Fibromyalgia Action UK
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confused . com fibro fog

anybody else getting very forgetful and confused ,am finding it abit distressed I keep forgetting everything simple things what can I do I often wonder if am getting some form f dementure ,I know sounds dumb but my ex,s dad was diagnosised with alzimers in his mid 30,s hes a lot older now .if I see a doctor what should I say and what will they say .

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fibro fog is a very common symptom of fibro. this can be forgetting names, appointments, where you have put something; mixing up your words or struggling to find the right word; lack of concentration etc .... it can be very frustrating but is not a form of dementia.

xxx

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no I know its not a form of dementia I was just worried it was and not fibro fog ,if I went doctors what would they say if I tild them I had a bad form of fibro fog

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unfortunately there is not much that doctors can do for fibro fog :( i suspect they would tell you to learn to live with it !

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but am leaving pan on left food cooking all night flooded the place I have 5 kids so I don't think learn to live with it quite cuts it ,I have 5 kids to think about .

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unfortunately - learning to live with it is all you can do ... and I appreciate that it is so much harder when you have children to think about too. side effects from some medications can make it worse - so that's the only thing I can think of that your gp could help with ... maybe do a medication review and see whether this could be the case for you. xxx

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I get very forgetful. Even forgot my door keys the other day. Getting locked out is not funny. I have lost a few things recently like hat and gloves, this could get expensive. This is getting serious, what is next. I'm getting worried.

David

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iv forgotten turn bath off ,left pans on cooker flooded my bathroom and my kitchen left my gas on and not lite the oven. gone out left my keys in front door.amongst 10 million other things

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Oh dear that doesn't sound good. It really controls my life, I can't do the things I used to do, the main ones being working and driving. I find the fibro fog is probably the worse symptom for me, close to the fatigue, but both are connected.

Take care of yourself

David x

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Hi Chezdezedezray I am suffering from the very same symptoms have been for a long while that would be my question what do I say to the doctor listening to your story symptoms very familiar. For yourself I would definitely talk to your doctor ASAP tell him your symptoms how long you have had these symptoms get the doctor to look at the side affects of all your medication try think to when you’re symptoms started to get worse I will also go to see my doctor now that I have heard you talk about it I thought it was just me thanks very much for your post please seek help and guidance regarding your symptoms. Margaret Caskey

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I get this quite alot and I have a friend who is worse than me. Maybe leave notes saying don't forget. I even have to remind myself im on a healthy eating plan.

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hi hun please don't be offended by my comment on your post tact aint my thing hun xxxx

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fibro fog is a nightmare.

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Lol Anne I same I've joined slimming world n my problem is I eat rubbish during the nite n I've scoffed it then remember that can have it 🙈😂😅😂so I've moved cupboards abot put my sw bars in treat cupboard so if I get up during night n munch it's not to bad lol xx

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I completely understand what you mean, the times I've left eggs boiling until all the water's evaporated and eggs have turned black and I have flooded kitchen a few times! I try and utilise my phone a lot more now - set alarm on it when I'm cooking anything or reminders to do things. I have also put a big note on back of front door as I am worried about leaving the house and leaving something on so have a checklist - e.g. Make sure Gas/Taps turned off, Make sure have keys in pocket etc..You could put similar notes on your kitchen/bathroom doors maybe? You can also buy little alarms for your keys in case you can't find them. I do try and laugh off my memory lapses and mis-haps but it can be worrying. I just try and avoid doing anything potentially dangerous if I'm alone in the house and feeling fatigued as the fibro-fog is quite thick then. As Hazel mentioned I found some of the meds I was taking were making me a bit more muddled and I did see an improvement when I weaned myself off some of them. x

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Fibro plus the meds to help with pain relief tend to mess up any chance of a memory I may have I use my mobile phone to remind me of things.I have ruined pans and food by forgetting to time cooking. It is manageable and dementia has specific tests by GP which in extreme case you could ask for. Think positives not the opposite is my suggestion.

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I have started to not beat myself up about it even though it is very frustrating ... but if I am doing something I.e cooking I set reminders on my phone... set alarm 10 mins dinner or something like that..I have routines so I don’t forget keys etc and lock doors ..If running the bath I stay in there so I don’t forget or again set alarm on my phone.

