I'm still trying to find answers, I've had fibro for 14 years, and recently the pain in my neck is worsening, I've always had migraines etc, but at Xmas I had all the symptoms of meningitis without the virus, since then I have had a headaches every day except about 4 days, been to a neurologist who doubts I have a brain tumour, the reason I was worried was because my mum died of a brain tumour and I've had a tumour in my stomach, but he believes I have chronic daily migraines, I'm having an MRI soon but not really given me any tab to hep, what I want to know is do anyone here have a really bad neck through fibro and suffer really bad headaches and migraines, just wanna fine the cause. If so any ideas. I just feel my whole body is weakening.
Neck pain bad migraines: I'm still... - Fibromyalgia Acti...
Neck pain bad migraines
Morning littlejan sorry to hear you are suffering, yes I think we all get pins in our necks it's part of fibro, I think it's the pain in the back of the head and neck that causes such terrible headaches.....have you tried feverfew, they can help .....hope you manage to get sorted soon, ..gentle hugs ...Dee xx
Do you have same problem too
Hi littlejan, i wemt to see neurologist for migraines last week. Was given naproxen and f. To try. Have had neck problems for years, so painful that window shopping can bring on migraine as does hoovering and other daft little things. I too have had fibro 14 years and in january had migraine for 7 days nonstop followed by anothrr week of headaches, causing hearing problems, balance issues, choking problems, inability to drive without getting lost and constant brain fog for a couple of months. Consultant said all caused by length of migraine and no permanent brain damage, did not do mri, said come back in 6 months. I still feel like i am suffering from concussion though, hate it. Am in bed just know with heafache and exhaustion, neck pain excuciating.
Hi shazzzy
I am so sorry to read that you have such horrific migraines like that. Mine are mostly food related as I have so many allergies to contend with. I do have one other trigger and this is 'yellow'. I do not know if you have a similar issue? But yellow lights. yellow walls through paint or papering? It is absolutely awful.
Take care and I hope that you start to feel better soon
Ken
Hi ken, thanks for the message, am in hospital now for respite and therapy so hopefully should be feeling better soon.
Hi
I can understand your concern especially as you have already had a tumour. I have had spondylosis in my neck since my 40's and have now got fibro amongst other things. I always seem to have a background headache and often a very strange one at the back of my head and neck which I have always put down to the neck problems. My thoughts are with you as my husband has migraines and I know how debilitating they can be. Hope that the MRI will highlight what is causing the problem. x
Hi littlejan
I am so sorry to read that you have been suffering in this way with your neck and migraines. I have migraines due to food allergies and my asthma but yours sound terrible, and I genuinely hope that you can find some resolution and relief to the pain and misery they cause.
I have pasted you a couple of NHS Choices website link pertaining to the issue and I genuinely hope that you find them useful:
nhs.uk/Conditions/Migraine/...
nhs.uk/conditions/neck-pain...
I was wondering what medication do you take for them? As I find Co-Codamol and Metocloperamide work well for me and the Metocloperamide help with any nausea.
I want to wish you all the best of luck when you go back and have your MRI. Please keep us all up to date with how you get on?
All my hopes and dreams for you
Ken x
Hello
I know how u are feeling as I have the same thing been suffering for a while really bad neck and shoulder pain but with really bad headaches need Drs and they have me ibuprofen which doesn't help and not had the energy to go back as after work am to shattered. At work it's worse as I work with computers which doesn't help and involves a lot of neck movement so in a lot of pain. Can't take time off as employer really funny with me. Hope u feel better soon and hope the MRI can be of help to u. All the best
Hi angel I used to work with computers too and had to change career cos of same problems, I was a gp secretary !
Hi Littlejan
I'm so sorry your having such an awful time.
How long ago did you loose your mum to a brain tumour? the reason i ask is i lost my mum to a brain tumour four years ago.
Like most of your fibro friends neck, shoulder and headaches/migraines can be part of our horrible condition.
