Feeling hopeless

[Rjsurk1]

The last few weeks i have been in a bad place in my life due to the pain im in . I have fibromyalgia and neropathy and with the weather being the way it has been here it has been flairing up my fibromyalgia and that sometimes flairs up my nerves . I hate having these problems and if anyone else has these problems what do you do to relieve pain ? I appreciate any suggestions .

[Mags72]

Hiya, sorry your in so much pain it does bring you down. I've been getting lots of pain for the last 9 months and GP thinks it's nerve damage and started me on Gabapentin. This is only my 2nd day so abit early to see if they work!! Normally I would take co-codamal or ibrufen but they didn't help much. Taking a hot bath with essential oils can help for a while. Hope you feel better soon.

[Mandypandy1969 in reply to Mags72]

I am on 600mg of gabapentin 3x a day and still getting this soreness. Do you think mine is nerve damage? Can't stop thinking and worrying about what this sore prickly hot feeling is. Xx

[2048artist in reply to Mandypandy1969]

I want to share that after a very bad reaction to chemotherapy drug taxotere 15 yrs ago I developed peripheral neuropathy/ fibromyalgia which IS nerve damage. Usually to the brain/spinal cord. Today most neurologists know this but I tried everythingunder the sun. Therapeutic yoga really helped along with Elavil at night . I had to take strong pain pills for yrs but nerve damage doesn't respond to pain meds forever. Gabapentin does very little for me&also caused hair thinning so badly. Try foot/led massage, Magnesium spray at night. Also drink apple cider vinegar with honey warm water every night

I pray this helps some.

[Mandypandy1969 in reply to 2048artist]

I have some cider vinegar at home. xx

[Mags72 in reply to Mandypandy1969]

I'm the same mandypandy1969 I'm not convinced mine is nerve damage but maybe something to do with my bones but in saying that I do get symptoms of nerve damage, I just don't know it's so confusing. How long have you been on Gabapentin?

[Mandypandy1969 in reply to Mags72]

Blimey. erm about 6 months. 300. 3x a day for a start. went up to 400 3x a day, then 500 3x a day and a couple of weeks afterwards up to 600 3x a day. seeing rheumatologist again 26th October as I was put in a 2 month course of steroids in July. 20mg for 2 weeks and tapering every 2 weeks by 5mg. been given those due to be tested for sjogrens and the lip biopsy being inconclusive. if they have helped which they have a bit, not got the stiffness quite so much in the mornings and I am getting up better. still very fatigued. arms and legs like lead weights when trying to use them. etc etc. xx

[Mandypandy1969]

I don't know if my sore, prickly pain I get is neuropathy. At the moment is it all over my back, arms, face, forehead, eyelids. Xx

[2048artist in reply to Mandypandy1969]

Sound like fibro. It effects my face back etc. Usually prickly pain is inflammation so cut down on sugar. Drink apple cider vinegar combo with warm water &honey. Magesium spray on all areas except face. I put warm cloths on my face . I hope this helps some.

[Mandypandy1969 in reply to 2048artist]

my rheumatologist said if steroids helped that he would be putting me on mycophenolate. d.m.a.r.d. drug long term. xx

[Mandypandy1969]

Thankyou for that advice. much appreciated. sending you hugs. xx

[Lizzy-m]

Oh sweetheart you have my every sympathy. My only advice is to be nice to yourself, put your needs first. I know this is a difficult thing to do but it is not a luxury it is a necessity with this awful illness. Sending love ♡

[Mandypandy1969 in reply to Lizzy-m]

it's so hard. had to cancel my weekend away playing my sport. can't do it anymore. hugs to you. xxx

[Sarahvit]

Hi Rjsurk1, I know what you are going through. I too have fibro and neuropathy not to mention the other stuff that goes along with fibro. All this week has been high pain days and my psyche has taken a hard hit with all the pain. There is only so much our psyche can take before breaking down and depression hits. Prayer 🙏 and meditation 🧘🏻‍♀️ helps takes the edge off, a heating pad helps with the back pain. If you are able to soak in a hot tub (if you have interstitial cystitis then don’t do it) with a drop or two of lavender or rosemary essential oil can help. There are others that I can’t recall it has been years since I used essential oils all mine has expired. Yes they apparently go back after so many years. 🤷🏼‍♀️ Anyway oh listening to relaxing music 🎶 or nature sounds can help too. I hope some of this can help you too. Having someone to talk to will help and also a good massage 💆🏻 would help a lot. 🤗💕🦋🌸🌿