Fibromyalgia Action UK
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Hi All

Hi there, I found this site by searching for pain relief! I have ME which started around 8 years ago. Over last few years it was getting worse but I only experienced pain when I was relapsing. I had a crash in my symptoms last November and the pain didn't go. In fact it got worse.

I was diagnosed as having fibromyalgia as well as ME in April of this year and was given amitryptaline which reduced the pain to a dull ache but made me feel groggy everyday 😓 The pain has come back with avengance in the last few weeks which started after I did a detox. I can't get rid of it and struggling.

I work full time and do a lot of o regime in a job that is very stressful. With the ME, the adrenaline used to help keep it at bay. The fibromyalgia however doesn't seem to want to relent.

At present I take I Ruben to help, although it doesn't do much now. Does anyone have any other mess that help?

Jaime x

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Hello Jamie- Nurse Gladys Emanuel (open all hours) welcome- how much has you gp helped with your pain? there are so many different remedies, they dont all stop the pain but make it manageable.. Physio is also a good start- I use Hydrotherpay weekly which a physio organised and I take Tramadol with paracetmaol, amitrip sent me right off track, I understand from other members who use it that tea time is the best time so that when you go to bed it has kicked in, not good for you social life though I,m afraid.

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Hi Caz,

I have t really been back yet to docs. I'm a.ways so busy with works and resting. I do need to go though. I try and take teatime ish but I work shifts and long overtime hours so it's not always easy which is a pain!

Jaime x

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Hello Jamie and a very warm welcome to the forum :)

I was wondering what time you take your Amitryptyline?

On my GP's advice it should be taken around 12 hours before you need to get up the next day.

It is best take it around 6pm to avoid that horrible hung over feeling the next day.

Have you ever been referred to a Pain Clinic? If not it is worth asking your GP to refer you. The waiting lists are pretty long, but worth it once you get to see someone.

Can your GP not prescribe you something stronger to help with your pain in the meantime?

Once again a warm welcome and if you need any help finding your way around the forum, please do give me a shout.

Take care of yourself

Lu x

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Hi Lu.

I started taking before bed around 9 but felt awful the after. I find around 5 or 6 better. However I work shifts and sometimes don't finish til early hours so I don't take it at all then.

I haven't been back to docs yet only spoke over the phone so I'm going to book an appointment and ask about the pain clinic.

I did swap to noratrypaline for a while to stop the fuzzing feeling the next day but found that I couldn't sleep on them.

Jaime x

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It is a complete nightmare trying to find the right set of meds that suits you.

As Fibro is tailor made to each person the same set of meds don't work for each person.

Unfortunately it is a matter of trial and error to find the right ones.

I've had Fibro & ME for 36 years and can fully empathise with the pain you are in.

Please let us know how you get on with your GP. As you have been diagnosed with Fibro I don't see any reason why he/she shouldn't refer you to a Pain Clinic.

Good luck!

Lu xx

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Thanks Lu. I will get o to it!

It's nice to talk with people that understand the severity of the pain.

Xx

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Hi JaimeH I would just like to add my warm wishes and welcome to the forum xx

Mo

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Hi Dizzytwo and thank you xx

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Hi JaimeH , and welcome , look forward to reading your posts,

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