Covid positive will I be eligible for antiviral treatment?

[Daisydrawing]

Hi I tested positive to covid 5 days ago. Had most of the symptoms, fever, shivering, excruciating headache, blocked nose, cough, pain in neck and all along spine, loss of appitite, Fatigue ++This was the first few day. Gradually these symptoms subsided except for the fatigue, and fuzzy head. I now so so weak. My oxygen sats are 96 to 97% . Not sure whether to contact GP to see if I am eligible for antiviral medication I also have asthma which has been problematic recently but okay since positive to convid. Not sure if covid is going to make the fibro much worse in the long run.

[Dizzytwo Moderator]

Hi there, I am sorry your feeling so poorly. Unfortunately no one here is medically qualified to answer your question. You really must speak with your GP. He/she is the only person who can answer your question. And provide medication or further treatment if you need it. Wishing you a speedy recovery xx

[Daisydrawing in reply to Dizzytwo]

Thank you. I wondered if anyone else here with fibro have been eligible for antiviral treatment?

[Dizzytwo Moderator in reply to Daisydrawing]

Hi, If your doctor thinks you need that kind treatment I guess they would give it to you. Not really sure what you mean by been eligible for it.

Do you mean because you have fibro? If so I have never heard any treatment not been given because of fibro. I certainly have never been refused medif needed and I've have had fibro for 40yrs.

[Daisydrawing in reply to Dizzytwo]

This is what I mean by the word eligiblenhs.uk/conditions/coronavir...

[Dizzytwo Moderator in reply to Daisydrawing]

Have you had your covid jabs?

Having fibro would not stop you having a covid or a flu shot.

[Daisydrawing in reply to Dizzytwo]

Yes all 3 covid jabs

[Daisydrawing]

Thank you. I am waiting for the surgery to call me back. I think the treatment works best within the first 5 days. I dont think I will be eligible, I just dont wabt to feel worst than I have been with the fibro in the last 4 months.

[desquinn Partner Volunteer FMAUK Trustee in reply to Daisydrawing]

Fibro will not make you eligible for the early AV or MCAB treatment but certainly in Scotland you would already know if you qualified for it as you would have had a letter in past 6 months saying you are in the CEV group and this treatment will become available.

Also further to this, the process is clinician / NHS driven and not left to the patient. If you are eligible they will call you and arrange you to visit the clinic or have the meds delivered to you dependent on type of treatment.

[Dizzytwo Moderator in reply to desquinn]

Ahh I see. Thanks for the explanation Des 😊

[Daisydrawing in reply to desquinn]

Thank you for this information. Very helpful.

[Dinkie]

I am eligible for the antivirals as I am part of the ONS research into Covid programme. However the antivirals to be effective must start immediately upon positive test result. I've been having monthly blood tests and swabs, with the results emailed to me. The blood test basically measures antibodies and puts the results into one of 3 catagories. Been a very interesting study which is still continuing.

[Daisydrawing in reply to Dinkie]

That is really interesting to be part of the ONS research covid programme. I have missed the boat for the antivirals to be affective. I wont bother trying to get them. Hopefully with a lot of rest I can ride it out as just want to sleep all the time. Did you volunteer for the research or did they approach you?

[Dinkie in reply to Daisydrawing]

Hopefuly you will feel better son. May be worth speaking to your GP about the antivirals nothing ventured nothing gained. Not exactly sure how I got on the programme, they contacted me out of the blue and asked if I would be willing to join. Seemed to be a good idea at the time as nobody really knew what Covid was all about. Don't really enjoy taking my own blood but it's all in a good cause.

[Daisydrawing in reply to Dinkie]

Well done for vounteering on the research. Its really good to be part of it and they can keep a close eye on you. I would have defineately taken part if offered. I have managed to avoid getting covid until now😔

[Dinkie in reply to Daisydrawing]

wishing you a speedy recovery. I think it is inevitable that I will get it sooner or later. I work and meet members of the public on a daily basis and our company has just removed all the screens. To say I am furious goes nowhere near. I asked the boss why he had removed the screens when the local rate of covid is twice the national average and he just replied, I spoke to the team and nobody has a problem with them coming down. Well guess what I have a problem with it.

