Fibro or athrits

[csav73]

Has anyone got both or waiting to find out so confused as i fibro with blood test showing inflamtion but thay say not athritis sooo confused.

[rosewine]

Yes I have osteo and fibro alot of people here have that combination and also some have other kinds of inflamatory illnesses as well such as RA. It is sometimes so difficult with symptoms to work out what is causing what as some of the symptoms are so similar. Often with the fibro Xrays etc find nothing but with osteo they can usually pinpoint where the problems are as it shows the degeneration in the joints.

have you had a look at the Fibromyalgia Action UK site at the Patient information booklet that outlines symptoms etc which might be helpful to you.x

[csav73 in reply to rosewine]

Ok thank you.

[Shadows-walker]

Hi I was first diagnosed with reactive arthritis ,then went on to fibro then ,lupus started to be mentioned now had sjorgrens syndrom ,with raynaulds ,and connective tissue disease ,I have given up on titles of what wrong , I just know to be kind and gentle with myself and know that they use the same drugs to treat me whatever diagnosis they give it the trick is not to stress fibro in someways is worse because that is the one that knocks me about the most on a daily basis , lupus comes up about twice a year but never two in a row ,I have issues with neuralgia pain ,joint pain ,I walk through quick sand every day and lift concrete blocks everytime I lift my arms , my eyes hurt ,my mouth has sores , and my hearing and breathing are effected , also bowl and bladder play up .

Ask for a pain and fatigue clinic , try not to stress ,learn to pace try not to worry when I stop worrying what was wrong and fretting for a title things got easier get your doctors on your side be reasonable loosening the plot with them as I did early on doesn't help you they have to work through things slowly ,I am told I am being treated better than a ferarre (can't spell but the car ) I have 5 engineers (consultants) it's taken 4/5 years to get this far it's frustrating I know but try to take it a day at a time

I am not telling you you are going to be like me but fibro usualy goes hand in hand with auto immune issues ,try nor to stress you will cause your inflamation to react more but a pain and fatigue clinic will help with day to day issues far more than anything else ,take care xx

Shadow

[csav73 in reply to Shadows-walker]

Thank you so much for advice.x

[Kristijane in reply to Shadows-walker]

Hi Shadows walker. We have the same life.

I have been too sick to work since I was 28 years old. I am now 41.

For the past 2 weeks I have been waking up with extreme swelling in my eyelids, redness all around my eyes and the eye pressure is so painful. Also I sweat profusely if I do anything for over 10 minutes that requires any extra effort. I am so weak, dizzy and ill.

May I ask if you have ever had this or have a clue what could be wrong.

[Shadows-walker in reply to Kristijane]

Yes I am the same ,I have to sit ,till dizziness passes my temperature control just is none existence ,I put silk bag in microwave for 40 secs place that on my lids to relieve the pressure on my lids ,this also helps my nose ,I have mitts the same for my hands and a roll for the back of my neck ,I am finding I also have tinitse as well hearing is effected not sure if that is pressure from blocked glands or side effect from drugs , appointment for that January 2016 ,

Ask your Dr to do a shimmer test on your eyes it's basically a small piece of blotting paper placed on eyes then they measure the amount of fluid you have ,is your mouth dry ,make sure your dental hygiene is 110% ,

I am no doctor but it sounds like sjorgrens i,I break out in cold sweat just sitting ang making a fruit salad.

Good luck remember to pace.

Shdpadow

[Kristijane in reply to Shadows-walker]

Thank you so much. At least I am dying. I am used to getting bad news .I see my specialist in September. I will let you know the results. Prayers.

