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utter fatigue and sudden body temperature drop

Martina777 profile image
21 Replies

anyone experiencing utter fatigue pretty much daily when suddenly it hits you that you can not function anymore for few hours, is not tiredness is like something hit me in my head and I instantly need to lie down or fall asleep straight.

Another thing is very sudden body temperature drop, I get so cold very suddenly that my lips turns blue ish and my body temp is about 34.5/35 it takes a while for me to warm up with layers on and heating on.

Is this part of fibro do you think ?

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Martina777 profile image
Martina777
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21 Replies
Golfer15 profile image
Golfer15

Hi Martina777, I suffer with this sort of fatigue too. It hits me like someone has pulled the plug out of me or my battery has worn out.

This happens about 3pm, so I can't work or do various activities.

I just take life slowly. Fortunately I don't have many responsibilities at home.

I don't know about the temperature thing I'm always hot.

Take care David

dannyxox profile image
dannyxox in reply toGolfer15

I'm the same David when it hits 3pm I need to lie down like you say it's as if someone flicks a switch and that's me drained.

Golfer15 profile image
Golfer15 in reply todannyxox

Joys of living with fibro. I ususually have to sit down and watch a film at that time. But when my wife comes in from work at 5pm it looks like Im being lazy. I still make the tea!

Al10 profile image
Al10

Regarding Temp. My suggestion go see the Quack and

Have Thyroid checked. And Blood sugar levels. Check Iron and B12.

All these could be linked with Fatigue too, although many fibros also have Chronic fatigue symptoms unrelated to anything measurable.

Maybe it's all normal and just how your brand of fibro chooses to manifest? If so, and your GP is happy, stop fretting.

Ooh, just a thought, could it be your age? Hot flushes appearing in reverse? It happens. We can probably put the fatigue in with that too? Again if you suspect the change, wise to get professional advice.

Martina777 profile image
Martina777 in reply toAl10

I’m 37 so not sure if age can play a huge role in this, no I don’t have hot flushes although few years ago I did but I believe this was related to my mental health pills at the time. I hate going to doctors I just didn’t find them useful at all at least most of them, is like having a chat with a wall in most of the times, just because they don’t know answer they believe is nothing wrong! Mind baffling. I had a blood test done not long ago and apparently it was all ok in that department

Al10 profile image
Al10 in reply toMartina777

We kinda have to caveat consulting the Quack, just in case some folks are daft and don't get serious stuff checked out. I hate going too, about as much as they hate seeing me; It's so sad seeing folks lose the will to live, isn't it? I think we probably know, they can't do anything and I guess that is demoralising for them? I think like so many jobs, the Drs hoped Doctoring would be about really helping people, not just mostly, going through the motions.

I'd say, 37 could be around the age for starting symptoms of the perimenopause. It's a long long process. They say mid thirties to mid fifties is the wild spectrum with most starting in their forties. Depends if you are average? I think when it starts it's generally subtle and it's only looking back you might realise.

Regardless, reading up and arming yourself with sensible facts before you need them is useful. Too many women assume they know what's what and are woefully unprepared. Youtube has some great videos. The big regret women have about the menopause is that they wish they had known more about it before they were overwhelmed by it. Perimenopause and Fibro isn't oodles of fun so learning strategies of coping is the way to go.

Giraffegreen profile image
Giraffegreen

I get this too suddenly hit with fatigue and I get cold too around 35 degrees too. I went to my GP and I had low folate, not sure if it's going to fix the issues but it might be worth having some bloods done just to rule out things that can be readily done to help

Martina777 profile image
Martina777 in reply toGiraffegreen

Do you shiver as well and is difficult to bring body temp back to normal ? Even under layers of clothes and blanket ? I get blue ish lips sometimes too is like mild hypothermia or something, you are right I will do blood test again

Giraffegreen profile image
Giraffegreen in reply toMartina777

Yes, it's like having a fever but without the high temperature

Fibrooh profile image
Fibrooh

absolutely on both counts. It’s so frightening too. Takes me hours to get warm again when this happens. For me even temperatures like 13 degrees can set my teeth chattering and feel like my body amd mind are shutting down.

MrsMouseSJ profile image
MrsMouseSJ in reply toFibrooh

Yep.... It's pretty awful, isn't it?

Martina777 profile image
Martina777 in reply toFibrooh

Exactly that! It feels terrible and it’s a newish think for me, I mean utter fatigue no but that coldness is, I wonder if it will pass with weather spring/ summer coming. I’m sending you my love ❤️

Fibrooh profile image
Fibrooh in reply toMartina777

thank you Martina. We know how this feels but it’s not really possible for other non fibro or CFS to fully understand how the fatigue feels. For me I find this even more debilitating than the pain aspect of the condition

MrsMouseSJ profile image
MrsMouseSJ

This is my experience, too. Not always the drop in body temperature, although that occurs at times. I'm well monitored by my GP surgery and there are no obvious answers to any of my many symptoms (I have other conditions, such as lupus, too). But I hope it makes you feel less alone to know there are others like you out there.

Martina777 profile image
Martina777 in reply toMrsMouseSJ

Yes you are right it doesn’t make me feel any better knowing that more people out there going through something that is unknown at the moment how to treat but it makes me feel better that I’m not alone , as before I knew anything about illness I felt real alone

Animalover39 profile image
Animalover39

hello yes I get that I could be on the bus and nod of even though I’ve had a good sleep I forget I’ve slept but that will go away for a while and I’ll feel refreshed again I get really cold to and I’m warm all the time despite having cold hands and feet then again I’m only skinny despite eating well I’m 45 kg at the doctors I’m 49 kg also I have always been an early bird sending hugs to you and anyone that needs it

fibo profile image
fibo

Yes me too I feel to bad to write 🙃

klr31 profile image
klr31

Check your thyroid levels, B12, ferritin, folate and D. Get the actual results with reference ranges. You may have hypothyroidism.

Karen

Martina777 profile image
Martina777 in reply toklr31

When I had my last bloods done not long ago all of those was ok, but I do have high blood pressure and I’m on medication for that

klr31 profile image
klr31 in reply toMartina777

Are they optimal though? You need to get the numbers with reference ranges.

Yassytina profile image
YassytinaFMA UK Volunteer

Replies says it all , like someone’s flicks a switch and you hit that period of stopping resting or sleeping, I can be cold one minute and too hot the next, I think this is differently a symptom of Fibro , faulty temperature gauge we often say here. Perhaps mention too the doc about your lips turning blue Take care xx

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