anyone experiencing utter fatigue pretty much daily when suddenly it hits you that you can not function anymore for few hours, is not tiredness is like something hit me in my head and I instantly need to lie down or fall asleep straight.
Another thing is very sudden body temperature drop, I get so cold very suddenly that my lips turns blue ish and my body temp is about 34.5/35 it takes a while for me to warm up with layers on and heating on.
Is this part of fibro do you think ?
Hi Martina777, I suffer with this sort of fatigue too. It hits me like someone has pulled the plug out of me or my battery has worn out.
This happens about 3pm, so I can't work or do various activities.
I just take life slowly. Fortunately I don't have many responsibilities at home.
I don't know about the temperature thing I'm always hot.
Take care David
I'm the same David when it hits 3pm I need to lie down like you say it's as if someone flicks a switch and that's me drained.
Regarding Temp. My suggestion go see the Quack and
Have Thyroid checked. And Blood sugar levels. Check Iron and B12.
All these could be linked with Fatigue too, although many fibros also have Chronic fatigue symptoms unrelated to anything measurable.
Maybe it's all normal and just how your brand of fibro chooses to manifest? If so, and your GP is happy, stop fretting.
Ooh, just a thought, could it be your age? Hot flushes appearing in reverse? It happens. We can probably put the fatigue in with that too? Again if you suspect the change, wise to get professional advice.
I’m 37 so not sure if age can play a huge role in this, no I don’t have hot flushes although few years ago I did but I believe this was related to my mental health pills at the time. I hate going to doctors I just didn’t find them useful at all at least most of them, is like having a chat with a wall in most of the times, just because they don’t know answer they believe is nothing wrong! Mind baffling. I had a blood test done not long ago and apparently it was all ok in that department
We kinda have to caveat consulting the Quack, just in case some folks are daft and don't get serious stuff checked out. I hate going too, about as much as they hate seeing me; It's so sad seeing folks lose the will to live, isn't it? I think we probably know, they can't do anything and I guess that is demoralising for them? I think like so many jobs, the Drs hoped Doctoring would be about really helping people, not just mostly, going through the motions.
I'd say, 37 could be around the age for starting symptoms of the perimenopause. It's a long long process. They say mid thirties to mid fifties is the wild spectrum with most starting in their forties. Depends if you are average? I think when it starts it's generally subtle and it's only looking back you might realise.
Regardless, reading up and arming yourself with sensible facts before you need them is useful. Too many women assume they know what's what and are woefully unprepared. Youtube has some great videos. The big regret women have about the menopause is that they wish they had known more about it before they were overwhelmed by it. Perimenopause and Fibro isn't oodles of fun so learning strategies of coping is the way to go.
I get this too suddenly hit with fatigue and I get cold too around 35 degrees too. I went to my GP and I had low folate, not sure if it's going to fix the issues but it might be worth having some bloods done just to rule out things that can be readily done to help
Do you shiver as well and is difficult to bring body temp back to normal ? Even under layers of clothes and blanket ? I get blue ish lips sometimes too is like mild hypothermia or something, you are right I will do blood test again
Yes, it's like having a fever but without the high temperature
absolutely on both counts. It’s so frightening too. Takes me hours to get warm again when this happens. For me even temperatures like 13 degrees can set my teeth chattering and feel like my body amd mind are shutting down.
Yep.... It's pretty awful, isn't it?
Exactly that! It feels terrible and it’s a newish think for me, I mean utter fatigue no but that coldness is, I wonder if it will pass with weather spring/ summer coming. I’m sending you my love ❤️
thank you Martina. We know how this feels but it’s not really possible for other non fibro or CFS to fully understand how the fatigue feels. For me I find this even more debilitating than the pain aspect of the condition
This is my experience, too. Not always the drop in body temperature, although that occurs at times. I'm well monitored by my GP surgery and there are no obvious answers to any of my many symptoms (I have other conditions, such as lupus, too). But I hope it makes you feel less alone to know there are others like you out there.
