New to writing posts re fybro

I was diagnosed with fybro in 1997 after 2 years off work & waiting almost 6 months to see rheumatologist who did diagnosis.l waited patiently in the waiting area & when l was called in he asked me to lay face down on the bed & proceded to press my back with his fingers l was instantly transported to a level of pain l had never experienced before ok he said classic case of fybromyalgia & was virtually showing me out, l can vividly remember feeling angry that l had gone thru endless blood tests X-rays scans & after every test feeling more like a hypochondriac and a fraud all going thru my mind in a flash in front of me now was someone telling me l had actually got something wrong with me. I stopped him halfway to the door & said I had never heard of it & what was it he went back to his desk pressed a few keys handed me a piece of paper & said read this & you will be as wise as me. I look back on that day as really the beginning of all this misery & cycles of pain depression & after all these years I fight it daily in the early years I used to have several good days then a few bad but now mostly bad but just once in a blue moon I feel awake & almost normal & then a few hours later it returns with a hellish crying gotcha sorry to drone on but I just wanted to offload to someone who can understand  will write again soon as I have lots to tell best regards Dentist

8 Replies

  • Hi Dentist I have had it for 37 yrs ...going to work coming home sleeping going to work coming home sleeping same thing over and over again... not knowing wot it was back then I felt like a hypochondriac and got depressed bout that... I go to several classes cooking . exercise .well being... Two hours tops then I come home and sleep... 61 and have to have a cleaner... I can't get nothing done... I do c bit of dusting little bit of hoovering and sleep.... I would rather not b here  a lot of the time.... wots the point .... I have two dogs that I walk twice a day 20-30 minutes come home and laying on the bed helpless... I love the dogs they r surrogate grandchildren... hope u feel ok Dentist best wishes X 

  • I know just how you feel.I went thru 11 months of blood work, office visits etc...then you have FM.I had heard of it and even after diagnosis felt like hypochondriac. It's mind blowing.Good luck.Also I want yo say welcome to the forum . Peck.😊

  • Sadly sounds so familiar 😳

  • Hi Dentist

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

    I am so genuinely sorry to read of how you are suffering and struggling and I want to sincerely wish you all the best of luck and please take care of yourself.

    All my hopes and dreams for you


  • I know exactly how you feel - it took me 24 years of searching for an answer, when eventually a German doctor did the pressure point test on me and I finally knew what was wrong with me.  I went to the doctor yesterday and finally gave in to heavy medication to get some kind of quality life - well I will find out if it helps!!!  You are the first person I know who has had fibro longer than me - I have had it now for 33 years.  Just remember you are a fibro warrior.

  • Hi Naturegirl

    I have had Fibro for 36 years 😐😐😐 . Lu xx

  • Hi Blue Mermaid3

    36 years - you must be an expert by now - I wish it was anything like that.  I do feel it is getting worse the longer I have it - maybe the first 24 years were easier because I didn't know what I had.  Any advice you can give me that worked really well for you?

  • Very Familiar. Hope you are as well as can be today.take care.x

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