Pain, pain, your are such a drain - Fibromyalgia Acti...

Fibromyalgia Action UK

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Pain, pain, your are such a drain

Olivia1 profile image
5 Replies

Good morning everyone, I hope you are all good ish. Goodness the last few night have driven me to distraction with severe pain. Morphine patch just not touching the pain. I have come to the conclusion NO pain relief works on this cursed fibromyalgia.

Has anyone else seen or heard of the new research that has confirmed fibromyalgia is due to a problem with receptors (or something) in our hands.

Remain blessed everyone and as good a day as possible xx

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Olivia1 profile image
Olivia1
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bluebell99 profile image
bluebell99

H Olivia1

It is so frustrating when all we want is a good night's sleep and I have read that lack of restful sleep is a contribrutory factor in pain severity.

There was a post from a member, I think last week, when it was suggested that fibro was caused by receptors not getting a good supply of blood to the hands.

I did read the article but the evidence seemed a bit flimsy to me. However you may have another view.

You may be able to find it by putting key words in the search box above or by Googling.

X

Janet28 profile image
Janet28

Hi Olivia1 I'm so sorry you are having so much pain my friend. What strength patches are you taking ? Sometimes doctors will prescribe other prn meds. I am on patches but I also take Codiene at night or if needed.

It isn't easy getting pain under control & is usually a concoction of medication and seems to be somewhat different for everyone.I really advise you to go back to your gp Have you been referred to pain management clinic ?

I was aware of the research about hands and Fibro but I didn't realised it had been confirmed, where did you hear this Olivia

Peace, luv n light

Jan x

Trikki profile image
Trikki

I am wondering if this new found Cannabis Oil (now legal) could help you. I asked my doctor this week about it and although he had heard about it his comment was "You probably know more about this than I do"! Not terribly helpful when we have so much pain and many meds only take the edge off....may be worth pursuing though and you can buy it on line but make sure you it is from a reliable source. xx

Olivia1 profile image
Olivia1

Hi everyone thank you for the support As it makes life bearable.

New research was sent via a link on fb. But can't find it again.

Made an appt with gp to ask for 10m on patches as only on 5 but unlikely to get it as she said it was only for a few weeks. These gp are not very supportive. The one I had in Manchester was brilliant. All the meds I'm on have been reviewed by pain consultant last May in Manchester...and already tried the hemp oil...nothing. But I did only take it the once and possible not enough. I have just sent away for some of my own to try it over a month.

Hugs to you all. Remain blessed xx

TheAuthor profile image
TheAuthor

Hi Olivia1

I have pasted below an excerpt form the *Medical Daily about this, but as you will see this is nearly 3 1/2 years old. The study is not that recent nor is the is the idea of where Fibro originates. Hopefully one day this could be confirmed or put to rest my friend:

*Jun 18, 2013 04:56 PM By Jonathan Weiss:

*Reseachers from the company and from Albany Medical College have found that there is a unique neurovascular structure, or blood flow to the nerves, in the skin of female patients who report pain from fibromyalgia. This, the scientists believe, may be the ultimate cause of the pain experienced in the condition.

"Instead of being in the brain, the pathology consists of excessive sensory nerve fibers around specialized blood vessel structures located in the palms of the hands," said Dr. Frank L. Rice, president of Intidyn and the senior researcher on the study, in a press statement

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

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