/severe leg paiin: Hi I wonder if... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,417 members66,472 posts

/severe leg paiin

hopewe profile image
13 Replies

Hi

I wonder if anyone can help me please? For the last two years, I have been getting burning and aching in my shins, which during this time has got worse. It started not long after I had my hysterectomy. I don't know if this has any significance at all. It started with the odd burn and now 2 years on I am taking time off work due to the pain. I was prescribed anti inflammatorys , naproxen, and paracetamol, this has now been increased to gabapentin, tramadol and morphine patches. None seem to alleviate the pain for a decent time period. I noticed at one point that after stopping my citalopram the pain reduced. I therefore thought brilliant, I'm free, only for it to return some time later. I was recently told by the GP that it is my back, so they referred me to a back surgeon who gave me an epidural. Nothing happened. T describe the pain, it is a constant burn down my shins, that can run into the top of my feet. My legs swell and I have pitting which means that when pressed my leg dents and does not come back out. Now my ankles and hips are playing up. It feels as though they are about to break. I am desperate to the point of suicidal thoughts on occasions. Please, if anyone has experienced this and had a correct diagnosis, can they please help? xxx

Written by
hopewe profile image
hopewe
To view profiles and participate in discussions please or .
Read more about...
13 Replies
suzey26j profile image
suzey26j

Hi I have all of that ,the only difference is mine been going on for 3yrs I think it RLS syndrome which a lot of people get with fibro ,don't know twhy the dr hasn't said that to you also sounds like you have nerve damage are you diabetic, because that could explain a few things I'm not a dr so I can't really say but I have the very sames as you.and I've tried lots of pain meds that don't work Suzey X

hopewe profile image
hopewe in reply to suzey26j

Hi suzey. Thank you for replying. A gp has said rls but then said maybe not due to the pain. Im not diabetic. I have been told they may have damaged a nerve in the hysterectomy... i also cut both my legs open as a child falling up a step. But surely it wouldnt take this long to manifest? Im 40. Pain meds until cure ( positive thinking. 😢 are you uk or US? X

suzey26j profile image
suzey26j in reply to hopewe

Hi RLS is very painful and yes it. Could come out in years later ,I remember I had a terrible car accident and at the time the doctor said to me this could make you suffer later in life and that was twenty yrs. ago and boy was he right ,later today when people are awake you will get advice from peeps on here may tell you how to ease the pain ,there's good chance this is nerve pain and sorry to have to say this but it sometimes gets worse I do hope not for you Suzey X. Ps I'm english

TheAuthor profile image
TheAuthor

Hi hopewe

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted for you below a link to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I am so truly sorry to read of this, and although I am not a doctor, I wonder if it could be ''shin splints?'' I have pasted you an excerpt below form the *NHS Choices cache on this:

*Pain in the lower legs and shins can also be caused by: stress fractures (tiny cracks in the bone) – the pain often affects one leg, but can affect both, and is usually focused in a small area; there may also be some swelling. a sprain or strain – this can cause swelling, bruising and pain that continues during rest.8 Nov 2016

It is possible that it could be originating from your back i.e. Sciatica or Piriformus? I am also wondering if you have had any blood tests to check for arthritis as well?

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

hopewe profile image
hopewe in reply to TheAuthor

Hi Ken. What a lovely response. Thank you so much for taking the timw . Yes.. yet another said it was shin splints... and due to where the pain is.. that makes it the most likely to me. Although this doesnt explain the pitting. I do have arthritis.. that was confirmed.. moderate but is just managed as there is no cure. I am so grateful for this forum just to know there are people out there that care. Bless you. Pain clinic at 1.30 today so i will update my status to say how it went. Xx

A1den profile image
A1den in reply to hopewe

I used to run a lot and suffered from shin splints, its a sharp piercing pain, can sometimes feel burning. For me it was cause by running on hard surface and not having the correct footwear. I dont know if this helps at all but at least try some cushioned footwear, running shoes. See if it helps the pain.

TheAuthor profile image
TheAuthor in reply to hopewe

Hi hopewe

Thank you my friend and I genuinely hope that your pain clinic appointment went well for you? I want to sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken x

_Tildy_ profile image
_Tildy_

Our bodies are so complicated. Wishing you all the best. X

Maureen1one profile image
Maureen1one

Hi I also have the same complaint it's due to my spine. I have prolapsed discs however it's alleviated by having lumbar epidural injections and the relief is immediately. Unfortunately it wears off after around 3 months and the painclinic will only do them 2 a year as it's costly and can be dangerous as it's the spine. However well worth having done as the pain your suffering is horrendous xx

hopewe profile image
hopewe in reply to Maureen1one

Hi maureen. Thank you... is the pain and burning in the front of your legs plZ? Xx

I get that as well, but not as badly as you describe. One thing you might want to do is see if you can get an x-ray.. I have non-malignant tumors down the front of both shins, called chondroblastomas I believe. Doctor said they can hurt, but are not dangerous unless they are actively growing. Best of luck in your search...

hopewe profile image
hopewe in reply to

Thank you xx hope it doesnt get any worse for you

in reply to hopewe

Thanks - Me either =)

You may also like...

Does anyone suffer with severe cramps in the legs

and needles. Has anyone come across this i understand people get cramps but all the time? Thank you...

I have Severe pain in my hip, leg, and lower back.

even walking it very painful. I believe that caused my lower back to be in pain and now my...

Severe lower back pain, and leg pain

started filling pain in my ankle, and lower leg then my lower back, now it won't go away the pain...

Restless leg syndrome

everyone is doing as well as they can in these unprecedented times. I was diagnosed with...

Does anyone have severe pain in the bones in your legs below the knee.

is in my lower legs the bone is the problem not so much the muscle. I put lots of pain killing...