I even have alarms to take all my mess and that is four times a day!

The one thing I find so upsetting is getting words mixed up or say I say to my husband who has the cucumber ... I ask him can you pass me the... I am looking at the darn cucumber but I can’t remember what it is called so I will then say.. long green fresh thing for salad!!

So set some plans up so you don’t forget and be kind to yourself.

Healing hugs xx

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I scared myself the other day went to put something in microwave bearinmind it 5years old I new what I wanted to do but could work out how to open it was looking for button but doesn't have on was out of sorts all day oh the joys xx

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My memory is getting worse I put car keys in fridge butter in cupboard when I’m out can’t remember where I’m going I also walk in kitchen and forget why I went there

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I’ve just recently been diagnosed but doing this for years just last month I locked myself out of the house twice 🤣 so I’ve had to give spare keys out now the worst time was when I left toast on the grill and completely forgot about it - I walked into a kitchen full of black smoke and fire 😩😑 I forget appointments so now I’ve had to start setting reminders for them because I wouldn’t have a clue otherwise I’ve missed so many over the years ! I can be looking for something and then my mind goes blank and I have to remember what it was and often it doesn’t come back to me don’t think The doctor could help i had to change mine to actually get taken seriously 😩 hope you find some way of managing I just about manage but with serious headache and I have a three year old it’s hard💕

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Hi Chezdezray, I told my Dr about this Fibro Fog, did a few tests and she came back with it happens to everyone, sorry I am not everyone, it's frustrating as hell but we do have to live with it, like forgetting your tablets and waking up in agony at 1-00 or 2-00 or talking and forgetting your mates name who is in the same room as you, try asking your children to help, my girls help me all the time, have you got this have you got that, my girls don't live with me but phone me at least 2/3 times a day, hugs, xxx

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Hi. I think sadly the forgetfulness comes with the fibro. I am always forgetting that Ive put eggs on to boil or poach and my husband comes in to show me the waters boiled away. I call things by the wrong names, my husband and I try to make a joke of it, but it's not really funny. But if we don't laugh what else can we do?

Heltadelta.x

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The doctor 👩🏼‍⚕️ will more than likely send you to a neurologist who will more than likely send you for MRI or CT scan of your brain, order an EEG and send you for extensive memory testing testing short term memory, long term memory ability as to how long it tags you to learn, executive memory ect. Then after all that is done he/she will have you come back for the results and go from there. Been there a 💯 times and got the T-shirt. 😊 Oh there is this series of video on Regain You Brain. Today is day 3 of the 12 days series. They had a series out 2yrs ago on Awaking from Alzheimer’s. It is put out by a several brain doctors. You should be able to google Awakening from Alzheimer’s Regain your brain. According to these doctors you can reverse the Alzheimer’s and regain and eve improve the cognitive function of your brain.

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Hi chezdezray, I too have fibro fog very badly. I have learned to put things in place to help and avoid dangerous accidents.

I have a chalk board and white board on my kitchen cupboards so I can write things on them as soon as I remember it, otherwise it will go straight out of my memory.

I also set my phone alarm or cooker timer to remind me about things I have on the cooker. I use my phone's calendar to record all appointments and things I need to do and set reminders on them. My whole life is in my phone! I have got myself into a routine of checking it every day to make sure I haven't missed doing anything.

I also forget words, named of people, forget what I'm saying, forget what I went in the cupboard/drawer/room for. I've put everything in place that I can think of to help me remember things and not cause accidents.

Initially I thought I had Alzheimers too, as my motherv had it and I was her carer. It's a frightening thought by I can assure you, it's probably the fibro that's causing it, but to put your mind at rest you need to go to the doctor's.

Explain to them how it is affecting you and what you're worried it might be and take it from there. I'm sure they'll be able to put your mind at rest, but it doesn't change the fact that you really do have to learn to live with it and just make sure you put things in place to help with the day to day you do in the home.

How you get it sorted soon and get some reminders out in your phone, on the calendar, on the kitchen cupboard, in fact anywhere that works. Love & hugs. ((💖)) 💕

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