Is it Fibro ?: Hi, I'm struggling at... - Fibromyalgia Acti...

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Is it Fibro ?

beaton profile image
9 Replies

Hi, I'm struggling at the minute but not sure the cause of the pain, is it Fibro. ?

I have autoimmune illness, thyroid psoriasis etc. My doctors has never confirmed if I have fibro., just nods his head and hands out pills

Pain seems to move around my body, the other week one foot was very painful another week my wrists.

My main pain is in my shoulders, been like it for years off and on. I had physio last year when the pain sent the muscles into spasm. The pain is always there, my bra strap causes pressure though loose. During the last week the pain in my shoulder has got bad again, like someone standing on my shoulders. The pain creeping into my neck head, ear and face. One eye feels as if it is closing. I don't want to be touched, no massage or anything. Help please.

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beaton
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Creativeness1 profile image
Creativeness1

HI beaton sending you a few links on which hopefully help

healthunlocked.com/fibromya...

healthunlocked.com/fibromya...

I'm so sorry to hear that you are having such a bad time and the pain is intense I do hope you get some pain free time to rest up. Please do check out the pinned posts on the home page and the mother site to.

fmauk.org

As I am not a professional and you have other conditions I think it is better for you to get professional support. As they can help to decide on your next steps and hopefully give you some pointers.

Good luck my friend

beaton profile image
beaton in reply to Creativeness1

Thank you Creativness, will look at the links. x

BlueMermaid3 profile image
BlueMermaid3

Hello beaton

Welcome to our lovely Fibro forum :)

If you take a look at our mother site you will find lots of info regarding Fibro, which you may find useful fmauk.org

Unfortunately it can take many years to get a definitive diagnosis of Fibromyalgia due to the fact that the symptoms are very similar to other conditions such as Lupus, Lyme Disease and MS.

Do you know if your GP has done any blood tests at all to rule these conditions out of the picture?

It is very important that this is done first.

Secondly, it may be a good idea to ask your GP to refer you to a Rheumatologist. They are the Consultants that tend to diagnose Fibro, although increasingly Neurologists are now starting to diagnose it too.

I really do feel your frustration. However I am not a medical professional and therefore it would not be my place to say whether you actually have Fibro or not.

I am so sorry I cannot be of much further help than this at this stage, but please do come back to us and let us know how you get on with your GP.

Wishing you a peaceful Sunday.

Lu x

Administrator

beaton profile image
beaton in reply to BlueMermaid3

Thank you Lu. x

BlueMermaid3 profile image
BlueMermaid3 in reply to beaton

You're very welcome :) I just wish there was more that I could do to help you.

Researching Fibro may be a good idea, which you could then present to your GP?

If your GP is not being helpful, it may be a good idea to change GP or even surgeries.

Take care of yourself

Lu xx

bluebell99 profile image
bluebell99

Hello and welcome to our friendly fibro forum where you can find advice, support, help, understanding and friendship.

It certainly sounds that your symptoms could be fibro but I am not medically qualified so could not give you a diagnosis. I suggest you read up as much information about it, but also the other conditions it mimics like Lupus.

I would also ask your GP for blood tests to eliminate autoimmune conditions, and Lyme Disease. Fibro tends to be the default condition when all others have been eliminated.

Our mother site fmauk.org is useful for information as is the NHS site

nhs.uk/Conditions/Fibromyal...

I wish you luck and hope you find answers to your pain very soon.

Looking forward to seeing you around the forum.

Kay

beaton profile image
beaton in reply to bluebell99

Thanks Kay. x

Joanworrow profile image
Joanworrow

Beaton have you hot sclermaroderma also auto immune made me wonder.?

beaton profile image
beaton in reply to Joanworrow

Hi Joan, don't think so. x

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