Body temperature: Does anyone ever just... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Body temperature

Carly448 profile image
30 Replies

Does anyone ever just suddenly get hot and sweaty. Hate it. New here. So many symptoms and pain with fibro. Wish there was a magic pill to make it all go away. Hate even wearing a bra.

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Carly448 profile image
Carly448
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30 Replies
Dinkie profile image
Dinkie

Yep - wonky thermastat that's me. Sometimes the head sweats are beyond a joke. then there is the freezing cold feeling when everyone else is in T shirts and moaning how hot it is. Seems I can't win. I bet most fibro folk would admit to stripping off day clothes and putting pyjamas on as soon as they get in the door! I hate wearing anything restrictive which is quite a problem when I have to wear uniform for work. :( Haven't got any miracle cures I'm afraid. As for the magic pill just got to keep hoping on that one!

Ramjets profile image
Ramjets

Oh yes and I get particularly hot and bothered when putting the bra (straight jacket) on. That's why I welcome the cooler weather as I can't bear getting overheated. Fibro just keeps on giving doesn't it! Maybe we should just burn all our bras, we could have a special event, The Great Fibro Fire where we all get together and incinerate our pesky underwear lol x

Dinkie profile image
Dinkie in reply to Ramjets

oooh burn our bras - would love to but think I would get sore knees without my bra ;) At least we are not alone in our thinking.

Ramjets profile image
Ramjets in reply to Dinkie

Ha ha I know what you mean - just throw them over your shoulders like I do lol x

Dinkie profile image
Dinkie in reply to Ramjets

That should be our theme tune - Jessie Matthews sang :-

So, over my shoulder goes one care

Over my shoulder go two cares

Why should I cry, it's blue above

I'm free at last

So was she talking about burning her bra - somehow I doubt it but it doesn't stop us adopting her song :)

Ramjets profile image
Ramjets in reply to Dinkie

Ha ha love it! x

Carly448 profile image
Carly448 in reply to Dinkie

Would love to burn all my bras. Lol

Suegault profile image
Suegault

Same here,hate it,especially the sweaty head and face!!

Bobby16 profile image
Bobby16

I'm weather sensitive that's what I say

in reply to Bobby16

Good one bobby,that's like I'm not fat I'm under tall lol xx

Grrr I hate it speacially when I'm out! OK so I look like I just got out the shower and !!!!....

Carly448 profile image
Carly448 in reply to

Seems to happen as soon as out of shower

in reply to Carly448

Yes an on the rare occasion I go out I'll get all hot getting ready !

We've had bra chat a couple of times lately,like iv side bras are the invention of the devil lol

I actually managed to get some bralet things an they fit nice an hold my bangers up :0)

Yip due to my fibro I have no body temperature thermostat so I can go from boiling to freezing a hundred times a day. I also can't stand heat or cold. The joys !!

in reply to

Hey how's u an your day been ? Did u manage to get out? Xx

in reply to

Hi lorrs no not today I'm seriously starting to climb the walls. Will get out tmoro. Just didn't want to chance going out today n it was lovely as well. How ru ? Xx

in reply to

I replied an its disappeared that's the 3rd time that's happened today! Better luck tommorow, I'm not too bad thanks xx

My local tescos is always boiling! I hate having to go in there an primark is another one! Grrr

Dinkie profile image
Dinkie

me too but then again I was a lot smaller in those days!

Bobby16 profile image
Bobby16

I find I can't function in hot weather. I have a tower fan there good.i don't take a cup of hot chocolate to bed I take my tower fan. I have a blanket or heated glove on my left hand cause it kicks the Raynaud's off so I can be roasting and freezing all at the same time. Double whammy.

tallulah_blue profile image
tallulah_blue in reply to Bobby16

I sweat so badly just doing a little grocery shop, I've had ppl ask me am I having a heart attack and could the get me an ambulance.

I always have an icy cold drink if ever I'm going to have a hot drink or soup. I too go to bed with the air con, ceiling fan and pedestal fan trained on me and still I have night sweats that drench my head and wet the pillows & sheets.

Bras are pu bn lic enemy number one. I have taken to nakedness during both night & day at times (which helps). It seems the most minor of exercise or stress will set off the rivulets.

No pills help. All the docs scratch their heads - no explanation from any of them

Tallulah_blue

Bobby16 profile image
Bobby16

Oh what's a bralett?

Killyraw profile image
Killyraw

Yes, hot then cold never really under control. I sweat under my eyes its not a good look, and generally I would be more comfortable if I could be naked but I done want to scare my few friends away😃

Mackembabe profile image
Mackembabe

Yes I think we aught to get a plumber in to sort out our thermastats your either freezing cold and can't get warm or you could fry an egg on us the life of a fibro warrior such fun lol

Love & Hugs

Xx

Bobby16 profile image
Bobby16

You could fry an egg on mine and do a tray of ice cubes at the same time. My brain must think what the hells going on.

spider555 profile image
spider555

My thermostat is wonky.

I'm going back to the Neuro hospital soon, for more tests.

Nutty-Tart profile image
Nutty-Tart

I too have intense hot/ cold spells but took me a while to realise it was fibro - well most of the time anyway. I say that because I am prone to water infections so don't always assume its fibro is what I am saying. I know we are all fed up of checking things out with a medic but sometimes you have to. I have had fibro about 20 years & it never ceases to amaze me how many different symptoms it has. All the best for the future.

eclegmata profile image
eclegmata

Definitely burn the bra...try wearing one of those sport bar tops & if it's Men-O-Pause as well,then try lemon & ginger tea. Mint is also a good cooling agent. (The wheat germ/lavender or mint pillows can help too) Wear natural fibres in layers,cotton,linen,hemp. I recently discovered that bamboo sox are apparently good for diabetics & I've found the cheapest at TKMaXX,all natural fibres again. Basically try stay away from too many synthetics.

Peace & perseverance

V

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