Hi all. I am a new member.

I have fibromyalgia for about 8 years and can not find a pain killers which stop my pain. I have ongoing sweating around my head and neck to the point my hair is wet .

Does anyone esle experience this.

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33 Replies

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  • Hi Nipper11 Welcome to our wonderful forum, I'm sure you will love it and find it invaluable chatting to others who are going through the same as you, at different stages of their lives with fibromyalgia.

    I'm sorry you are in pain, it's very difficult to get the right medication to help fibro symptoms and is usually a concoction of drugs that help. What pain relief are you currently using ?. A lot of people go down the holistic treatment route because of not getting proper relief from the pain. Have you been refered to pain clinic ?

    You really have come to the right place my friend and I look forward to chatting with you on the forum.

    Please do go check out the mother site fmauk.org where you will find lots of useful information and links on fibro and I look forward to chatting with you on the forum

    Peace, luv n light

    Jan xx

    It's a good idea to lock your posts to the community, so it's not open to the internet. If you look to right of screen you will see under "Pinned Posts" a link to simple instructions on how to lock it.

  • Hello and welcome Nipper11 it is lovely to have you on board.

    We are all here to support to the members herr are supportive and friendly.

    Please keep sharing your experiences and i am sure others will share with you ways they deal with their condition.

    I see our lovely admin Janet28

  • Hi Nipper11 welcome to our lovely friendly forum.

    You will find members sharing their experiences of their condition and hopefully give you some hints and tips.

    I see our lovely admin Janet28 has send you some vwry useful ibformation.

    Please do take a look at the mother site it is very informative and useful.

    Good luck on your journey my friend

  • Thank you for taking the time to reply.

  • Hi,i have the same problem,happens all the time but much worse in the Summer.Haven't found an answer apart from keeping a fan on all night and pacing myself.Tried every pain killer there is,find Gabepentin help with joint pain a little,notice a difference if stop taking them.Also co codamol did help but not now.Got appointment at Guy's hospital tommorow,hoping find something that might help,sorry not much help but at least we know we're not alone with the dreaded fibro.

  • Good luck tomorrow

  • A total of 50mgs across the day of targin and clonazepam 0.5mgs 3 times a day as well. Immovane 7.5mgs to sleep.

  • Hello. We are all in the (sinking) boat ;)

  • I have a lot of sweating as well but I'm also going through the menopause so it's difficult to say whether it's that or the fibro.

  • Thanks for sharing it's not the change because I had every tests available with still no outcome.

  • One of the reasons I had my hair cut so short.....couldn't stand having bedraggled hair.....xx

  • Janet28 , can you help, i having issues with setting up instruction on how to lock my post .

  • I sweat from chest to head. I find that this is as debilitating as any other symptom of my fm. It drives me insane. X

  • I agree with you. My sweating is so bad my hair colour runs which can be embarrassing and a waste of money. My blood tests always show high inflammatory markers.? Not sure if this is why this happens to me.

  • Yes I experience this. I'm very heat sensitive....las at its worst when the pain is really bad

  • Yes I have lots of hot sweats . Night sweats too . Always when I'm having crazy dreams ! I actually like the dreams tho cos it's like I'm going on an adventure every time I sleep (3 hours a night lol)😁

  • Sorry your suffering like this. Have you tried magnesium chloride oil diluted with distilled water? That might take the edge off the pain. I dilute mine more than suggested.

    Massaging can be painful but can relax the muscle, can leave it sore, but usually relaxes it some. Judge yourself if it is for you.

    I hope you can find relief.

    I sweat pretty easily and i can feel the heat in my head intensely, but i don't just sweat there.

    Have you seen the cool wraps, that you dampen and they stay cool to the touch? you could see if that helps.

    I hope you can find something to help.

    Take care×××

  • Hi Nipper11

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. Many Fibro sufferers appear to endure Hyperhidrosis with their Fibro. I have pasted you a link below to the NHS Choices cache on this issue:

    nhs.uk/conditions/hyperhidr...

    I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you

    Ken

  • What a lovley welcome . Thank you Ken

  • Thank you and good luck my friend

  • Welcome to the forum. I also experience sweating, I am always hot and cannot regulate my body temperature. I have short hair as like you it's always wet.

    I also have a lot of pain, i take 2700mg of gabapentin and 75mg lomatrigine -although the neurologist said last week this may be causing my skin rash. I am having patch testing now to find the cause of it, I may have to change medication. I also take 2 x 500mg of naproxen daily plus paracetamol if needed when my head is so bad.

    I am sure you will gain a lot of help from this forum

  • Hi hunni

    I am exactly the same, I can be getting ready for work and within 5 mins it looks like I've just come out of the shower.. cannot say if it the fibro or given my age (im 46) that it could be the menopause.. I am unsure what to do about it apart from cut my hair off... xx

  • Hi yes I'm suffering really bad with it and it's awful and embarresing I wish I new how to stop it

  • I understand at times this has stop me going out because I don't want to be embarrassed. My GP does not take in board how much one can be affected by this obvious symptom. I hate it. I am requesting more tests as it like my thermostat has gone wrong. I also checked my body temperature which show normal ?

  • Hi I have this to gets much worst at this time of the year.

  • I been checking my medication on line and naproxen is one of my pain killers. they say one side effects is an increase in sweating. Anyone esle take this medication with this side effects.

  • I have taken this for almost 8 years. I have extreme

    Sweating which is very embarrassing

    I have been checking all my medication and my GP has said it is unlikely to be my medication but I not convinced.

  • I always feel like a shoplifter when queueing at tills as this is one of the times my sweats come on. it's due to standing for more than a minute the pain is so bad..that's when the sweats come..I must look so flipping dodgy..I've not been jumped by security yet but I'm sure it will happen at some point .

  • Hi Nipper, I use soluble Solpadeine (or cheaper, Boots Paracetamol and Codeine Extra Soluble )....similar to Co-codamol but with added caffeine. Unlike Co-codamol it's not available on prescription but for me it works best of all. My GP has added it to my medical notes and is happy for me to take the max dose of 8 a day if pain levels call for that. She has given me codeine tabs to take as well, if I'm really struggling...but I very rarely need to supplement with those. Caution....never exceed the max dose of 8!

    Good luck

    Dippy

  • Thanks for sharing .sometimes warm baths help pain.

  • I take solpadeine , not sure on spelling , ultramol equivalent .over counter at chemist .works for me .

  • Yes this happens to me it's not nice ,pain killers you have to try different ones till you find the one that help as for head sweats use a cool pillow or in my case I take antibiotics everyday it works its trial and error

  • I don't really sweat i feel like i am overheating.. It never even occurred to me to link it with fibro.. I just tell everyone my thermostat is broken.. Lol.. I need to do some more reading.. Hope some of the tips help.

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