Hello x

Hello x

Hi everyone. I am new to this site although I was diagnosed with fibro a couple of years ago now. Think I am still in denial and hope it will just go away. I read a post from Jo earlier today and know exactly how she feels as I am sure many of us do. I didn't have a lovely useful job like Jo, but I did have a brain that worked and if I didn't want to do something with my brain, I had a strong body and did gardening for several years. All before FIBRO!!! I know there any many, many worse things that you could have and Fibro isn't life threatening, and I always feel particularly bad because my partner is paraplegic and works full time and supports us and I do the moaning! But I am having a few bad weeks when everything seems to knock you back and sometimes it just gets too much. I always had fight and motivation to work on the next thing, before this blasted thing!

I imagine other people have experienced the same thing but due to the lack of understanding out there I have stopped telling people that I have fibro and they just think I am lazy with my poor disabled partner carrying the weight. My own brother, who is a nurse, is a prime example of this and my relationship with one of the people I was closest to has more or less broken down.

Sorry for the moan and rant everyone, my only excuse being that I am sure we all feel like this sometimes, but I do apologise. Would love to hear how other people get through these times. (Photo is of my dog Snowy, far more photogenic than me!)

Love to all x

11 Replies

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  • Beautiful dog!!! I am sorry you are going through such a rough time. Hugs

  • Many thanks. reading it back sounds very self-pitying. Note to self do not post on a bad day x

  • Some times one needs to moan, and this is a safe place to do so. Your family no matter how much they love you can only support so far. Gentle hugs from a fellow moaner .:-)

  • Thanks Betty I'm just having one of those days x

  • Don't apologise about moaning as this is one place I hope you will never be judged as we have all been in the same boat and truely know the feeling. If the other half also has health problems I think sometimes We v try to hide how down and in pain we are as we think they have enough on their plate but occasionally were just have to have a vent so go ahead.

    It takes a long time to come to terms with this invisible Illness (well often invisible to others). I am sorry to read it has come between you and tour brother but you would think that being in the medical profession he would have come across it enough times to be note understanding. Mins you I am not surprised in some ways as there are even some bdoctors that are none believers and think it is psychological.

    I try to think when I am having a flare that I have had them before sometimes for quite some time but that eventually they v ease but I know this is easier said than done v when we are in pain. As you might see in some other posts today v were think the change in weather has alot to do with this so hopefully that when our bodies get used to it a bit more the pain will ease. Take care hope you will be feeling better soon.😁x

  • Hi and thanks for your reply and understanding. I am lucky that my partner is lovely and very supportive, and generally I know I am very lucky. Just sometimes things that you can handle in isolation, stack up and can seem a bit overwhelming. Perhaps we should all go and overwinter somewhere warm and lovely? Might not be a cure but I am sure it would ease things. I'm off to Greece. Anyone with me? x

  • We have had many a virtual holiday abroad as the thought of restorative warmth appeals to alot of us. Don't make the booking for a place that is too hot though as that sends me the other way again just like it warm enough that it is lovely must relaxing by the pool.x

  • Thanks. Like you say, virtual. The thought of partner snoring for a week and getting even less sleep than normal being the downside x

  • Remember in our virtual holiday world it is only the fibro mites which enables I us to rest and sleep without any of the distractions in normal life.xxxx

  • Hi Annieblue

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun!

    I have pasted you a link to our mother site, Fibromyalgia Action UK which hosts loads of useful Fibro information: fmauk.org/

    I am so genuinely sorry to read of how you are struggling and suffering with your Fibro and I sincerely hope that you can find some resolution and relief to these issues. I want to genuinely wish you all the best of luck.

    All my hopes and dreams for you

    Ken

  • Many Thanks Author. I appreciate the replies as I am sure everyone is having their own problems and trying to resolve them in their own way x

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