Good morning everyone
I have fibromyalgia & ME ,
I have only slept between around 2.30am - 5.30am then the pain woke me again !
For over a year now this has been going on - I am getting excruciating pain below & around my knee which radiates mainly down from my thigh into my shin & into my foot , I walk the floors at night with it and end up in the lounge all night with heat packs / ice packs you name it ! Then I’m exhausted
Strangely enough it’s always worse from late afternoon and all through the night !
I’m on oramorph when needed at night for this but getting to the point that it doesn’t dull the pain much at all , I’ve had an MRI on my back again to see if there were any changes which could be causing this but there was not .
I’m at the stage now that I really can not carry on with this anymore- I’m more exhausted than ever with it all now and wondering if anyone else out there has experienced this ?
My GP says there’s nothing more she can do and pain management consultant is at a loss ! It feels so different to my fibromyalgia pain !😩
Thank you xx