Fibromyalgia Action UK
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Hi...New to the site

Hi everyone, my name is Glenda I'm 40 years old and have Fibromyalgia, Osteoarthritis, TMJ, Hypertension etc...

My latest flare up has been with me since December and just seems to be getting worse with no let up!

2 years ago I started to get new symptoms ( weakness in legs, tremors, visual disturbance) I was referred to a neurologist. After neuro exam he confirmed there was a problem with my muscle's and subsequently had an MRI of my brain(proof I have one, lol!) And then the neck and rest of spine which came back fine apart from arthritis in neck and lumbar spine. I was then told I was being referred to another Neurologist who specialises in Functional Neurological Disorders! Has anyone else had a similar experience?

My GP won't refer me to the pain clinic until I've seen the neuroligt which I've been waitting to see since June last year. Any advice would be welcome.

Gentle hugs to all.

/ xxx

5 Replies

Hi grumpyg, i love your name lol.

Its nice to meet you, i have had a brain mri to check for MS but then that come back clear and neurologist sent me to an immunologist where i had all my answers in 1 hour appointment.

Sorry i didnt have FND, mine is fibro, CFS/ME and hypermobility and a few more but wont bore you on your first blog lol.

I do know that waiting for neurologists are endless, could you not phone his secetary to see how much longer your appointment would be.

Take care, and i hope someone pops up with some more help for you.

kel xxxx


Hi Glenda, welcome from me too. You'll enjoy the group I'm sure.

I have fibro, not as bad as most on here though, I also have arthritis, IBS, underactive thyroid, RLS and a bad memory cos there is something else but can't remember what it is just now! lol :)

Sue x


Hi Glenda, welcome to the site the more the merrier, its really great on here, well I suppose that depends on how you look at it!

I have fibro plus other stuff that seems to hang on with fm. I also have cervical spondilytis and I'm epileptic. You're in safe hands here.

lol :) :) Susan xx


Hi Jules58

Pleased to meet you :). I've called the Neurologist's secretary who called back and left a message saying for some reason I was removed from the waiting list in August then added on again in December ( NHS Lothian, big scandal ongoing at the moment with them fiddling the waiting list to make it seem they're reaching their target of 18 weeks ! ) Looks like i'm one of the many thousands affected!

For the fibro and arthritis I take gabapentin and tramadol. For the TMJ I have a splint but finding it difficult to wear!

Have an appointment next week with my GP will push her to find out what's going with my referral, will let you know how I get on.

G xxx


Hi everyone :)

Thank you for making me feel so welcome. I think this website is wonderful, so much information and support. I look forward to chatting to you all. It's good to be able to be yourself and not have the fear of people judging you :)

Gentle hugs

G xxx


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