Vitamin D

[Elkins]

How many of you fibro sufferers take vitamin D as Iv read that fibro people should take it. If you do can you feel a difference?

[Hidden]

My v d are low just done a six months course from the doctor can't tell the difference only more indigestion

[FebruaryStars]

I do. My vitamin D levels used to be really good (in the past I worked a physical job that involved being outside pretty much all day) but since my health deteriorated, I began supplementing. Simply because I'm not outside for very long and I know I'm not giving my body much of a chance to produce it. I take an oral spray. Have you had your levels checked by your GP?

[Elkins in reply to FebruaryStars]

No I havent I just read it on fibro site that it is common. I think I will buy some at the shops just in case

[rosewine]

Mine were checked and were fine but that is some years back. Read an article yesterday in the paper that was I imaging hey think nearly everyone in this country is Vitamin D deficient and should take a supplement as it is hardly unlikely that they get enough through diet. My multivitamin seems to have it in so I am holding fire at the moment. If you think it might do you good I would have a word with your GP next time you visit.x

[Elkins in reply to rosewine]

Thanks I will x

[Lou1062]

I take prescribed Vit D and have regular blood tests, I cant say that it makes a difference to how I feel, the long term lack of vit D has led to severe nerve damage in my case xx

[Elkins in reply to Lou1062]

Thanks for your comment x

[Trikki]

Just had a phone call from the GP to say vitamin D level low so I shall now be on a 3 month course with follow up blood test. I was disappointed to read that those of us on vitamin D supplement don't feel any better for it.....

Trikki

[Newquay]

Hi

I started taking v d many years ago. I kept getting cold flu etc, my doctor did some tests and found out my V D levels were low so I started on them.

Since that year I have had no cold or flu at all so that's my benifits.

Hope you have a great day.

Glynis

[Elkins in reply to Newquay]

Wow maybe I should get tested x

[achydunlin]

When I first started with fibro, one of the blood tests that did come out abnormal was my vit D level - it was through the floor so I was put on v high doses to get it back up. I honestly thought it was just the Vit D deficiency so was v disappointed that even though my vit D levels are stable I'm still feeling rubbish. Yes, to answer your question though I still take vit D and can tell if I've skipped a few doses. My doc thinks that all Brits should take it - the lack of sunshine (particularly where I live in north east) means we don't top up our levels enough.

[Elkins in reply to achydunlin]

What do you feel like when you've missed a few doses? X

[achydunlin in reply to Elkins]

Aching bones and very very tired. Although my fibro means I get tiredness anyway as well as the aching muscles etc, I found lack of Vit D exacerbated this. The bone ache was awful - my bones ached like toothache. That was different from the usual joint and muscle ache.

[Elkins]

Thank you for your comment. X

[Rose54]

Hi

I have taken a slow release multie vitamin for 2 years but blood test show I am on low end of scale so for 8 weeks prescribed 1 20000 unit capsules of Cholecalciferol per week .

Would get blood tested before if I where you as you can overdose on vitamin D. I believe it can cause kidney damage if you take too much .

Best Wishes

Rose

[Shazzzy]

I was found to have very low level of vitamin d, took prescribed vitamin d from gp for d two years, had a definite effect on my restless legs which used to keep me awake at night. Also the aching pain has gone down a level, so I would definitely get t3sted by doc, made a big difference to me.

[Songbird63]

Take it since found low on blood test few years ago. Seems to have reduced my pain levels quite a bit. But was also started on b12 injections too a little while after so can't be sure. There does seem to be quite a lot of evidence building up that it can reduce pain levels in FMA.

[TheAuthor]

I have a prescribed twice daily Acrette D3 supplement along with Alendronic Acid for my Osteoporosis!

[Cj78]

I take d3 daily as I was deficient I don't feel any difference really my levels are healthy enough now but I keep taking it as I think they'll drop again if I stop X