Yes you are right it doesn’t make me feel any better knowing that more people out there going through something that is unknown at the moment how to treat but it makes me feel better that I’m not alone , as before I knew anything about illness I felt real alone
hello yes I get that I could be on the bus and nod of even though I’ve had a good sleep I forget I’ve slept but that will go away for a while and I’ll feel refreshed again I get really cold to and I’m warm all the time despite having cold hands and feet then again I’m only skinny despite eating well I’m 45 kg at the doctors I’m 49 kg also I have always been an early bird sending hugs to you and anyone that needs it
Yes me too I feel to bad to write 🙃
Check your thyroid levels, B12, ferritin, folate and D. Get the actual results with reference ranges. You may have hypothyroidism.
Karen
When I had my last bloods done not long ago all of those was ok, but I do have high blood pressure and I’m on medication for that
Are they optimal though? You need to get the numbers with reference ranges.
I do get that as I always ask for the results to be send to me via email and check myself so they are usually in the ok range I would say
Worth joining the Thyroid UK group on here and posting your results for opinions on both thyroid and vitamin results as "In range" is very different from Optimal 
Replies says it all , like someone’s flicks a switch and you hit that period of stopping resting or sleeping, I can be cold one minute and too hot the next, I think this is differently a symptom of Fibro , faulty temperature gauge we often say here. Perhaps mention too the doc about your lips turning blue Take care xx
Hey Martina777I absolutely know at you mean about the sudden fatigue. I feel like it's a wave of tiredness that comes out of the blue.
I could be anywhere and I would want to just drop to the floor.
I always remember years ago when I lived in Spain, My husband and myself was shopping in the supermarket and I had one of those waves and we had a trolley full of shopping which we had to leave and go back to the car as I was telling my hubby that I am going to lie down on the floor. The thing is with me, although the intense tiredness absolutely floors me if I laid down i coud not for the life of me go to sleep. So for me its like a body that feels exhausted a d my eyes feel very very heavy.
I do get times (rarely) of not feeling tired. In fact I've just had a few months of having no tiredness...but it's soon came back 2 weeks ago.
I was supposed to be going out tonight but I'm so so so tired that I've told hubby to go still.
We went out last night for my birthday and I think that's what's made it even worse for me.
So if this is what you endure for me it's debilitating and affects the choices I make.
Do you not get any times without the fatigue ??
Hi I barely get those days without fatigue, although I do every now and then. But most of the time I feel like I can’t keep my head straight is just exhaustion! If I do some more activity the day before I definitely will pay for it next day with my fatigue and hurting body. This is just so debilitating I struggle to cope and sometimes the smallest chore can be such a challenge for me. Other day I feel ok and I want to do some house work and other stuff and after that I feel like I have ran 10k marathon
I think I've learned that for me I can do one task a day and the next I rest that's my routine. As u say if you do something one day you'll know for sure you'll suffer the next and that night I would get little sleep. Yeah me too with smallest of jobs that have just as much punch as a bigger jobs. I choose what job I want to do or need to do.
Do you get much sleep at night ??? Not that it helps with me I wake up feeling as if I'd not been to bed.
Can you rest at all ??
That’s the problem no I don’t, so I can fall asleep easily, but I can’t stay asleep, I wake up multiple times for toilet brakes over night, when I try turn over my lower back is so tense and hurting that wakes me up every time. And then I wake up at 7am feeling like dead. If I rest ? I don’t think I do, as I rarely feel energetic, I must say I have lost any sense of life. I live from day to day but I’m not happy human. My animals and my husband are the greater thing in my life without them I probably would be long gone. It’s very sad that many doctors just keep brushing you off and we feel sense of being lost somewhere in abyss. At least I do 😔
Throat, joints, night pain and fatigue ...
Body jumping and twitching
extreme fatigue in arms and jaw 
Fatigue and pain....
Swollen limbs and body
