fibromyalgia…foot pain??

[Greyt]

Hi , I have been suffering with fibromyalgia for the last ten years and just want to ask if anyone suffers from any sort of pain in their feet through fibromyalgia. Thanks .

[fabpup01]

Hi Greyt I get foot pain in a morning, both the top of my feet and the soles too. It feels like they are on fire. Take care and try to keep cool

[Greyt in reply to fabpup01]

That’s interesting to hear . I have a bunion which has brought problems and now the docs are saying I have a problem with navicular joint .Along with sudden sharp pain I also feel my feet are burning . I’m trying to determine if all these pains are anything to do with fibromyalgia or seperate issues .🙈my

[Shortstuff1501]

Hi, Ive had fibromyalgia for 5 years , the last 3 yrs with foot problems related to fibromyalgia. I have plantar fascitis,metatarsalgia along with torn ligaments, this causes me great pain every single day and hurts to walk, awaiting a podiatrist appointment, trying to cope with this along with with all my other aches and pains is a huge struggle

[Greyt in reply to Shortstuff1501]

Hi there , are you saying those problems have been brought on by fibromyalgia?

[Shortstuff1501 in reply to Greyt]

Yes mine are all related to fibromyalgia

[Pasanda in reply to Greyt]

I have fibro pain sometimes in feet and burning at night

[Dragonmum8659 in reply to Shortstuff1501]

Same here with your symptoms. It can be crippling at times

[Dizzytwo]

Hi, I have very painful feet. I have both OA in my toes and plantar fasciitis. The latter is due to extremely flat feet. Niether of which have anything to with fibro.

My feet had to have casts made and special orthotics made from the moulds. Walking with out these in my shoes is unbearable painful. And the thin ones you can buy of the shelf do nothing to relieve the foot pain.

The in step on the otc insoles are way too flat to lift up the arch and relieve my pain.

If possible I would suggest maybe a visit to see a foot specialist.

Momo

[Greyt in reply to Dizzytwo]

Thank you so much for that information. I too have flat feet and suspected OA. Can I ask if the orthotics were through the NHS? I have been waiting for NHS podiatrist appointment for months . I have severe sharp sudden pains in my right foot and aching. Now I am starting to have twinges in my left ankle and am wondering if the long wait for the nhs is making the conditions worse .

[Dizzytwo in reply to Greyt]

Hi there, I had mine done on the NHS many moons ago and still going well. Things may have changed since I had mine made. Maybe you could have a word with your pracrise nurse?

Like everything else our feet problems and how they affect us maybe different for everyone good luck 🤞😊

Momo

[Greyt in reply to Dizzytwo]

Thank you that’s good advice .

[NannyNooNoo]

I have RA, OA and Fibro, and have had problems with me feet & ankles for years! I had mri on both feet in January which showed bursitis - I’m still waiting for the outcome of a meeting my rheumy was having with the surgeon 🤦‍♀️🤦‍♀️. In the meantime, my GP advised me to have a bio mechanical assessment, which I had privately last week. Podiatrist said I am not using my right foot properly, which is causing a lot of my issues, including my knee and hip! She has provided me with some half insoles, with lifts in the appropriate places, which she thinks will go a long way to relieving my issues. Can’t tell you how successful they will be yet, cos I then came down with COVID!

[Greyt in reply to NannyNooNoo]

Oh poor you with Covid , hope recovery well . Thanks for the info . Think MRI would be good to try and organise . Back to trying to get a doctors appointment I feel .

[YMEPLEASE in reply to NannyNooNoo]

Hi NannyNoo,I am newish here, and I get a bit confused with all the abbreviations, what is RA & OA if you don't mind me askingxx

[NannyNooNoo in reply to YMEPLEASE]

Hi, and welcome RA = rheumatoid arthritis, OA = osteo arthritis.

Hope you find lots of helpful information on here 😃😃

[YMEPLEASE in reply to NannyNooNoo]

Oh how daft of me, thank you sobmuch for the info, I am still learning xx

[Hazel_Angelstar Administrator FMA UK Staff]

I've had foot pain for several years, once Dr diagnosed plantar fascitis & podiatrist disagrees (I don't think it is either). I get a lot of neuropathic /nerve type pain including feeling like I'm walking on broken glass (not that I've ever done that but that's what I imagine it would feel like lol), I also get a lot of burning

It's one of the pains I get that nothing really helps

[YMEPLEASE in reply to Hazel_Angelstar]

Hi dear, you are describing my feet pain too , I am suffering a lot and nothing helps

[paula9087 in reply to Hazel_Angelstar]

That’s exactly how my feet like. I went to see the duty doctor because I knew I wouldn’t be able to see the fibro doctor. My feet were really swollen and pain really painful from the plantar fasciitis. The doctor said I should of made a appointment and she was really off on one. I said I couldn’t wait the pain was bad and feet was swollen. She didn’t look at my feet. She said the swelling is normal then says you have fibro so you need to make appointment so we can discuss it and that was it. So I’m wondering if the pain is also from the fibro. I wasn’t happy when I came out because she is my fibro doctor.

[Greyt in reply to paula9087]

Sorry you got such short shrift from the doctor. Fibromyalgia brings on such pain but often people can’t understand or sympathise, even doctors . It’s difficult to determine sometimes if it is yet another pain caused by Fibromyalgia or something completely different.Hope they care nicer to you in the future.

[Greyt in reply to Hazel_Angelstar]

Thank you Hazel. Interesting that your podiatrist disagrees with your doctor . I amwaiting to see a NHS podiatrist, have been for 5 months now but have recently been recommended a private podiatrist. Think

I will make an appointment as it was my physiotherapist that recommended him.

[Hazel_Angelstar Administrator FMA UK Staff in reply to Greyt]

My symptoms didn't really fit with plantar fascitis and podiatrist said that if it was, I'd hit the roof when she pressed a certain point, whereas it was painful but no more than I would feel it on any other part of my body

Although not diagnosed as such, my symptoms are more like peripheral neuropathy

[Makie-Uppie]

Do you mean the fire tailed wasps, the dropped a concrete block on the foot or the wee man with a large drill boring his way through your ankle and foot pain. 😀

[Dipydoo]

Hi Greyt mine isn’t so much foot pain but they burn like fire a lot of the days and night hope you are staying cool it will soon be over 💞💞

[NannyNooNoo in reply to Dipydoo]

That’s my feet too! And sometimes up my legs 🤦‍♀️🤦‍♀️

[Greyt in reply to Dipydoo]

Yes cooling feet off in a washing up bowl of cold water at the mo 😊

[Makie-Uppie in reply to Greyt]

Mine got that bad I found that sticking my feet in hot water turned it off for a while, it ended up with the water being that hot or ice cold I scalded my feet quite badly and suffered frostbite to a couple of toes at the same time. I don't do that anymore. Please do not go down this route, your doctor will tell you off.

[Greyt in reply to Makie-Uppie]

😮 that sounds awful, but I can understand how it happened . I use cold pad , pliable ones from the freezer and hot wheat bags which I have been applying hotter and hotter , and I guess we can easily over do it as we are desperate to get away from the pain . I usually put a cloth over my foot before applying the ice pad but have been applying it directly recently and think the pain that it brought on was due to being too cold …. Oh dear , we try any thing to get rid of constant pain .. it’s called desperation.Thank you for your reply .

[Makie-Uppie in reply to Greyt]

I have grown up a bit since then so no longer at risk of damaging myself and you are very welcome, to my reply, I have been neglecting the people on here recently but hopefully will be a bit busier now.

[Fadeddenimcutoff]

Hi, I get extreme pain in my left foot which leads to a deafened feeling further up my leg. Also have burning pain in either foot periodically to.

[Greyt in reply to Fadeddenimcutoff]

Mmmm sounds like mine , I have sharp shooting pains and noticing dull aches in my ankles .

[Yassytina FMA UK Volunteer]

Hi there sounds very uncomfortable,for you, I bought a foot bath from boots so I give my feet a warm soak with the bubbles, gentle foot massage helps too , I do normally have a volunteer at night after bath even if it’s 5 mins worth with some cream, the husband will do this in exchange for a cup of tea.😉 Comfortable shoes is a must as I am sure it is for most of us now and seeking out good shoe companies is a must , I still use Clark’s and a company online called Damart , they have some good sales too x

[Greyt in reply to Yassytina]

Thank you , I have been putting my feet in a spare washing up bowl filled with cold water and ice cubes

[Bnaylor]

Hi I'm in the process of being diagnosed with fibromyalgia, my feet have been causing me pain for 2 years the soles and top, burning and shooting pain type like feelings, been tested for everything and all clear so along with fatigue and body and joint pain and headaches the gp is now looking at this condition.....I also have insoles from the NHS podiatry which I have worn for six months but don't really help.

[Nelly1]

Probably Plantar Fasciitis I had that a couple of years back. I had some insoles made from the hospital, took a while to get back to normal but it did eventually. You can buy insoles on Amazon for plantar fasciitis. I’ve heard a lot of Fibro sufferers had the same issue.

Good luck on getting it resolved.

[Oscarlola]

Hi greyt yes I get foot pain sometimes it feels like your walking on pins & needles and they get very hot my ankles get very hot and they ache aswell not nice but hey ho , hope your coping in this weather

[AliMS]

I have OA in my toes and a good deal of swelling above my big toe. Not sure if its Fibromyalgia related. But I treat it the same. Minimal meds, avoiding inflammatory foods, and as much appropriate exercise as possible.

[Angeleyes8]

Hi I've hade chronic pain in my right leg below my knee and right side of my shin since a year last march my GP referred me to vascular as he thought my vein might be kinked after waiting months and pain effecting all of my right side of body. It wasn't the vein went private had a mri on my back and waiting for injection into the spine as mri showed a disc resting on nerve endings caused a lot of inflammation which was the cause of pain in right leg not fibro related in this case good luck and big hugs x

[Greyt in reply to Angeleyes8]

Glad you got that sorted . It seems so often that we have to go private to get to the bottom of our pain. Hope your injection happens soon .

[Angeleyes8 in reply to Greyt]

Thank 11th August fingers crossed x

[queenie60]

Yes I do one of many pains

[Puddywoods]

Hi, yes I do, In both feet, my podiatrist told me it's not uncommon for pockets of pain to develop in your feet, I suffer with my hands too and both come on at the same time. I wear compression socks and these really help. I would not be without them now.

[Greyt in reply to Puddywoods]

Hi , I may give compression socks a try , thank you .

[Jegreen]

Same here, i feel there are more than one reason for my feet pain, first its form has changed, got wider and the sole as well. The ankle joint pain is the worst then it spreads to the whole feet with walking. It also gets very warm especially in the evenings and nights and also swollen and my gp said this is neurological there is no cure. Anyway it is always in pain and i strugle walking especially in winter when it is swollen in shoes. I use different muscle pain creams available on the shelf or amazon. I also had a foot messager from amazon, it releives the pain and improves the circulation

[Greyt in reply to Jegreen]

Hi , I find the ache in my ankle so painful. I have tried many of the creams without success. Have recently had x Ray and on topof the diagnosis of having flat feet I have OA starting in the ankle and also a problem with the navicular bone in the ankle . An operation is not a definite cure 🙈

Waiting to see a podiatrist to see if any arch supports will help .

I wonder whether the sharp , burning , pain on the top of my foot is actually neurological too.

Think the foot massager sounds helpful so I will have a look for one .

Thank you for your reply .

When one suffers pain it’s good to talk .

[Bartzgirl]

Hi there, yes I do every morning when I put my feet to the floor when I first get up, I find it very hard to walk.

[Julsie]

I suffer from burning feet. It get worse at night. I have a spray with cold water in and spritz them. Gives me relief for a few minutes and then it’s back. Also have a lot of pain on the soles when I stand/walk. Feel like I’m walking on big stones. Extremely painful. Not sure what it is, I’ve given up going to the doctors. x

[Greyt in reply to Julsie]

Hi , you describing it’s like walking on stones is just how I describe it . I get sudden stabbing pain in foot as if I have just stepped bare foot on a sharp stone. Other times a sudden pain like nerve pain . I am at the moment at evening time , soaking my feet in cold water with. Epsom salts in it . Will see how that goes . Definitely been diagnosed with flat feet .. so podiatrist next .

[BreezyGeezer in reply to Julsie]

Hi Julsie read up on Mortons Neuroma see if tbat sounds like your problemRegards

Rob

[Masil]

Hi yes I also have very flat feet arches have completely disappeared and they burn like crazy and I get severe pain in my toes and ball of foot if they get yo cold as my old doctor didn't give a hoot as to my condition blaming everything on it but then saying fibro doesn't exist I was stuck between a rock and a hard place so gave up and haven't seen anyone about this specific problem they slso feel like I'm tearing muscle sometimes making it incredible painful to walk but hopefully now we moved this new doctor might just help with some of my symptoms once he's back at work as he's off with covoid at the moment which he tells us he's been super strict in his clinic and always what's a mask and cleans room and himself throughly after each patient so is rather confused as to how he got it... but has been doing some appointments by video calls but I feel I shall wait until he's back and things have called down a little before I start with all my problems just know your not alone and that we are all in this together I hope you get some help and relief ,stay strong and keep your chin up xx

[Greyt in reply to Masil]

Sorry to hear that your old doctor let you down and as for dismissing Fibromyalgia as not real … well don’t get me started. Let’s hope your new doctor will help .I am waiting to see a nhs podiatrist re my foot problems . Fallen arches are just part of the problem , they have possibly brought on the problem in my ankle as I have been walking differently since the arches have dropped 🙈 Whether Fibromyalgia has caused any other of the symptoms is difficult to ascertain.