[Shadows-walker in reply to Kristijane]

Take everything a day at a time ,try not to stress ask if you can go on a pain and fatigue course ,I have been rather down recently but I am back on here. Now ,and I find the support and contact a life savour ,there's always someone worse ,which I know isn't fair but it stops me walling to much ,I see my main specialt in September mine has referred me to oral ,gynercoligist ,oncologist , eyes , ent ,plus of course ny rhummie I am told I am being treated better than a Ferrari as they have only one engineer I have 6 looking at list yet atoms say I can't have pip which the thing that's getting me down at moment and in the greater scheme of thing that's daft on my part ,

Find yourself a happy place in your mind or with family or friends something that fills you with some piece ,

Try and be kind to yourself

Take care

Chris

[cathy21]

I understand don't quote me blood test don't prove fibro on its own but arhetis blood tests prove inflammation from crps and two others. I had ra before diagnosedwith fibro.

Hope helps x

[BlueMermaid3 in reply to cathy21]

Yes. That's what I understand. A blood test can't diagnose Fibro xx

[cathy21 in reply to BlueMermaid3]

Hi bluemermaid yes hasfar as iI know that is correct. Hugs z

[csav73 in reply to cathy21]

Thank you i just av to be more patient.lol

[mattoid-mags]

Hi, I have both too. My CRP has been elevated for over 6 months too. Im not sure if it is inflammation from the arthritis but my Gp doesn't seem to think so- then again, I don't complain enough about my pains. Good luck.

[csav73 in reply to mattoid-mags]

Omg me to i dont question things which makes me feel frushtrated.lol

[Regnofibro1]

Yes to both and a few other issues. Yes all of this gets very confusing! I have actually told my Gp he is in charge of keeping track of all of this then telling me in simple terms to explain it all. That has actually helped me understand it all. 😀😜I get confused easily these days!

[csav73 in reply to Regnofibro1]

Good idea me too.lol

[BlueMermaid3]

Hi there

Yes I have Fibro, CFS and osteoarthritis amongst other conditions.

Mine is in my lower back.

Have you asked your GP to explain your blood tests to you?

Hugs

Lu xx

[csav73 in reply to BlueMermaid3]

No i realy should but i feel like i get on there nerves sonetimes so i keep it to myself an learn from internet.lol

[BlueMermaid3 in reply to csav73]

Please may I suggest, in the very nicest way possible, not to learn from the Internet.

Unfortunately not everything that is posted on the Internet is true. Also some people are not aware that Wikipedia for instance is not true fact. It's an opinion based site.

Your GP has a duty of care to you. He should be the one explaining your results to you.

If you do not feel he has time to see you, could you see a different GP in your practice?

Please don't rely on the Internet.

These forums are absolutely fantastic and I love being part of this community, but we are not doctors.

Please, please see your GP and get your results explained to you. It is also a great idea to take someone along with you to your appointment, a family member or a friend.

GP's tend to be more professional when you have someone with you.

Please don't take offence to my message. I am only writing out of concern for you.

Hugs

Lu xx

[csav73 in reply to BlueMermaid3]

No thats ok just get so fed up with being ill and yeah already changed doctors.x

[BlueMermaid3 in reply to csav73]

Yes. I know the feeling. It's the unpredictability of it that really gets to me xx

[secondhandrose2]

Hi,

Yes, I have arthritis at several points on my spine and also fibro.

I get inflammation as a result of arthritis making joints pressing on nerves rather than the joints themselves being inflamed as in inflammatory arthritis, so I get referred pain in my shoulders and elbows from that - but I also get inflammation in other places and have been told by the rhumatologist that pain is from fibro but people with fibro tell me inflammation is not part of fibro.

I had specific blood tests to rule out inflammatory arthritis which is a systemic condition like Lupus, but those were clear. Medics can treat inflammatory arthritis with specific systemic meds and control it quite well but other kinds of inflammation are the body's response to localised damage and that kind is treated with anti-inflammatories such as Ibrufen.

Suex

[csav73 in reply to secondhandrose2]

Thanks sue i had steroid injection in my back wounder why he didnt give me ibrufen?.x

[secondhandrose2 in reply to csav73]

I guess you needed something stronger and for a specific area, the injection would have targetted the source of the pain. x

[TheAuthor]

I have both Arthritis and Fibro, and on occasion I must admit that I have trouble telling which is which? I want to genuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken