Fibromyalgia Action UK
40,700 members52,766 posts

Jaw and facial pain

Hi there all Fibro people. New to Fibro community but been a member of SRUK for a few months.

Don't know how long I have had Fibro but only got diagnosed in November along with Scleroderma, Osteoarthritis, Sjogrens.

Like us all. Good and bad days, but had really bad jaw joint pain and head aches for a while now. Mouth hurts to open to wide. Just wondered if anyone else has thus eort if pain? If so, what's helps and what agrevates it please?

Getting really down with feeling so rough continually. Family at ok, but really don't seem to understand. My husband seems reluctant to read about these conditions because I feel he thinks they will disappear if he forgets about them. He worries inwardly but has trouble dealing with the situation. Anyone else in a similar position out there!

Thanks a lot and apologies for the waffling on.

Happy days to everyone.

8 Replies

Hello Fuchia

I wanted to wish you a very warm welcome to the forum :)

As you are fairly newly diagnosed you may find it of interest to visit our mother site for more information about Fibro

I am not a medical professional but I am wondering whether you are suffering from TMJ/TMD. I know that a fair amount of our members have it.

Whether it is Fibro related is another matter.

Here is some information that I have sourced from WebMD for you:

Temporomandibular joint disorders (TMJ and TMD)

Temporomandibular joint disorders (TMJ disorders) occur as a result of problems with the jaw, jaw joint and surrounding facial muscles that control chewing and moving the jaw. These disorders are also referred to as TMJ syndrome, TMJ dysfunction or temporomandibular disorders (TMD).

What is the temporomandibular joint?

The temporomandibular joint (TMJ) is the hinge joint that connects the lower jaw (mandible) to the temporal bone of the skull, which is immediately in front of the ear on each side of your head. The joints are flexible, allowing the jaw to move smoothly up and down and side to side and enabling you to talk, chew and yawn. Muscles attached to and surrounding the jaw joint control the position and movement of the jaw.

What causes temporomandibular joint disorders?

The cause of TMJ disorders is not clear, but dentists believe it arises from problems with the muscles of the jaw or with the parts of the joint itself.

I don't know if this sounds like what you are feeling or not?

Trying to get loved ones to understand is almost as impossible as getting consultants and doctors to understand it.

I understand what you mean about not recognising it and hoping it will go away (when you were talking about your OH).

Anyway, once again a very warm welcome and I look forward to chatting with you again :)

Lu x



Hi BlueMermaid 3

Thank you very much for your in depth reply.

I had thought of TMJ as it has been getting progressively worse over a few years now. My whole upper body has got painful. From ribs to head.

Last night woke up in the night feeling awful everywhere and still do. Every part of me hurts and haven't been able to swallow medication this morning yet. Bug!! Who knows really. I put it all down to my various diagnosis.

The last year everything has gone downhill fast.........surely must be at the bottom of the hill soon, I say.

I am such a get up and go person, it makes me very frustrated when I feel like this. As no doubt you and everyone else does too.

Thanks again for chatting and sure we'll chat a gain soon.

Fuchia x

1 like

Hi Fuchia

Unfortunately I have severe pain all over, non stop, day in day out.

I have days when I feel I just can't cope with it all anymore.

Distraction is the only thing that works for me.

Have you been through a lot of stress lately? Stress will heighten Fibro symptoms and send you into what we call a "Flare".

A Flare can last anything from days, weeks to months.

I genuinely hope you are having a Flare because once it's over your symptoms should go back to pre flare.

I hope some of this helps?

Best wishes

Lu xx


Hi again BlueMernaid3

Thank you for your support. I am so sorry you have severe pain continually. Bless you!

Could be stress related, I know. Do get a bit wound up sometimes.

Also I know I take too much on sometimes. Rhumy told me todo less and I find this really hard todo.

I eat healthily. Go to gym, pilates, yoga, tai-chi and walk. Rhumy told me to start the classes. I enjoy them, but think it is too much some times.

Travelling also makes me worse. Done a bit of this lately too.

I do gave herniated and ruptured discs in my cervical spine which doesn't help my upper body pain.

Just taking it easy today and doing nothing that I hate. Just can't bring myself to move today.

As you say, hopefully just a flare.

Thoughts are with you and your continual pain my love.

Lucky w gave all got each other to speak with.

Wishing you a good week.

Love Fuchiaxx


Hi Fuchia Welcome to our wonderful forum, I'm sure you will love it and find it invaluable chatting to others who are going through the same as you, at different stages of their lives with fibromyalgia.

I'm sorry you are feeling a bit down at the moment, it really isn't surprising with having all that diagnosed & then fibro. I wrote a post recently about jaw problems, I have popped the link on end of reply, you will probably find it interesting.

I see our lovely BlueMermaid3 has given you lots of info so I'll just say, Hi & i look forward to chatting with on on the forum.

Peace, luv n light

Jan xx


Hi Jan,

Thank you so much for your advice .The link was very helpful. I too have had the same experiences as yourself for a number of years, but the last month it has got much worse and half the time I don't know from which condition it is stemming. Probably TMJ solely.

I woke in the night feeling awful and still do today. Every part of me hurts. I haven't managed to swallow medication yet today.

Is it fibro or may be a bug !!!! Don't know.....only that I hate feeling like it.

Things can only get better as they say. Onwards and upwards.

Been so good talking you.

Love Fuchia


Hi there, it does sound like TMJ , I have this and Sjögren's along with fibro and osteoarthritis. They do seem to be linked. I find a warm hot water bottle or heat pad can help a little with the pain. I would visit the GP about this, mine has referred me to the hospital ,

hope you get some relief soon, take care. X X


Hi Furry,

Yes, so many of these things overlap, I am beginning to realise. I have go appointment next week. So will see what he say's. I have coped with it for ages, but it really has intensified if late. I will try the heat. Good to chat and good health to you. Xx

1 like

You may also like...