Feeling useless and hopeless

[FibroGirlUK]

So, after months of not posting I have say that there is hope for us. I have a new Physio who has basically cured herself of fibromyalgia.

She has made leaps and bounds of improvement with my mobility and pain. However, on top of some exceptionally painful neck injections, I totally messed up.

Why do they never wait for the anaesthetic to take effect before plunging the steroids into your spine? It’s utterly ridiculous given our heightened pain response.

Two weeks later I had a Birthday massage. OMG! Champneys have a lot to answer for. The therapist completely ignored everything I said and hurt me. My last Physio appointment was all about putting things right.

I will post more about the potential recovery process once I am farther down that road. There is hope, but don’t stop using your pain relief anytime soon.

[sweetpea21]

Help where are you located? I need that physio right away! Hope you start to recover soon. Hugs xxx

[FibroGirlUK in reply to sweetpea21]

Hampshire

[Miss68]

Bless you Hun, I really hope you start improving again soon. Champneys therapist did the same thing to my daughter. She’s got an ongoing injury to her shoulder and the therapist ignored everything my daughter had said and caused more pain than ever. I’m under the impression that the staff aren’t actually qualified in massage. It makes such a difference when someone actually listens to what you’re suffering with before beginning any treatment doesn’t it? I really do hope you get back to the level of recovery that you had reached before the incompetent therapist laid her hands on you. Take care and love and hugs xx🤗

[Midori in reply to Miss68]

There is a big difference between a masseuse at a spa and one who has a background in medicine. As a former nurse I also (and separately) hold a massage qualification. I have researched different styles of massage (including Shiatsu), and many in inexperienced hands can be injurious to folk with joint problems such as Hypermobility.

Your Physio is the best person for help with this. In my researches I discovered that Physiotherapists were originally called the Guild of Masseurs. (in the early 20th century). I have an early textbook of theirs (1905), which also includes cupping; which is something else which has become fashionable again.

[FibroGirlUK in reply to Midori]

My physio is amazing and literally has healing hands.

Being a sportswoman she totally understands that my hyper mobility makes me appear better than I am. Fortunately all of my previous athletic endeavours seem to make me a very responsive patient. Having had fibromyalgia she is never going to push me too far. She looked at my musculature when I walked in and asked why I wasn’t rowing with the local cutter squad, by the time I walked out she said; “Don’t even think about rowing with us yet!”

I’m never going to give in to this, and she understands that a foam roller used on a bed to stretch my muscles is better than nothing. A foam roller on the floor is too aggressive at the moment. I will get there, but step by step.

[FibroGirlUK in reply to Miss68]

Thank you. I’m slowly getting better, but it has caused so many problems.

[Bobby3]

Yes these a physio in USA who states he has cured Daughter of Fibromyalgia he has a book 📖 out on it my massage guy works along his lines.

It helps great deal but very painful 😖 but he is away a lot like at the moment when I really could do with some help.