anyone experiencing utter fatigue pretty much daily when suddenly it hits you that you can not function anymore for few hours, is not tiredness is like something hit me in my head and I instantly need to lie down or fall asleep straight.
Another thing is very sudden body temperature drop, I get so cold very suddenly that my lips turns blue ish and my body temp is about 34.5/35 it takes a while for me to warm up with layers on and heating on.
Is this part of fibro do you think ?
Written by
Martina777
To view profiles and participate in discussions please or .
Joys of living with fibro. I ususually have to sit down and watch a film at that time. But when my wife comes in from work at 5pm it looks like Im being lazy. I still make the tea!
Regarding Temp. My suggestion go see the Quack and
Have Thyroid checked. And Blood sugar levels. Check Iron and B12.
All these could be linked with Fatigue too, although many fibros also have Chronic fatigue symptoms unrelated to anything measurable.
Maybe it's all normal and just how your brand of fibro chooses to manifest? If so, and your GP is happy, stop fretting.
Ooh, just a thought, could it be your age? Hot flushes appearing in reverse? It happens. We can probably put the fatigue in with that too? Again if you suspect the change, wise to get professional advice.
I’m 37 so not sure if age can play a huge role in this, no I don’t have hot flushes although few years ago I did but I believe this was related to my mental health pills at the time. I hate going to doctors I just didn’t find them useful at all at least most of them, is like having a chat with a wall in most of the times, just because they don’t know answer they believe is nothing wrong! Mind baffling. I had a blood test done not long ago and apparently it was all ok in that department
We kinda have to caveat consulting the Quack, just in case some folks are daft and don't get serious stuff checked out. I hate going too, about as much as they hate seeing me; It's so sad seeing folks lose the will to live, isn't it? I think we probably know, they can't do anything and I guess that is demoralising for them? I think like so many jobs, the Drs hoped Doctoring would be about really helping people, not just mostly, going through the motions.
I'd say, 37 could be around the age for starting symptoms of the perimenopause. It's a long long process. They say mid thirties to mid fifties is the wild spectrum with most starting in their forties. Depends if you are average? I think when it starts it's generally subtle and it's only looking back you might realise.
Regardless, reading up and arming yourself with sensible facts before you need them is useful. Too many women assume they know what's what and are woefully unprepared. Youtube has some great videos. The big regret women have about the menopause is that they wish they had known more about it before they were overwhelmed by it. Perimenopause and Fibro isn't oodles of fun so learning strategies of coping is the way to go.
I get this too suddenly hit with fatigue and I get cold too around 35 degrees too. I went to my GP and I had low folate, not sure if it's going to fix the issues but it might be worth having some bloods done just to rule out things that can be readily done to help
Do you shiver as well and is difficult to bring body temp back to normal ? Even under layers of clothes and blanket ? I get blue ish lips sometimes too is like mild hypothermia or something, you are right I will do blood test again
absolutely on both counts. It’s so frightening too. Takes me hours to get warm again when this happens. For me even temperatures like 13 degrees can set my teeth chattering and feel like my body amd mind are shutting down.
Exactly that! It feels terrible and it’s a newish think for me, I mean utter fatigue no but that coldness is, I wonder if it will pass with weather spring/ summer coming. I’m sending you my love ❤️
thank you Martina. We know how this feels but it’s not really possible for other non fibro or CFS to fully understand how the fatigue feels. For me I find this even more debilitating than the pain aspect of the condition
This is my experience, too. Not always the drop in body temperature, although that occurs at times. I'm well monitored by my GP surgery and there are no obvious answers to any of my many symptoms (I have other conditions, such as lupus, too). But I hope it makes you feel less alone to know there are others like you out there.
Yes you are right it doesn’t make me feel any better knowing that more people out there going through something that is unknown at the moment how to treat but it makes me feel better that I’m not alone , as before I knew anything about illness I felt real alone
hello yes I get that I could be on the bus and nod of even though I’ve had a good sleep I forget I’ve slept but that will go away for a while and I’ll feel refreshed again I get really cold to and I’m warm all the time despite having cold hands and feet then again I’m only skinny despite eating well I’m 45 kg at the doctors I’m 49 kg also I have always been an early bird sending hugs to you and anyone that needs it
Replies says it all , like someone’s flicks a switch and you hit that period of stopping resting or sleeping, I can be cold one minute and too hot the next, I think this is differently a symptom of Fibro , faulty temperature gauge we often say here. Perhaps mention too the doc about your lips turning blue Take care xx
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.