Thank you for your comments that I am not alone in this and that I am not alone in this …. That really meant a lot to me .

X

[nuttynan]

Hi yes had foot pain for many years, I can barely walk at times, i am very flat foot and seem to walk like i am going inwards. The pain 24/7 is so that nothing really helps any more, I am more or less house bound unless i have some one to help me. Yes the burning pain on top and yes omg the soles of the feet, so at times i can not put feet to floor. Also the red all around soles of feet and night time look like i have put my feet in boiling water so red. Also swelling the right foot hot and itchy. It makes sleep really hard.

[Greyt in reply to nuttynan]

I have been diagnosed with flat feet recently too and waiting to see nhs podiatrist, long wait !

[nuttynan]

Oh and i for got the ball of right foot hurt like hell and the pins and needles and i only have to move my toes they feel really thick and than i get the cramp oh hell.

[Kalamazoo1]

I have pain in my feet most days which makes it difficult to walk , my toes on my left foot are the worst . I mostly wear slippers at the minute because my feet and ankles are swollen in this heat . I hope this helps you , take care and stay safe x

[MagsMac]

Oh yes, for the last few months I have had excruciating pain in my big toes and especially my heels

[Dragonmum8659]

Hi. Yes it's on and off pain with me more on than off. Its like walking on glass at times. Very tender at times especially in the morning

[Gaballetto]

Hi all,

My husband, who is not an FM sufferer, had foot pain for a year, at the heel but also other, burning pains, which didn't respond to any of the usual treatments for plantar fasciitis - physio, insoles, anti-inflammatories etc - so, finally (just before lockdown), we decide to pay for a 2nd opinion with a foot surgeon. The MRI he ordered showed plantar fasciitis, but also Baxters Neuropathy ( a rare type of trapped nerve). Surgery fixed it all and got him back on his feet (foot), and we are so glad we hurried it along by paying. The surgery was performed on the 10th Feb 2020 and if he had waited for the NHS he'd still be waiting, stuck in his chair and gaining kgs every month. He has since lost 30kg and is fighting fit.

Anyway, my point is, that at that time, we had no idea that trapped nerves can play a big part in foot pain, and the surgeon also mentioned that there is a 'tarsal tunnel syndrome' which can cause pain and burning on many parts of the foot.

I'm not suggesting that you have to pay to be diagnosed and treated right, but that if you're not getting better with conventional PF treatments, maybe there's more to it and it's worth asking your nurse/doctor about other causes of foot pain/tingling/burning, which, to me, is suggestive of nerve pain. My husband's experience proves you can have more that one cause acting at the same time.

[Greyt in reply to Gaballetto]

Thank you this is such good information for me . I have a bunion and know that has caused damage and I know they are saying in have OA in the ankle but I have felt there is something else as I get shock like pain, quick and severe and burns . I and friends have all said that sounds like a nerve pain.

Like your husband no anti inflammatory creams etc ,insoles or pain killers have sorted this.

I think I will as you have done seek a private MRI and get a clear idea of what is going on as I really think there’s more than one problem .

[Gaballetto in reply to Greyt]

I really hope you get a successful diagnosis and treatment.

We had just about lost hope for my husband's recovery, but now he is the main dog walker, and is back at work truck driving, neither of which are easy on the feet!

[Darceydoris]

Hi Greyt yes I suffer from foot pain.My toes hurt and my feet feel quite numb. My ankles are also painful.

Take care.

[Greyt in reply to Darceydoris]

Hi, interesting you saying about toes feeling numb.several of mine do. Thanks for your reply

[Rockie153]

Hi

I havent been diagnosed with Fibro although a very young doctor did ask this to be looked at during a referral privately - who them went on to say is it Sero Negative Arthritis. So I have no clue !! Like most my feet feel like they are on fire and I know I have plantar fascitis in my left foot. Can no longer walk bear foot or without padded arched shoes...thankfully Sketchers work for me. But standing or walking any distance is very painful. Went back to GP yesterday and he seems to think it is compounding of the nerves and has prescribed amitriptyline. Has any one else been prescribed this and does it help?

[shayla72 in reply to Rockie153]

I was when I was first diagnosed with fibromyalgia but that was because it was cheap and I didn't have insurance. It helped at first some but did gain a little weight and it didn't work enough for me to warrant staying on it so I got off if it after a couple years. Try turmeric that has seemed to help with my pain. I also drink turmeric tea. Lately I started to get foot pain but mine is on the tops of my feet almost as if it's my bones same with my hands sometimes so I'm thinking arthritis maybe. I put hot bean bags and also warm foot baths helps while doing it but then it's still there. It's been constant for about a week and a half now and is driving me crazy but I don't gave insurance so I just deal. I have had fibromyalgia for about 12 years now and have made it this long so I'll survive it just sucks being in constant pain and I can totally see how one could become addicted to pain meds! I have days that I would honestly take anything to have the pain go away. Oh I do also sometimes take a 5mg thc gummy before bed to help me sleep 😴 cause that is also a major problem with this disease. I wish everyone on here the very best!!

[suewood59]

Hi yes I have real bad pains in my heels some days I can't stand on them. I was referred to the hospital who said I had bursitus and gave me some insoles but they havnt helped so guess its due to fibro x

[Lifelessons]

Yes I do and sometimes andShooting pain.

Regards Lisa

[Mummymu]

Hi GreytI have RA and Fibro and have been suffering with painful feet for many months. I get a burning sensation in my soles. I also have what feels like bruised heels. These are worse if either I have been walking for a while or if I have been resting. Once I get going it eases off but I know will be exacerbated if I am on my feet for too long.

[Kel6]

Hi Greyt i suffered with fibro for over 14 years and yes foot pain I have at nite they burn and in day there in pain what makes it worse is walking on certain floors like supermarket kills them in this heat there constantly swollen too I feel for you and understanding where your coming from I think most who have fibro suffer with there feet take care kel

[Jan1964]

Burning sensation to the soles of the feet and shooting pain in the bone structure down to the toes are well known common symptoms. Hugs xx

[Greyt in reply to Jan1964]

🙈thank you x

[Shearmans]

Hi I have terrible foot pain all over

[Brad1940]

Hi i have been suffering with fibromyalgia for two years now . Excise is very slow because of the sharp pains and burning in my feet and legs . I find walking very painful .

[Greyt in reply to Brad1940]

It’s so painful isn’t it … and I have always loved walking 😞😞

[BreezyGeezer]

Hi there Greyt, I have pain in both feet though the right footed pain is to a triple fracture of the heelbone. I believe this is what kicked of my FM. My left foot however has recently begun to give me problems. My GP believes it is Mortons Neuroma. The symptoms are like I am walking with a pebble in my shoe. Causing substantial pain. I am currently waiting on an appointment for a podiatrist.Regards and be kind to yourself

Rob

[Greyt in reply to BreezyGeezer]

Thank you for your reply. There are so many bones in our feet and many conditions. I too am waiting to see a podiatrist in the hope they can help me .Trying to get a MRI too !!

[CheetieCat]

Hi Greyt, yes I have a lot of foot pain, ankles & legs too. Podiatrist diagnosed me with a 'touch' of planter fasciitis, gave me exercises and insoles. If you look online there's quite a few available free from podiatrists. I have to keep stretching out my leg muscles as they get so tight so I still use some of the exercises every day. If I don't the pain is so much worse, for me anyway I need to keep moving. Have you ever tried Vicks on the soles of your feet at bedtime? If not it's worth a try. If it doesn't help you'll have lovely soft feet but just remember to wash it off before stepping into the shower as I was like Bambi on ice the first time 😳🤣🤣

[JamesPDeans]

I have a lot of foot pain. I wear in-soles (designed for Plantar fasciitis) and roll my feet on a bottle which helps.

[momrocks1064]

Hi, yes, I have fibro and my feet hurt a lot too. Sometimes its like walking on broken glass and other times its a burning sensation. They also cramp up and my toes cramp as well. So not fun and makes it hard to sleep. I use ice packs that are meant for the knees, but I wrap them around my feet. Also soaking in a lavender bath helps too sometimes. Take care

[JayCeon]

Hi Greyt - while you're waiting for the appointment, you might like to see if you can find exercises for some of your pains on youtube. I got my plantar fasciitis (and many other local pains) down like that. Didn't know what it was before, just put in "foot pain exercises".

[alfalb]

I have pain as well and now I'm having some in the hands and GP thinks that is fibromyalgia related as well.

[Olenka]

Hi I could cry for the feet pain, dificult to stand or walk.