I had a mini stroke in nov 2012 and i cant tell you how scared i was, i was only 49 and like my mum they said she had had a stroke but they did'nt do a MRI utill it was to late.I had my MRI and my brain was clear dont get me wrong i was so pleased but i thought i was going mad, it took nearly a year to be told i had fibro and was so pleased at last i knew i had something with a name,( lol now i understand what comes with fibro i'd rather not have it)
Please stay calm if you need a chat please fill free to message me or any of your fibro friends, someone is normally awake with good advice 24/7,
Take care of yourself viv xxx
Hi - yes I too get migraines and am undergoing a myriad of tests - keep being given different diagnosises but I am beginning to think they are linked to the fibro. I also suffer from constant dizziness/vertigo and feeling light headed. I also have a painful neck and have for years and years - have arthritis in my C2/3 joint in my neck but not convinced this is the cause of the headaches or the dizziness. So sorry you are suffering and do hope so much you can find something that helps you xx
I too am i the same club. Had fibro 40 years. Diagnosed 10. Nothing helps really. Started with migraines and back pain, told spondylosis, plus I also had endometriosis at the time. Full time working taking 8 codeine a day plus occasional physio to get thro. Had hysterectomy but didn't solve abdominal pain. Doc now says could be adhesions. Who knows. Head/neck and shoulder pain worsened. Paid to see specialist. As well as spondylosis, have twisted spine, top and bottom, disc problems, plus degeneration. Had more physio plus saw chiroprator, which worked a bit short term, but things worsened and finished work in 1993. No unemployment benefit as only paid small stamp. Tried for sickness benefit and was told I was A1 fit. Too fed up at the time to pursue it further and did still hope way back then, that things would eventually improve. Ever the optimist. No chance. No w 26 years later things are far worse. Also have gastro problems, irritable bowel, plus constant nausea, and pain going from stomach thro to back, apparently fatty liver and I think costocondritis (not confirmed). Plus pain and weakness in hips so can't stand long and am only really ok walking where it is flat. Underactive thyroid which is constantly out of sinc so presume that is not helping, and problems with eyes, grtty and floaters, and I can go on. Sleeping badly. Vivid dreams and nightmares. Waking in night with like electric shocks. Tried loads of different medication, which i can't take as it makes things worse. Asked doc recently if i could have a brain scan/neck/shoulder scan, things are so bad, as I am worried about meningitis or encephalitis, but presumably because i have had it so long she says it isn't necessary. - fibro. Let's not forget the fibro fog and memory problems. Latest addition is tingling in hands and feet. Add the fact I have no support, as HB has his own problems - early dementia and poor mobility - so I am carrying the responsibilities at home, things are not great My two daughters simply do not want to know. I think because i have been 'ill' for so long, havn't died or been hospitalised , their view is 'everyone has problems get on with it' and they are right. But is doesn't make things any easier. So now like most of us I put a smile on my face when they occasionally visit for an hour or so and ask about them. Also I have a few so called friends and the situation is the same there. They are aware I have fibromyalgia, and I have said I have continuous head, neck, shoulder and back pain, but I don't honestly think they believe me, who would? Aand they obviously aren't aware of all the other the implications, as I look reasonably OK, and am walking about. So, I am never asked how I am, but I listen 'ad infinitum' to every medical problem they hav, . and it does upset me sometimes when I am having a very bad time. But hey, ho. As they say - that's life'. Apologise for the rant. Maybe it has helped someone else realise they are not alone on this horrendous journey. Thanks for listening and take care all of you.xx
Littlejan, yes my neck feels broken and hurts all the time which causes major head pressure I get in back of head. It will swell and the pressure if aweful. I use a heating pad on my head to help some or a ice pad sometimes. I have soft spots all over head very painful to touch. I get hard white bumps and red bumps come and go on top back of head that when flared up so bad I can not touch my hair around that area. Yes after first time of head pressure and cat scan they said not out of the ordinary. Wait a minute I don't get headaches or pressure in head ever so this is not good. Since I did not show major distress like holding my head and crying because that makes it hurt more. So pressure never gave up it always there but sometimes real Mellow. So they decided to do a MRI. Well I was not wrong bringing this up to have something done to see why it happening. MRI showed I suffered a small stroke in center of brain deep down in my gray matter. Take magnesium and don't worry about it's old stroke. I have to worry so it doesn't happen again for whatever reason it did in the first. So yes major head pressure problems here.
Migraines
migraines!!!!
Neck pain & facial pain.
Headaches/migraines - had them for 11 days now
