extreme body temperature changes - Fibromyalgia Acti...

Fibromyalgia Action UK

59,987 members67,154 posts

extreme body temperature changes

kriss1 profile image
12 Replies

Hello All, i am new here. i wondered if anyone experiences the feelings of freezing and burning up. Similar to the chills and fevers when you have the flu only no sickness. i am constantly going through cycles of this as well as waking up 2 to 3 times nightly soaking wet. this is new to me i am generally cold or get cold easily so this whole change up is really disturbing.

Written by
kriss1 profile image
kriss1
To view profiles and participate in discussions please or .
Read more about...
12 Replies
rosewine profile image
rosewine

Yes many fibromites complain if this I say that my thermometer has only two settings boiling or freezing I don't seem to have anything in between. I layer my clothes because of that. I can also have freezing legs, boiling feet and a warm top half.x

cespinosa profile image
cespinosa

Hello! I'm alot like rosewine, my head can be dripping wet but it's cold out. I can be frezzing and hot with in five minutes.

Miss68 profile image
Miss68

Hi kriss1, welcome to our lovely, friendly site. It's a pleasure to meet you Hun. Yes like you I get extremes of temperature and waking up a few times in the night. It's very frustrating isn't it? X

robpw profile image
robpw

Yes the amount of times I can be sweating buckets even though it’s cold - I just say I’m having a hot flush - you do became more sensitive to changes in termperture too

For the moment I seem to have moved away from the too cold and am constantly too hot ---- but that could change at any time. I've found the only thing to do is wear layers. Strangely, I've been more stable since lighting the log burner each day and avoiding the central heating, but that could be entirely unrelated.

Very uncomfortable if a room is too warm, feel as if I can't breathe, as in visiting hospital yesterday.

ShootingStars profile image
ShootingStars

Oh, yes, I went through this. This was when my thyroid hormones were both too low and at the bottom of the range. I also have Hashimoto's. I was not given medication in the begging and at that time, I didn't have temperature problems. I went untreated for many months. Over that time, my thyroid hormones dropped severely. My body temperature constantly went from too cold to too hot. For me, mainly I was too cold. Have you had your thyroid thoroughly checked?

I don't know what your age or sex is, but is it possible that this could be hormone fluctuation? Menopause or testosterone problems?

Nipper11 profile image
Nipper11

Welcome to the community. These symptoms have been occurring for me over a period of year's . its only now I have started to have further investigation supported by my doctor with blood tests . They have given me some tables which have suppored my temperature getting too hot. Which has so improved however I still go freezing cold. You should talk to your GP and have some blood test arranged. Good luck and big hug. Xx

Jan101 profile image
Jan101

Hi sweetie I had this earlier on in the year and I would wake up in the morning soaking wet my hair pjs and my bed linen. I had all sorts of blood tests done and everything came back clear. My gp could not tell me what it was. Over a period of time it went away and now just the last few days it’s back but not as bad. I have tried to google it but I still cannot get a full explanation to what it really was. I truly hope that it doesn’t last to long for you or you can find out the cause of it. Take good care of yourself sweetie. 🤗🤗🤗🌹🌹🌹xxx

brightnbreezy profile image
brightnbreezy

Yes, I too have experienced this sort of thing over the last year or two. Even though I keep the house cool I still break out in heatwaves while I do housework quite slowly. And I almost always experience cold sweats across my shoulders/upper back even when I am fairly still, not to mention waking at night in a saturated state. But strangely, only intermittently, throughout the year. I find eating early (4:00/5:00 pm) helps. And try to keep sugar out of the menu. Good luck to you.

KrissyB profile image
KrissyB

Hi Kriss welcome to the forum, from one Kriss to another! I suffer from temperature changes so much so that I joke my personal thermostat is broken. I dress in layers so I can keep warm or strip off as necessary. My thyroid and hormones are fine, I guess it’s one of Fibro’s special “gifts” to me. Well thanks indeed!

AnnieOakley-62 profile image
AnnieOakley-62

Hi Kriss

I too have the hot and cold flashes. I am 63, female and have had them since I was 48. At age 54, while on Femara (for cancer) I had them real bad for the 5 year course, but after finishing that med. they never went away! I never attributed them to the fibromyalgia, but after listening to all you wonderful people from “across the pond” am realizing it may contribute largly to this problem.

I wear a tank top in the winter and keep taking the sweatshirt off and on. I keep it so cool in the house in the winter, I think even the cats are cold.

Cecy2 profile image
Cecy2

hi I have the same its harder to manage

Not what you're looking for?

You may also like...

Body temperature

Hi all just wondering if this is a fibro sympton I just can't seem to keep my body temperature...
paulapips64 profile image

Body Temperature and Hypothyroidism

Hi, following on from a recent question I asked, I have thought several times in my life that my...
Kirby profile image

Body Temperature

Morning all, I'm new to this I was only diagnosed with fibromyalga in Jan this year. I was...
Z0e23 profile image

Body temperature

Does anyone ever just suddenly get hot and sweaty. Hate it. New here. So many symptoms and pain...
Carly448 profile image

Regulating body temperature

Hi recently been diagnosed by rheumatology and gp has having fibro, after many years of pain across...
TheOwl89 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.