[Daisydrawing in reply to Dinkie]

Thank you. I hardly go out because my fibromyligia causes servere fatigue. So fed up because only a month ago I got a bad case of Noravirus while on a weeks break to the Lake District. That is outrageous that your company have taken the screens down when cases are so high at the moment and NHS is near crisis mode. The NHS are asking the government to put up more restrictions again. It is clear tgat herd immunity dies not work with this Covid pandemic, which is far from over. Can you complain to occupational health that you need the screens up. Can I ask what your job is?

[Dinkie]

No point complaining mores the pity. Just seen as a trouble maker and he says he's gone with the majority who want the screens removed. He just doesn't understand fibro, his answer is well we are all vaccinated and you've had your third vaccine and the ONS study report says you have high level of antibodies. We all know t hat doesn't stop one catching covid. I'm in retail specialising in medicines for parasitic control in farm/equine/small animals.

[Daisydrawing in reply to Dinkie]

Do you where a mask at work? A small gesture of protecting yourself. Glad I dont work for anyone anymore

[Dinkie in reply to Daisydrawing]

Mask and gloves. I’m the only member of staff who does🙄☹️ I’ve got a few lateral flow tests as I do test x2 weekly just in case.

[Daisydrawing in reply to Dinkie]

I hope your colleages understand your health situation even if your manager does not. Good luck and take care x

[Hidden]

Hi. Had all my jabs. And have felt literally knocked down by each. Now I m unable to “get what I got “from my body 6 months ago. Had 70% of my fibro sorted till the jabs. Now back to 25%. And some new ones.

I ve felt so bad , I signed the euthanasia petition.. just in case.

It’s just a new challenge. 😁🙄😁x

[Simplydivine1]

Hi there I actually am eligible for new treatments, I got sent a special testing kit and told to send it if I get symptoms then someone will contact me about it. I think only random people were picked, I do have asthma and had covid in 2020 which has affected it badly and my heart too. I’m currently waiting to see the long covid clinic, I’m not sure if your GP can help with it but I really hope you feel better soon and it’s not too bad for you x

[Daisydrawing in reply to Simplydivine1]

Thank you doe your information. I am pleased to hear you are eligible. Interestingly my asthma gas not been affected but I was having a lot of asthma problems a couple of weeks before I got covid.

[KimiJay]

Take heart DaisyD. Chances are after that barrage of symptoms your body has made its own set of antibodies, apart from the ones from the vaccinations. You've done very well to come through all that and are in good company with others. Sounds like you may be worried that something like Long Covid might make your fibro symptoms worse.... Well! Because of Long Covid the Medical Profession is no longer taking too little interest in 'invisible' illnesses. - It's cynical but suddenly we are all part of a broad area of 'new' thinking. Proper and extensive research is going to be made because the ease of employing enough workers could be seriously affected and money talks more than our tears. Fibromyalgia will no longer be a poor relation to other more visible diseases. - Took me a while to get over omicron after Christmas but I feel just fine now and the enforced rest was helpful in the long run. Ease back slowly into life. Wrap up and sit in the sun if you can and keep hydrated. Hope you feel better soon.

[Daisydrawing in reply to KimiJay]

Thank you so much for your words of encouragements. That really helps🙂 My latest symptom is very irritating itchy rash that comes and goes. Piriton has been knocking me out further. I did manage to walk down to the beach yesterday. Which felt bliss. I will hang in there. And I agree our invisible condition is getting noticed now by the medical profession. When I had my last jab a very caring nurse said she was concerned for me about having Fibromyligia and the effect the jab will have on it. She gave me time and explanation before giving me the jab which was ultimately my choice.

[KimiJay in reply to Daisydrawing]

Good for that nurse! She obviously uses her brain rather than just accepting everything without challenging it. - I take piriton too sometimes. More at night times now to help me sleep than for rashes etc. It certainly does knock you out the next day and it's anticholinergic and makes my brain fog worse so I take Spanish sage oil and or MCT oil to give my brain a bit of a re- boot. I am also taking NMN - morning only as it can make you too active at night. It is anti ageing! I had an insect bite on the inside middle bit of my left middle toe earlier in the week. Was so small but was driving me crazy at night. But , the Piriton fixed it. After three nights it was gone. - How great being by the sea. I live right inland but I'm a bit wary of the discomfort of long journeys but I love my cd of waves on a beach. It's quite magical to listen too and it often helps me to sleep. When I'm really at the sea I find the cry of seagulls a bit much though, so enjoy your your beach! Maybe ask it to take all your pain away. I wish you more bliss.