rd is MGUS, and actually MGUS comes with symptoms of nerve damage but the 2nd diagnosis is actually nerve damage so I have a double wammy of it, it seems, so the pain is just awful, some days more bad than good, I just feel as if I can't go in, I can't live, the pain is so intense, it's a throbbing, knawing, drilling bone pain and it's just unbearable, I used to be a really strong person once but on a bad day, I realise how weak I really am as I'm not fit to fight anything at all when the pain is at its worst.

On a more positive note, I've been offered a rehabilitation place with the chronic pain management clinic, I don't have a date or anything, they have to carry out another medication review first, I've managed with the help of my GP to wean myself off gabapentin so I used to take 3600mg per day and now I'm only on 1800mgs per day which is half, and now my job is to wean myself off M. S. T. Which is 12 hour slow release morphine tablets, I'm working on that now, I'm iminantly in the occupational health process of loosing my job because of ill health as its a struggle to get through 1 day never mind work and I absolutely adore my job, so that's me lost 24K a year, but as my dear family and friends keep saying to me" your health is your wealth" and boy are they true in saying that!!

Take care and stay safe xx

[KimiJay in reply to Jaykaydylanmack]

Hi Jaykay... - Punnily enough, angelic beings should be able to help with the heavenly side then! I have interactions with this 'otherness' and call them the BOL - (Beings' of light). Met this energy after my first Reiki attunement and went mad on magenta because the colour kept visually breaking in my mind's eye like a flood and it felt soothing and intriguingly special. - I had to google the second two of your conditions, so I will ask if you have ever done the 23and me ancestry test? It's an American company who have a database for people all over the world and include one on hereditary conditions you pay extra for - Turns out I am really high on Neanderthal genes! May explain lots! Maybe this health thing they do in addition to relatives and ancestors could at least reveal where your conditions come from - It is/is it - supposed to be possible to switch off some genes??? I'm sure that's coming one day. - Meanwhile you seem to have already achieved much in spite of all your setbacks and pain if you have had a job you really love. Can you channel that knowhow into your creative or intellectual life when you are up to it? Or just keep a journal that includes your memories and ideas so you can remember and comment on those experiences (and continue fostering your sense of humour.) Your family and friends sound great. - Supportive, loving and wise. Health certainly is wealth and you've given me the idea that I could put together a photographic record of when I actually did lots of stuff! So thanks - that will be helpful for me. - One thing you could try if you don't use acupuncture is the tiny do it yourself Korean hand magnets you can get from amazon. I have used them in the past to stick on places that hurt on me. You can google for meridian positions etc. One that does work, I know for sure, is the one for 'urgency'- on the palm taking a line from where the thumb is joined to the rest of the fingers at its base and across to the first line that runs down to the wrist - about one and half inches up from the wrist. It's worked for concerts and journeys and taken away some of the anxiety. Some people just stick them with their bit of plaster where the pain is greatest. Just a thought! - Meanwhile, ask your GP, who sounds like a quite a helpful one, what they think of NMN. It helps replenish a natural substance in the body we don't always get enough of even though we make it ourselves. Good for the 'just a bit elderly' too like me. - I'm sitting here typing plugged in to an oxygen concentrator for an hour or more. It's a fairly new experiment my son and I are trying!!! Quite nice! - Good luck meanwhile with the pain clinic and may you find the wealth under that rainbow of hope! You may actually meet some lovely people too. Hope so. xx

[Arymretep]

I find deep heat cream and patches work for me 👍

[Latics1989-90]

HiI'm so sorry you are in so much pain. I'm thinking of trying the patches because my other pain meds aren't brilliant. The only one that takes the edge off a little is oramorph. Maybe you could ask your GP about this

I had to take ill health retirement 4 years ago. I absolutely loved my job and still see my friends who I worked with. My boss tried everything to keep me but all to no avail. It was the right decision,I just couldn't have carried on . I'm far worse now than I was then. I'm going to ask my GP if she will prescribe gabapentin and ketamine cream.

I really hope you get some relief soon. No sleep because of pain is a nightmare and I'm sure a lot of people suffer with this too.

Take care xxxx❤️💕

[Elaine200756]

Hi Karen, I am prescribed an ibuprofen gel to use 3x a day

[AllthatGlitters]

Ibuprofen gel 😀